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Welcome to Inspire!
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Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
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Journals
finally a small glimmer of hope!
- By dizzybee · Posted November 17, 2009
- 7 replies
- went to new neurologist monday -- he specializes in vascular issues. after talking w/me & hubster, and doing all the neuro tests, he went out to review my pictures. he came back with a very puzzled look ...
Coping with this one life inside this one body
- By Nihao · Posted November 10, 2009
- 4 replies
- I am interested in how people cope day to day and not let their illness just swallow up their whole lives. Please reply and tell me what gives you comfort and inner peace during your darkest days. Here ...
Maintaining the Status Quo
- By toomanyeos · Posted November 10, 2009
- 0 replies
- Nothing new to report, really. Still having problems with the edema... still no hope of relieving it... still waiting for the appt at Duke to get over with so we can move on to something that actually ...
The Healthiest Sick person I know
- By Nihao · Posted November 4, 2009
- 2 replies
- I not only look healthy, but appear that way on paper, too. I have perfect cholesterol, blood pressure, blood sugar, weight etc... Majority of my symptoms are neurological... all of my MRI tests, CT scans ...
SO excited to share what I have found!
- By pwrsrg77 · Posted November 4, 2009
- 42 replies
- I have received TONS of wonderful support from this amazing community of people just like myself. All that struggle with debilitating symptoms, wrong diagnosis, less than quality doctors etc... I wish ...
Out Damn Spot!
- By dizzybee · Posted October 31, 2009
- 6 replies
- have been having trigeminal neuralgia (fancy word for pain from Hades) since around Sept. 23 -- been to ER twice one shot of dilaudel and next time a shot of morphine. Finally got an MRI -- i basically ...
Week 2 of diarrhea!!!
- By Rodeogrl02 · Posted October 29, 2009
- 15 replies
- So I've had my J-tube for severe gastroparesis since july 2nd, then 2 weeks ago I started getting severe liquid diarrhea, my gi dr. treated it w/ xifacin as a bacteria overgrowth in my gi tract, it kind ...
Somebody PLEASE HELP!!! ={
- By pwrsrg77 · Posted October 29, 2009
- 83 replies
- Well, I'm now 2 years into a disease that is sucking the life out of me. If I had a nickel for every time I've balled my eyes out & said my famous quote "I can't take this anymore" I'd be a very rich ...
Needing Therapy
- By toomanyeos · Posted October 25, 2009
- 0 replies
- I've noticed that during the really tough times with this mystery illness, it helps to keep a journal. So here I am, trying out a new site and hoping to get all the clutter out of my head. I had been ...
Pulmanry Problems ??????CONFUSED!!!!!
- By Rodeogrl02 · Posted October 22, 2009
- 13 replies
- I told my neurologist whom I see for dysautonomia that I keep getting really short of breath with very little exsertion, just like walking a few feet or up a few stairs, so she ordered a pulmonary function ...
Dying Slowly!
- By Scarde · Posted October 19, 2009
- 5 replies
- I feel as if I'm dying a slow aginizing death! I hate this so much, I can't care for my children like I once did! I can't work, bowl, clean, walk for too long, sit for too long. I'm starting to have major ...
Too Young For All This Pain!
- By Scarde · Posted October 17, 2009
- 4 replies
- I am a 31 yr. female who has been recently diagnosed with Osteoporosis. From what I've found I am among the few who know they have it at my age! I've struggled with an undiagnosed pain for 3 yrs. now ...
I FEEL LIKE CRAP & AM GETTING THE RUN AROUND FROM MY DOCTORS!!!!!
- By Rodeogrl02 · Posted October 15, 2009
- 10 replies
- Does anyone know what I can do, I'm so fatigued and really tired every day no matter how much I sleep or rest, I have dysautonomia, and some times anemia or other low wbcs or platelets, the hematologist ...
Hyperinsulinism
- By Hyperinsulinism · Posted October 7, 2009
- 0 replies
- What is Congenital HI? Congenital hyperinsulinism (HI) is a disorder in which the insulin cells of the pancreas (beta cells) secrete too much insulin and at the wrong time. Excess insulin causes low blood ...
I CAN HARDLY WALK TODAY
- By so-tired · Posted October 7, 2009
- 27 replies
- I HAVE SO MANY THINGS WRONG WITH ME, BUT TODAY IS REALLY BAD. I AM SO WEAK, AND CAN HARDLY WALK! ANY IDEAS AS TO WHAT THIS COULD BE? I'M SCARED! PLEASE, REPLY? LINDA (SO TIRED ...
see Stu run, run Stu run.
- By stutower · Posted October 6, 2009
- 3 replies
- Just sittin back enjoy my 15th or 16th year of refractory stytemic sarcoidosis. Kinda fun really, waitin to see what it'll take out next, and when will it hit something really vital, hmmm maybe I should ...
TODAY, 10-4-09
- By L_J_C_ · Posted October 5, 2009
- 0 replies
- Funny how the body changes on a regular basis. NOW my hands are giving me fits. Very stiff and hurtful. I have developed a "baker's cyst" behind right knee. Long walks really makes it swell and hurt ...
my NIH experience
- By dizzybee · Posted October 2, 2009
- 40 replies
- THIS IS MY EXPERIENCE -- I HAVE TRIED TO LEAVE THE DOCTORS' INVOLVED NAMES OUT SO AS NOT TO CAUSE ISSUES -- AGAIN, THIS IS WHAT HAPPENED TO ME. Well, where to start--nurse took my vitals and some allergy ...
Finding info.
- By wigglemommy · Posted October 1, 2009
- 0 replies
- I would love to hear from anyone who has a child with a genetic disorder especially a chromesone deletion ...
My doctor's are gambling with my life!!!!
- By Rodeogrl02 · Posted September 29, 2009
- 3 replies
- So if you liv in wisconsin never go to wheaton fransiscan hospitals or doctors office specialists, they obviously think your live's aren't worth much. I started going there when I was in highschool but ...
