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Boost VHC Drink - 530 Calories

Duvie
  • By Duvie · New reply April 15, 2014
  • Journal · 67 replies
  • Thanks to a lovely lady battling ALS, I have found out about this new Boost high- calorie drink to pass on to those struggling to maintain or to gain weight. Check it out online. Take special notice to ...

"A wake-up call from a young e-patient: 'I need to be heard'”

John2
  • By John2 · Posted April 15, 2014
  • Journal · 0 replies
  • From: John Novack, Communications Director, Inspire 4/15/14 Dear members, I am writing to share with you a new guest column in "Scope," the Stanford University School of Medicine's medical blog: "A wake-up ...

Back on Steriods

Neicy
  • By Neicy · New reply April 14, 2014
  • Journal · 5 replies
  • Back on Prednisone I hope it helps, bad flare even hurt to touch my eyelids. I haven't slept in days, now on the steroids " Sleep Don't Come Easy ...

Respiratory muscle weakness

agnieszk
  • By agnieszk · Posted April 12, 2014
  • Discussion in Symptoms · 0 replies
  • Hi! I'm new to Inspire and I was brought here because of my undiagnosed symptoms that have been going on for a year. I was wondering if anyone has experienced something similar. Basically, I feel as if ...

Tag your it.

Neicy
  • By Neicy · New reply April 11, 2014
  • Journal · 24 replies
  • Has anyone ever played hot potato? Well I feel like that potato, and my doctors are the players. Each of them keep passing me around saying " Not my problem, she's yours". Do any of you ever get that ...

Please take time out to look at this

Neicy
  • By Neicy · New reply April 11, 2014
  • Journal · 3 replies
  • This is the best explanation of pulmonary hypertension I have ever heard by any one. I wish she were my pulmonary. Everyone please take time to check this out. I found it on YouTube. Every doctor should ...

Big girls do cry, all the time.

Neicy
  • By Neicy · New reply April 11, 2014
  • Journal · 12 replies
  • If anyone tells you big girls don't cry, tell them I said that's a lie. Lately I cry over anything, I don't like talking to people because I don't know when I will burst into tears. Lately I seem so clumsy ...

Frustrated and still looking for answers

Neicy
  • By Neicy · New reply April 5, 2014
  • Journal · 20 replies
  • I went to my pulmonary today, he breezed in said all my last CT, PFT and Xrays (from 4months ago) looked good. He said "I don't see anything wrong with your lungs" as I sat there gasping for air. On my ...

Completely numb left leg/no other symptoms

Leen08
  • By Leen08 · Posted April 2, 2014
  • Discussion in Symptoms · 0 replies
  • For 3 months now my left leg has been numb. Long story short is although MRI's have been done, I still have no idea why. I am going to have a nerve conduction test done next month but I am at my whits ...

Help

rlathree
  • By rlathree · New reply April 1, 2014
  • Journal · 6 replies
  • Has anyone here got EBV and never been the same again ? I got it 6 years ago and have just slowly deteriorated ever since. I suffer from chronic pain, chronic fatigue to the point I can't get out of bed ...

And so the anxieties continue...

timidandshy
  • By timidandshy · Posted March 25, 2014
  • Journal · 0 replies
  • There are times when you want an answer. There are times when you need an answer. But sometimes, you need an answer ASAP for your anxieties to stop so you can stop freaking out. Now, I want to make everyone ...

Don't know what to do...

truenorth
  • By truenorth · Posted March 24, 2014
  • Discussion in Living with an undiagnosed medical problem · 0 replies
  • Hi All, Last summer I went through absolute hell, which began with a routine abdominal ultrasound. The thing they were originally checking on was fine, but as a result of that test, they accidentally ...

Does anyone else have these symptoms?

timidandshy
  • By timidandshy · Posted March 24, 2014
  • Discussion in Symptoms · 0 replies
  • Hi, all. I'm new here, and I have a couple of questions. First off, a little background. I am 19 yrs old, and am a little concerned. About a month ago, I was scrolling through some old blood results from ...

Undiagnosed Autoimmune Disease

Alley01
  • By Alley01 · New reply March 23, 2014
  • Discussion in Living with an undiagnosed medical problem · 3 replies
  • Hello I am not really sure how this kind of thing works but I am 21 years old and I am from Melbourne, Australia. Since I was 18 I started to feel fatigued 24/7 which leaded to constant colds, infections ...

Just having a very bad day.

Neicy
  • By Neicy · New reply March 23, 2014
  • Journal · 5 replies
  • I am not having a good day, I have pain that someone not going through this would not understand. I went shopping with a friend last night, I wanted to tell her to take me back home but I stuck it out ...

Leg or Foot Massage Devices???

Duvie
  • By Duvie · New reply March 23, 2014
  • Journal · 57 replies
  • Wondering if anyone uses a massage device and how well it works. Jo and I sometimes suffer with our legs wanting to cramp up. Jo even has problems with her left arm occasionally. If anyone can give us ...

The Inspire Q&A: Inspire talks with Don Dizon, MD

John2
  • By John2 · New reply March 19, 2014
  • Journal · 12 replies
  • The Inspire Q&A: Inspire talks with Don Dizon, MD Dear members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients ...

Our second annual report with Stanford Medical School

Brian
  • By Brian · Posted March 19, 2014
  • Journal · 0 replies
  • We just finished a brand new special report, “Experts by experience 2014: A compilation of patients’ stories”, in partnership with the Stanford University School of Medicine. It is a 31-page collection ...

Hitting a milestone -- 5,000 photos posted already

John2
  • By John2 · Posted March 18, 2014
  • Journal · 0 replies
  • From: John Novack, communications director, Inspire 3/18/14 Dear members, I'm writing to let you know that in a little more than a month, members here have posted more than 5,000 photos. Congratulations ...

My daughter

nicoledorman
  • By nicoledorman · New reply March 17, 2014
  • Discussion in Symptoms · 1 reply
  • Hello, My daughter is 3 years old and we just cant find out what is wrong. We started this process at the middle of January. In which they have done blood work but cant find any thing to pin point what ...

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