Radioactive iodine

Information and support regarding use of radioactive iodine (RAI) for testing or treatment of papillary or follicular thyroid cancer or variants. Includes situations where the thyroid cancer is RAI non-avid/refractory, meaning that the thyroid cancer cells no longer absorb RAI.


Bone scan after RAI??

  • By Psalm023 · New reply yesterday at 8:45 pm
  • 3 replies
  • I had RAI (3700 MBq of 1311) on May 13 and had body scan on May 21. I saw my specialist yesterday, May 28. Body scant report indicates two faint focal areas activity are seen in abdomen and pelvis. She ...

Rai or not???

  • By Juju4buddha · New reply yesterday at 2:49 pm
  • 1 reply
  • Hi! I have minimal invasive hurtle cell carcinoma with 2 foci spread to thyroid tissue and one small blood vessel.. All still contained in the thyroid.. My tumor is 1.2 cm . I had a TT done in April ...

Help with Decision of Radioactive Iodine Treatment

  • By Kaebea · New reply yesterday at 1:11 pm
  • 21 replies
  • Help with Decision of Radioactive Iodine Treatment. I am undecided as to whether or not to take the RAI treatments for thyroid cancer. I would appreciate feedback from anyone who received the treatment ...

Rai help

  • By Juju4buddha · New reply May 28, 2015
  • 8 replies
  • Hi everyone! I am tryin to look for a radiation oncologist for my RAI Treatment.. Unfortunately, none of the them on my plan does nuclear medicine( RAI Treatmwnt?) this is all new to me.. What should ...

RAI Bloodwork Question

  • By glope37 · New reply May 28, 2015
  • 6 replies
  • Hello everyone! So right now I'm in the middle of my LID and prepping for my RAI treatment next week and have a question. I'm taking my dosage of I-131 on Wednesday and then my doctor instructed me to ...

Glaucoma after RAI

  • By notyroid · New reply May 27, 2015
  • 7 replies
  • Hello to all! I am trying to find out if any one here has developed Glaucoma after having RAI? I had an appointment to day for a regular eye exam. My eye pressure was above 30!!! I was told there is an ...

anyone told no rai treatment due to early discovery of cancer.

  • By emilybashus · New reply May 27, 2015
  • 25 replies
  • I had the second lobe, the left side out , and I didn't have cancer but they found cancer earlier, microscopic, on the when that was removed previously. Has anyone not had to have radioactive ...

Nose Bleeds

  • By irgrnma · New reply May 25, 2015
  • 3 replies
  • I had RAI on 5/13/15 and experienced 3 nose bleeds on the 21st, and today another heavy nose bleed after sneezing. Is this normal?? I haven't read about anyone else having this issue ...

RAI questions

  • By AKHitt · New reply May 25, 2015
  • 11 replies
  • I had my visit at MD Anderson to talk about and schedule my RAI. I was abhorred that the PA who is the designated patient educator knew very little about RAI and even the LID. She didn't even know that ...

Having Scan Done

  • By iluvjeramie1 · New reply May 25, 2015
  • 8 replies
  • Hello everyone, I found this site after researching about my thyroid. I had a sonogram done and now they would like me to go have a radioactive iodine scan done. Does this mean there looking for cancer ...

5 mCi of I-131 for Thyroid Scan. How long do I stay away?

  • By HeyKay1025 · New reply May 23, 2015
  • 3 replies
  • Hello All!! On Wed 05/20 (@ 11am) I took a 5 mCi capsule of I-131 (Radioactive Iodide) for my regular one year Thyroid Scan. This isn't my first rodeo as this is my 5th time having this scan. However ...

half lifeof Thyrogen

  • By Christian11 · New reply May 21, 2015
  • 9 replies · Photos
  • I had 2 Thyrogen injections last week. One on Monday, May 11th & another injection on Tuesday, May 12th. How long does this drug stay in our body? What is the half life? I am feeling really bad. Unable ...

Birth control pills/oral contraception before RAI

  • By inspirednurse · New reply May 21, 2015
  • 2 replies
  • Hi everyone! Regarding RadioIodine (regardless of whether it is the first large dose that requires isolation or the second dose for the whole body scan), I was told by my doctor that I must stop my Levothyroxine ...

S/P TT and WBS

  • By cindyrn77 · New reply May 20, 2015
  • 2 replies
  • I had a TT on January 22nd for papilary with follicular variant and microcarcinoma..I did the thyrogen and diagnostic testing last week and I was told today that there is some residual tissue/tumor left ...

I'm in Sunnyvale, California; Anyone nearby who can lend me a Geiger coun

  • By lauraboo6 · Posted May 20, 2015
  • 0 replies
  • Hi, My son will be starting RAI in June and I wanted to ask if anyone has a Geiger counter that I can borrow? Or, if not, can you please help me find one to borrow or buy (not too expensive)? Thanks ...

"Safe" levels of radioactivity

  • By RebelB · Posted May 18, 2015
  • 0 replies
  • So I just called my doctors office and they agreed to do a Geiger counter reading on me when I go in for my scans on Wednesday. (I had 100 RAI last Wednesday). What level would you consider safe? When ...


  • By gmazzeo · New reply May 18, 2015
  • 6 replies
  • I had my RAI 100MCI on Wednesday. They to me to stay in my room which has an attached bathroom for 3 days. I have decided to stay in here until Sunday. I have an 11 year old son who is moderately Autistic ...

Isolation Just curious

  • By Vanessa1231 · New reply May 18, 2015
  • 41 replies
  • Had 100 RAI on Wednesday, on day 5 of isolation. looking forward to freedom on Tuesday. Just curious how long were your isolation periods ...

RAI. Hospital or home

  • By AKHitt · New reply May 18, 2015
  • 12 replies
  • I just found out that the cancer had spread to surrounding tissue and lymph nodes and that I will have to do RAI. I have an appointment next week to talk about and schedule the RAI, but I'm not that patient ...

NO low-iodine diet before RAI treatment

  • By RebelB · New reply May 16, 2015
  • 13 replies
  • I'm scheduled to have RAI treatment in 2 days. My doctor said a low iodine diet wouldn't matter & I trusted that. Now I'm out doing internet reading and everyone seems to say I should have done this for ...

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