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Welcome to Inspire!

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Active journals

finally a small glimmer of hope!

dizzybee
  • By dizzybee · New reply yesterday at 2:19 pm
  • 7 replies
  • went to new neurologist monday -- he specializes in vascular issues. after talking w/me & hubster, and doing all the neuro tests, he went out to review my pictures. he came back with a very puzzled look ...

SO excited to share what I have found!

pwrsrg77
  • By pwrsrg77 · New reply yesterday at 2:14 pm
  • 42 replies
  • I have received TONS of wonderful support from this amazing community of people just like myself. All that struggle with debilitating symptoms, wrong diagnosis, less than quality doctors etc... I wish ...

Bladder Problem

batikbaby
  • By batikbaby · New reply November 17, 2009
  • 16 replies
  • After blood tests, ultra sound, colonoscopy, CAT scan, nothing showed anything unusual. However, I have to pee every 20 minutes and I feel like I have a football in my abdomen. The doctors keep telling ...

my NIH experience

dizzybee
  • By dizzybee · New reply November 17, 2009
  • 40 replies
  • THIS IS MY EXPERIENCE -- I HAVE TRIED TO LEAVE THE DOCTORS' INVOLVED NAMES OUT SO AS NOT TO CAUSE ISSUES -- AGAIN, THIS IS WHAT HAPPENED TO ME. Well, where to start--nurse took my vitals and some allergy ...

Anyone having problems from scoliosis or have had the surgery.

Lisa35
  • By Lisa35 · New reply November 16, 2009
  • 38 replies
  • I have tried everything and can't get better. After a trip to WI Dells last summer my back went out and then I started having shooting pains down my legs, loss of feeling and now my arms. Physical therapy ...

Somebody PLEASE HELP!!! ={

pwrsrg77
  • By pwrsrg77 · New reply November 13, 2009
  • 83 replies
  • Well, I'm now 2 years into a disease that is sucking the life out of me. If I had a nickel for every time I've balled my eyes out & said my famous quote "I can't take this anymore" I'd be a very rich ...

Coping with this one life inside this one body

Nihao
  • By Nihao · New reply November 12, 2009
  • 4 replies
  • I am interested in how people cope day to day and not let their illness just swallow up their whole lives. Please reply and tell me what gives you comfort and inner peace during your darkest days. Here ...

Pulmanry Problems ??????CONFUSED!!!!!

Rodeogrl02
  • By Rodeogrl02 · New reply November 11, 2009
  • 13 replies
  • I told my neurologist whom I see for dysautonomia that I keep getting really short of breath with very little exsertion, just like walking a few feet or up a few stairs, so she ordered a pulmonary function ...

Maintaining the Status Quo

toomanyeos
  • By toomanyeos · Posted November 10, 2009
  • 0 replies
  • Nothing new to report, really. Still having problems with the edema... still no hope of relieving it... still waiting for the appt at Duke to get over with so we can move on to something that actually ...

Week 2 of diarrhea!!!

Rodeogrl02
  • By Rodeogrl02 · New reply November 9, 2009
  • 15 replies
  • So I've had my J-tube for severe gastroparesis since july 2nd, then 2 weeks ago I started getting severe liquid diarrhea, my gi dr. treated it w/ xifacin as a bacteria overgrowth in my gi tract, it kind ...

"HYPOKALEMIA OR LOW POTASSIUM"

mandyblue
  • By mandyblue · New reply November 8, 2009
  • 32 replies
  • I want to share this research information in "My Journal". This is a very long collection of articles, that explains in great detail, about Hypokalemia or Low Potassium. It is for anyone who needs help ...

The Healthiest Sick person I know

Nihao
  • By Nihao · New reply November 6, 2009
  • 2 replies
  • I not only look healthy, but appear that way on paper, too. I have perfect cholesterol, blood pressure, blood sugar, weight etc... Majority of my symptoms are neurological... all of my MRI tests, CT scans ...

Out Damn Spot!

dizzybee
  • By dizzybee · New reply November 4, 2009
  • 6 replies
  • have been having trigeminal neuralgia (fancy word for pain from Hades) since around Sept. 23 -- been to ER twice one shot of dilaudel and next time a shot of morphine. Finally got an MRI -- i basically ...

My doctor's are gambling with my life!!!!

Rodeogrl02
  • By Rodeogrl02 · New reply October 30, 2009
  • 3 replies
  • So if you liv in wisconsin never go to wheaton fransiscan hospitals or doctors office specialists, they obviously think your live's aren't worth much. I started going there when I was in highschool but ...

Needing Therapy

toomanyeos
  • By toomanyeos · Posted October 25, 2009
  • 0 replies
  • I've noticed that during the really tough times with this mystery illness, it helps to keep a journal. So here I am, trying out a new site and hoping to get all the clutter out of my head. I had been ...

Dying Slowly!

Scarde
  • By Scarde · New reply October 21, 2009
  • 5 replies
  • I feel as if I'm dying a slow aginizing death! I hate this so much, I can't care for my children like I once did! I can't work, bowl, clean, walk for too long, sit for too long. I'm starting to have major ...

Too Young For All This Pain!

Scarde
  • By Scarde · New reply October 19, 2009
  • 4 replies
  • I am a 31 yr. female who has been recently diagnosed with Osteoporosis. From what I've found I am among the few who know they have it at my age! I've struggled with an undiagnosed pain for 3 yrs. now ...

I FEEL LIKE CRAP & AM GETTING THE RUN AROUND FROM MY DOCTORS!!!!!

Rodeogrl02
  • By Rodeogrl02 · New reply October 19, 2009
  • 10 replies
  • Does anyone know what I can do, I'm so fatigued and really tired every day no matter how much I sleep or rest, I have dysautonomia, and some times anemia or other low wbcs or platelets, the hematologist ...

I CAN HARDLY WALK TODAY

so-tired
  • By so-tired · New reply October 13, 2009
  • 27 replies
  • I HAVE SO MANY THINGS WRONG WITH ME, BUT TODAY IS REALLY BAD. I AM SO WEAK, AND CAN HARDLY WALK! ANY IDEAS AS TO WHAT THIS COULD BE? I'M SCARED! PLEASE, REPLY? LINDA (SO TIRED ...

Electrolyte Abnormalities

mandyblue
  • By mandyblue · New reply October 11, 2009
  • 2 replies
  • This information is being posted in "My Journal" for anyone who wishes to use it as reference material to help understand their electrolytes, and metabolic disorders. I have previously promised my friends ...

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