Medullary thyroid cancer

Information and support related to medullary thyroid cancer.

Discussions

A New Book On MTC

Macbythesea
  • By Macbythesea · Posted May 11, 2013
  • 0 replies
  • "The Dogs of Cancer" by William Kenly is a book of hope, humor and holistic healing. A month after release, it was in the Top 25 Amazon books about cancer. It is a book about all cancers as well as being ...

Graves disease and Medullary Thyroid Cancer

butter999
  • By butter999 · New reply April 5, 2013
  • 4 replies
  • Has anyone had Graves disease which turned into medullary thyroid cancer. Before final diagnosis my palms turned red and I had a severe red rash on legs. Until then was feeling well and busy as a wife ...

JUST WANTED TO SAY THANKS

Leanne24
  • By Leanne24 · New reply April 2, 2013
  • 2 replies
  • After first posting a discussion here to see if anyone would be interested; our first meeting of the Thyroid Cancer Support Group ACT Australia will meet this coming weekend. I have had great support ...

Sandostatin

loden
  • By loden · New reply March 28, 2013
  • 4 replies
  • Has anyone experience using Sandostatin for control of diarrhea. My calcitonin is 15000 doubling in 3 months. liver is a mass of rumors and failing. Many thanks for any comments ...

endrocrinologists responsibility

butter999
  • By butter999 · New reply February 19, 2013
  • 18 replies
  • Having been diagnosed with stage 4c medullary thyroid cancer after seeing an endrocinologist for 23 years,I was wondering if an endrocinologist has any responsibility for doing blood work.-an ex ray or ...

Newly diagnosed/recommendations

Wetworks
  • By Wetworks · New reply February 14, 2013
  • 11 replies
  • Hi, I'm newly diagnosed with MTC and wanted to get some information on what I can expect, stumbled across this community so here I am! I am presently diagnosed with a ~1.5cm nodule that was found incidental ...

For some reason it's comforting to find people in your same boat.

mtcwife
  • By mtcwife · New reply February 7, 2013
  • 14 replies
  • My husband was diagnosed with MTC in October/November of 2010. He has had an incredible journey and I really think finding people to identify with will help him cope. He has had TT, central, left and ...

metastatic medullary thyroid cancer

vrikh
  • By vrikh · New reply January 14, 2013
  • 11 replies
  • Hello, My mother has metastatic medullary thyroid cancer. She has tried Caprelsa, which did not work at all. In the past few month cancer seem to progress extremely aggressively. Now her oncologist has ...

In dire need of peace of mind

goobdude
  • By goobdude · New reply January 8, 2013
  • 15 replies
  • I'm from the great state of Michigan, that unfortunately doesn't seem to have any MTC experts. So, I put alot of faith in doctors that are familiar with MTC but aren't experts. My question is anybody ...

Survivor looking to raise awareness

jericaxox
  • By jericaxox · Posted December 19, 2012
  • 0 replies
  • I am a blogger, and also a Papillary Thyroid Cancer and I am starting a new weekly feature to raise awareness for ALL thyroid cancers, and thyroid problems. There is unfortunately just not enough information ...

Father just diagnosed after my thyca 3 years ago

veronica2012
  • By veronica2012 · New reply December 15, 2012
  • 1 reply
  • Good morning, It is the first time I write in this topic. For the time being I have been a member in the Papillary Thyca. I was diagnosed with Pa. Ca 3 years ago and I am doing fine. Just yesterday my ...

vandetanib

SueinBrentwoodTN
  • By SueinBrentwoodTN · New reply November 26, 2012
  • 8 replies
  • i have radiation scheduled this tuesday on a tumor on the L3 with three other tumors located on my illiac and a few on my femor. My Dr is suggestioning that I consider Vandetanib. I've only read negative ...

New to this...need help understanding?

Hope2727
  • By Hope2727 · New reply November 7, 2012
  • 4 replies
  • My mom has had metastatic colon cancer for 7 years now. Her health has taken a turn for the worse this year. To complicate things further, what we thought was a goiter, could be something else. Her TSH ...

Hurthle Cell Thyroid Cancer

sanral
  • By sanral · New reply October 27, 2012
  • 22 replies
  • i have hurthle cell thyroid cancer, which metastasized to my vocal nerve which has prevented me from talking properly, as well as the cancer metastasized into my vascular system. i have not read anything ...

Protonix can cause elevated serum Calcitonin?

tcandkk
  • By tcandkk · New reply October 6, 2012
  • 3 replies
  • Has anyone heard this??? My son has a very small nodule, 3.4x3.5x3.9mm calcatonin level 18. Just told today that Protonix can cause a false pos elevated serum Calcitonin?? FNA Scant follicular epithelium ...

Just got my diagnosis today.

beth-28
  • By beth-28 · New reply September 20, 2012
  • 16 replies
  • My ENT removed the left half of my thyroid on the 9th because i had nodules and the tests were inconclusive. The path report says: Diagnosis: Left Lobe Thyroidectomy 1. Tumor Type: Medullary Carcinoma ...

DNA results back - yay

Yggdrasil
  • By Yggdrasil · New reply September 11, 2012
  • 5 replies
  • I put yay in the title, but I just feel a bit weird, sort of empty weird. My lovely Consultant who I am not due to see until November for my next Calcitonin, emailed me to tell me the DNA RET gene resutls ...

New drug update: cabozantinib

CherryW
  • By CherryW · Posted August 30, 2012
  • 0 replies
  • The FDA is maintaining its November 29 action date for deciding whether to approve cabozantinib, a potential treatment for medullary thyroid cancer (MTC), and also decided not to have the drug on its ...

Got my CT and labs today

beth-28
  • By beth-28 · New reply August 25, 2012
  • 3 replies
  • I'll just post the impressions, as the whole thing is 2 pages long. After the impressions, I'll post my lab results. Impression CT Neck: 1. Post-surgical changes of left thyroidectomy and removal of the ...

Since diagnosis, have you changed your eating habits?

Fritters952
  • By Fritters952 · New reply August 19, 2012
  • 10 replies
  • Hello everyone, Since diagnosis, I have been seeing a naturopath and am following a certain 'diet'. All the common foods that are said to be anti-cancer, some herbal teas, liver detox protocol and supplements ...

Things you can do

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