Adult-onset leukoencephalopathy or leukodystrophy

I am a 65-year-old woman, living in Chicago, who has recently been diagnosed with leukoencephalopathy, of unknown origin. In January, 2008, I had the symptoms of a stroke, but stroke was ruled out. MS was suspected, based on an MRI of my brain, but MS has also been ruled out.
I have been in a lot of pain, and have some balance issues. In January, 2009, I will be going to the Pain Management Program at the Rehabilitation Institute of Chicago.
Is there anyone else who has an adult-onset UND? Would you like to share your trials or triumphs?