Pediatric thyroid cancer

Information and support for families and caregivers of children with thyroid cancer.


thanks for the backpack...daughter received hers yesterday

  • By tam2kids · New reply April 11, 2014
  • 5 replies
  • My daughter received her backpack with all the info for thyroid cancer and the cookbook for the low iodine diet. It is full of great info about Thyroid cancer. Anyone with a child with Thyroid cancer ...

flu like symptoms after TT

  • By tam2kids · New reply April 6, 2014
  • 3 replies
  • Daughter's surgery was thursday. Flu like symptoms the past 2 days. Was feeling ok after post op, but now not so good. Any advice ...

advice on how not to worry

  • By tam2kids · New reply April 1, 2014
  • 6 replies
  • My daughter's surgery is in a few days and I am a worry wart!! I am trying to stay positive but that worrying side of me keeps coming up. How do you get through the surgery without thinking the worst ...

14 year old daughter has thyroid cancer surgery

  • By tam2kids · New reply March 14, 2014
  • 17 replies
  • HI, My daughter was diagnosed with thyroid cancer and hashimoto in Jan 2014. She has her surgery April 3. I am of course kinda freaking out, who doesn't when their child has to have surgery. She seems ...

Any Suggestions

  • By Bellsmom · New reply January 31, 2014
  • 8 replies
  • Hi, My 14 year old was just Dx (98% certain) with Thyroid cancer. Although we are holding out for that 2% chance she does not have cancer I am trying to prepare for the possibility. Our journey started ...

Daughter recently diagnosed

  • By AmieErnst · New reply January 17, 2014
  • 12 replies
  • Hello, My daughter is 13, and we found out the day after Christmas she had 2 masses on and behind her thyroid, and a biopsy last Tuesday, and then a total removal of her thyroid, 2 para thyroids and a ...

Article/pediatric thyroid cancer

  • By Euphemia · Posted January 13, 2014
  • 0 replies
  • Here's an article that may be of interest because it sounds as though this girl had half her thyroid out and no RAI. an-local-news/ci_24832958/brittany-robin son-overcomes-cancer-diagnosis-return-co ...

Pediatric ENT at Riley Childrens Hospital

  • By Kartmom · Posted December 12, 2013
  • 0 replies
  • My 11 year old son has had 2 thyroid ultrasounds in the last 2 months. They show a heterogenous area and a cyst. His pediatrician is now going to refer him to a pediatric ENT at Riley childrens hospital ...

Quick update on my daughter

  • By mommawools · New reply November 28, 2013
  • 2 replies
  • Happy Thanksgiving Eve. I have been busy preparing my daughter's LID Thanksgiving meal for tomorrow. I can honestly say I really didn't think she would have the energy to join the family at our gathering ...

What to expect on LID

  • By mommawools · New reply November 13, 2013
  • 6 replies
  • Hi there. I am new to the board and am finding a wealth of knowledge and getting a lot of answers to my questions. My daughter (who is 12) was diagnosed with Papillary Thyroid Cancer on 9/11/13 after ...

Pediatric Tall Cell Variant

  • By bw77 · New reply October 28, 2013
  • 2 replies
  • My 13 year old daughter has Papillary Carcinoma, with at least 50% Tall cell Variant. Multiple lymph nodes are involved with tumor. All are Tall Cell Variant pattern. Looking for similar cases in our ...

Help RAI

  • By Twinsmom6 · New reply October 21, 2013
  • 14 replies
  • MY son is going to do RAI and the drive home from the hospital is a good 40 mins. How do I protect my car from radiation. I have other little children as well so I cant afford to not have a vehicle. LOL ...

Questions on RAI and Children

  • By Twinsmom6 · New reply October 21, 2013
  • 4 replies
  • Hello, I was just wondering if there has been any studies done on the effectiveness of RAI on Pediatric patients. There are so many conflicting issues with as adults and I wondered is there as much discussion ...


  • By bw77 · New reply October 15, 2013
  • 13 replies
  • My 13 year old as pT2N1b Tall cell variant Papillary Cancer. She is status/post Thyroidectomy and lymph node dissection. 7/9 lymph nodes positive, tumor size 3 cm. Molecular studies BRAF 600 mutation ...

Medic alert bracelets

  • By sln70 · New reply September 12, 2013
  • 7 replies
  • My son had his thyroid removed and RAI a month later to treat papillary thyroid cancer. I need to order a medic alert bracelet for him for some other conditions and I'm wondering if I should add hypothyroidism ...

Any input would be greatly appreciated

  • By tiskelnm1 · New reply September 2, 2013
  • 8 replies
  • My 10 year old grandaughter was just diagnosed with follicular thyroid cancer. She has not had any tests yet to see if it has spread. her thyroid and a 4cm mass were removed in 2 parts the last two mondays ...

17 year old flying back to Texas for post 2nd surgery. Check up

  • By Roxannesmom · New reply June 6, 2013
  • 8 replies
  • Hello all. We are flying back to MD Andersen this Saturday for a check up. She had non avid ptc with 0 thyroglobulin. Had Tt and then a 2nd surgery for what was missed the first time. I just want to know ...


  • By goliath30 · New reply June 2, 2013
  • 24 replies
  • My daughter had a TT in December 2012, at ten years old. She had an extremely large goiter (3x normal) and PTC. Following surgery, her calcium level went very low. She stayed in the hospital for two days ...

Support group suggestions for recently diagnosed teen

  • By Letty1973 · New reply April 4, 2013
  • 10 replies
  • Hi group, its been a while... Mi niece is 13 and was just diagnosed yesterday with hypothyroidism. My brother, my sister in law and she are in the process of taking in the diagnosis, and she's completely ...

tall cell - second opinion, please help

  • By sweet11 · New reply March 21, 2013
  • 15 replies
  • hello, i am the father of my sweet 11 years old girl. she got her thyroid removed dec 2012 totally and she did RAI treatment on jan 2013 . i used to smile even when i found out my daughter had thyroid ...

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