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My problem with doctors

Sparkle730
  • By Sparkle730 · New reply yesterday at 3:25 pm
  • Discussion in Treatment · 4 replies
  • I am not gonna post my whole medical story now but I am going to explain what i have come to be disgusted by with the medical field. When someone said they were a doctor i was always very impressed, i ...

TIA's

grammy5
  • By grammy5 · New reply yesterday at 3:09 pm
  • Discussion in Symptoms · 1 reply
  • My 29 year old son had been working out like he does every day. He had a bit of a headache but it got worse after his work out. His left arm felt numb and he was having trouble seeing. It seemed to ease ...

I don't ever want another tetanus shot

Jesana
  • By Jesana · New reply yesterday at 3:03 pm
  • Discussion in Living with an undiagnosed medical problem · 1 reply
  • two weeks ago i had the flu shot, no side effect . this Monday I had the h1n1 shot, no side effect . on Wednesday I received a tetanus shot and pneumovac. since then I have had terrible pain in the arm ...

finally a small glimmer of hope!

dizzybee
  • By dizzybee · New reply yesterday at 2:19 pm
  • Journal · 7 replies
  • went to new neurologist monday -- he specializes in vascular issues. after talking w/me & hubster, and doing all the neuro tests, he went out to review my pictures. he came back with a very puzzled look ...

SO excited to share what I have found!

pwrsrg77
  • By pwrsrg77 · New reply yesterday at 2:14 pm
  • Journal · 42 replies
  • I have received TONS of wonderful support from this amazing community of people just like myself. All that struggle with debilitating symptoms, wrong diagnosis, less than quality doctors etc... I wish ...

Bladder Problem

batikbaby
  • By batikbaby · New reply November 17, 2009
  • Journal · 16 replies
  • After blood tests, ultra sound, colonoscopy, CAT scan, nothing showed anything unusual. However, I have to pee every 20 minutes and I feel like I have a football in my abdomen. The doctors keep telling ...

my NIH experience

dizzybee
  • By dizzybee · New reply November 17, 2009
  • Journal · 40 replies
  • THIS IS MY EXPERIENCE -- I HAVE TRIED TO LEAVE THE DOCTORS' INVOLVED NAMES OUT SO AS NOT TO CAUSE ISSUES -- AGAIN, THIS IS WHAT HAPPENED TO ME. Well, where to start--nurse took my vitals and some allergy ...

Anyone having problems from scoliosis or have had the surgery.

Lisa35
  • By Lisa35 · New reply November 16, 2009
  • Journal · 38 replies
  • I have tried everything and can't get better. After a trip to WI Dells last summer my back went out and then I started having shooting pains down my legs, loss of feeling and now my arms. Physical therapy ...

Somebody PLEASE HELP!!! ={

pwrsrg77
  • By pwrsrg77 · New reply November 13, 2009
  • Journal · 83 replies
  • Well, I'm now 2 years into a disease that is sucking the life out of me. If I had a nickel for every time I've balled my eyes out & said my famous quote "I can't take this anymore" I'd be a very rich ...

Coping with this one life inside this one body

Nihao
  • By Nihao · New reply November 12, 2009
  • Journal · 4 replies
  • I am interested in how people cope day to day and not let their illness just swallow up their whole lives. Please reply and tell me what gives you comfort and inner peace during your darkest days. Here ...

National Undiagnosed Diseases Registry

turtle102301
  • By turtle102301 · Posted November 12, 2009
  • Discussion in Living with an undiagnosed medical problem · 0 replies
  • My name is Heather Long and my son, Cal died at the age of 5 from an as yet undiagnosed disease. While Cal was alive, I found that there was no formal way for doctors to communicate with eachother (i.e ...

Pulmanry Problems ??????CONFUSED!!!!!

Rodeogrl02
  • By Rodeogrl02 · New reply November 11, 2009
  • Journal · 13 replies
  • I told my neurologist whom I see for dysautonomia that I keep getting really short of breath with very little exsertion, just like walking a few feet or up a few stairs, so she ordered a pulmonary function ...

Maintaining the Status Quo

toomanyeos
  • By toomanyeos · Posted November 10, 2009
  • Journal · 0 replies
  • Nothing new to report, really. Still having problems with the edema... still no hope of relieving it... still waiting for the appt at Duke to get over with so we can move on to something that actually ...

Week 2 of diarrhea!!!

Rodeogrl02
  • By Rodeogrl02 · New reply November 9, 2009
  • Journal · 15 replies
  • So I've had my J-tube for severe gastroparesis since july 2nd, then 2 weeks ago I started getting severe liquid diarrhea, my gi dr. treated it w/ xifacin as a bacteria overgrowth in my gi tract, it kind ...

need to find a diagnose

Ragna
  • By Ragna · New reply November 8, 2009
  • Discussion in Living with an undiagnosed medical problem · 3 replies
  • im stuck here in my little country with unexpierenced doctors in such a rare disease my 2 yr old doughter,i always thought she had immune problem but never got any prove,what could i do???im so desperate,i ...

unusual swelling of feet and ankles

Jesana
  • By Jesana · New reply November 8, 2009
  • Discussion in Symptoms · 1 reply
  • helo It is very hot where I live and 100' today I am having swelling of both ankles and feet it started yesterday in the evening and went away in night time . Today it began in the morning . it doesn't ...

depression

terrific_kat

"HYPOKALEMIA OR LOW POTASSIUM"

mandyblue
  • By mandyblue · New reply November 8, 2009
  • Journal · 32 replies
  • I want to share this research information in "My Journal". This is a very long collection of articles, that explains in great detail, about Hypokalemia or Low Potassium. It is for anyone who needs help ...

The Healthiest Sick person I know

Nihao
  • By Nihao · New reply November 6, 2009
  • Journal · 2 replies
  • I not only look healthy, but appear that way on paper, too. I have perfect cholesterol, blood pressure, blood sugar, weight etc... Majority of my symptoms are neurological... all of my MRI tests, CT scans ...

Symptoms of my undiagnosed medical problem...

lv2ski
  • By lv2ski · New reply November 5, 2009
  • Discussion in Symptoms · 15 replies
  • Below is a list of my symptoms that I have had for just over a year... - Numbness both feet, ankles, calves & thighs (mainly right side). -Stiffness in back of calves & thighs, especially behind kneecaps ...

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