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Welcome to Inspire!

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I don't ever want another tetanus shot

Jesana
  • By Jesana · Posted November 20, 2009
  • Discussion in Living with an undiagnosed medical problem · 1 reply
  • two weeks ago i had the flu shot, no side effect . this Monday I had the h1n1 shot, no side effect . on Wednesday I received a tetanus shot and pneumovac. since then I have had terrible pain in the arm ...

TIA's

grammy5
  • By grammy5 · Posted November 18, 2009
  • Discussion in Symptoms · 1 reply
  • My 29 year old son had been working out like he does every day. He had a bit of a headache but it got worse after his work out. His left arm felt numb and he was having trouble seeing. It seemed to ease ...

finally a small glimmer of hope!

dizzybee
  • By dizzybee · Posted November 17, 2009
  • Journal · 7 replies
  • went to new neurologist monday -- he specializes in vascular issues. after talking w/me & hubster, and doing all the neuro tests, he went out to review my pictures. he came back with a very puzzled look ...

National Undiagnosed Diseases Registry

turtle102301
  • By turtle102301 · Posted November 12, 2009
  • Discussion in Living with an undiagnosed medical problem · 0 replies
  • My name is Heather Long and my son, Cal died at the age of 5 from an as yet undiagnosed disease. While Cal was alive, I found that there was no formal way for doctors to communicate with eachother (i.e ...

Coping with this one life inside this one body

Nihao
  • By Nihao · Posted November 10, 2009
  • Journal · 4 replies
  • I am interested in how people cope day to day and not let their illness just swallow up their whole lives. Please reply and tell me what gives you comfort and inner peace during your darkest days. Here ...

Maintaining the Status Quo

toomanyeos
  • By toomanyeos · Posted November 10, 2009
  • Journal · 0 replies
  • Nothing new to report, really. Still having problems with the edema... still no hope of relieving it... still waiting for the appt at Duke to get over with so we can move on to something that actually ...

The Healthiest Sick person I know

Nihao
  • By Nihao · Posted November 4, 2009
  • Journal · 2 replies
  • I not only look healthy, but appear that way on paper, too. I have perfect cholesterol, blood pressure, blood sugar, weight etc... Majority of my symptoms are neurological... all of my MRI tests, CT scans ...

SO excited to share what I have found!

pwrsrg77
  • By pwrsrg77 · Posted November 4, 2009
  • Journal · 42 replies
  • I have received TONS of wonderful support from this amazing community of people just like myself. All that struggle with debilitating symptoms, wrong diagnosis, less than quality doctors etc... I wish ...

Out Damn Spot!

dizzybee
  • By dizzybee · Posted October 31, 2009
  • Journal · 6 replies
  • have been having trigeminal neuralgia (fancy word for pain from Hades) since around Sept. 23 -- been to ER twice one shot of dilaudel and next time a shot of morphine. Finally got an MRI -- i basically ...

Week 2 of diarrhea!!!

Rodeogrl02
  • By Rodeogrl02 · Posted October 29, 2009
  • Journal · 15 replies
  • So I've had my J-tube for severe gastroparesis since july 2nd, then 2 weeks ago I started getting severe liquid diarrhea, my gi dr. treated it w/ xifacin as a bacteria overgrowth in my gi tract, it kind ...

Somebody PLEASE HELP!!! ={

pwrsrg77
  • By pwrsrg77 · Posted October 29, 2009
  • Journal · 83 replies
  • Well, I'm now 2 years into a disease that is sucking the life out of me. If I had a nickel for every time I've balled my eyes out & said my famous quote "I can't take this anymore" I'd be a very rich ...

Needing Therapy

toomanyeos
  • By toomanyeos · Posted October 25, 2009
  • Journal · 0 replies
  • I've noticed that during the really tough times with this mystery illness, it helps to keep a journal. So here I am, trying out a new site and hoping to get all the clutter out of my head. I had been ...

My problem with doctors

Sparkle730
  • By Sparkle730 · Posted October 23, 2009
  • Discussion in Treatment · 4 replies
  • I am not gonna post my whole medical story now but I am going to explain what i have come to be disgusted by with the medical field. When someone said they were a doctor i was always very impressed, i ...

Pulmanry Problems ??????CONFUSED!!!!!

Rodeogrl02
  • By Rodeogrl02 · Posted October 22, 2009
  • Journal · 13 replies
  • I told my neurologist whom I see for dysautonomia that I keep getting really short of breath with very little exsertion, just like walking a few feet or up a few stairs, so she ordered a pulmonary function ...

Dying Slowly!

Scarde
  • By Scarde · Posted October 19, 2009
  • Journal · 5 replies
  • I feel as if I'm dying a slow aginizing death! I hate this so much, I can't care for my children like I once did! I can't work, bowl, clean, walk for too long, sit for too long. I'm starting to have major ...

depression

terrific_kat

Too Young For All This Pain!

Scarde
  • By Scarde · Posted October 17, 2009
  • Journal · 4 replies
  • I am a 31 yr. female who has been recently diagnosed with Osteoporosis. From what I've found I am among the few who know they have it at my age! I've struggled with an undiagnosed pain for 3 yrs. now ...

Could this be it?

MyMiracles
  • By MyMiracles · Posted October 16, 2009
  • Discussion in Symptoms · 0 replies
  • I am going to tell you my symptoms. I am weak, tired, have not much of an appetite, my lower back is killing me, it's uncomfortable to go to the bathroom, my lower abdomen has a constant dull pain/pressure ...

I FEEL LIKE CRAP & AM GETTING THE RUN AROUND FROM MY DOCTORS!!!!!

Rodeogrl02
  • By Rodeogrl02 · Posted October 15, 2009
  • Journal · 10 replies
  • Does anyone know what I can do, I'm so fatigued and really tired every day no matter how much I sleep or rest, I have dysautonomia, and some times anemia or other low wbcs or platelets, the hematologist ...

I don't know what's wrong and niether do the docs

MyMiracles
  • By MyMiracles · Posted October 14, 2009
  • Discussion in Symptoms · 3 replies
  • I am 19 years old and normally a healthy person. 14 weeks ago I had a c-section to deliver my 11 week early baby girl. Since that time nothing has been right. After the c-section I had spinal headaches ...

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