Long-term survivors

Connect with other survivors who are past the initial years of treatment and follow-up.


ingredents in Tirosint

  • By luckynoah · New reply 1:00 pm
  • 35 replies
  • Friends, I have been taking Tirosint for several months because it was supposedly the most pure thyroid medication with very little added ingredients (levothyroxine in animal-based gelatin). After having ...

Thank you!

  • By dulchenea · New reply April 21, 2014
  • 14 replies
  • I am brand new to this forum. I'm only two months past my TT and Neck Dissection; just past radioactive pill and about to start direct radiation soon. I hope very much to join the ranks of the long-term ...


  • By ack1953 · New reply April 21, 2014
  • 8 replies
  • Can thyroid sonogram tell if the thyroid cancer has spread - how accurate are they for predicting advanced cancer or malignancy ...


  • By ack1953 · New reply April 20, 2014
  • 5 replies
  • I had a nodule found during carotid artery test - what freaked me out is the nurse practioner who gave me preliminary results said the technician was very concerned about nodule - had lots of blood and ...

Tirosint includes beef, pork, no MSG

  • By luckynoah · New reply April 15, 2014
  • 33 replies
  • I have been on Tirosint for 4 months for hypothyroid. My stats have been very good as a result, however, I had no issues with constipation before use of the product. I began to experience some constipation ...

Sick all the time

  • By luvmyboys2011 · New reply April 13, 2014
  • 9 replies
  • Hi Everyone, I don't know if I qualify as a long term survivor yet, I'm 2 years post TT. My question is am I the only one who is almost constantly sick with a cold or other minor malady. I guess i had ...

Levoxyl or Synthroid? Anyone tried both?

  • By lisacarole · New reply April 11, 2014
  • 7 replies
  • This past year has been terrible since the Levoxyl recall-I've tried a lot of things that made my life a nightmare. I couldn't wait for levoxyl to come back. Just went to the doctor and I needed a dose ...

Do I need an endo?

  • By uandme · New reply April 9, 2014
  • 3 replies
  • I had a TT in 2007 and a recurrence in 2010. I guess you can say everything is going fine. When other medical or emotional things arise I always wonder if they are related to this thyroid "stuff", especially ...

Regarding labs and taking your levothyroxine pill-when do you take it?

  • By lisacarole · New reply April 8, 2014
  • 6 replies
  • For years I have taken my levo in the morning and, since I like AM app'ts, always have my blood drawn probably 2-3 hours after I've taken my pill. Last time I happened to go in the afternoon and then ...

"Stop the Thyroid Madness" survey results

  • By mazbarth · New reply April 6, 2014
  • 2 replies
  • Here is a new survey that just came out from the "Stop the Thyroid Madness" web site. It shows some interesting results about what some of us think of the treatment we receive from our doctors! http://www.stopthethyroidmadness.com/sur ...

29 years and still a Thyca...

  • By BethAnnSpokane · New reply April 4, 2014
  • 14 replies
  • When I was 26 years old I wad diagnosed with Papillary Thyroid cancer. I am now 55 and I still have a small (3.4- 3.7) thyroglobulin blood level . It's been 29 years! At 26 I had a thyroidectomy and I ...

TT and parathyroid removal

  • By kateecc · New reply April 1, 2014
  • 33 replies
  • My surgeon wants to remove my thyroid and all four parathyroid glands, the way he told me it was not an option. He said he did not want to dissect the thyroid, as it would be better to remove it completely ...

T3 (conventional medicine vs. alternative)

  • By HisservantLorraine · New reply March 31, 2014
  • 15 replies
  • I am feeling very anxious and frustrated, as I get different information from different physicians -- all of which I respect; but I am totally confused. My two Alternative MDs (one male and one female ...

rapid pulse

  • By jocurt · New reply March 30, 2014
  • 8 replies
  • My thyroid medication levothyroxine was lowered to 112 because I was having elevated blood pressure. It is two months since and my blood pressure has been good. The other night though I was eating some ...

never recurrence

  • By kuaile · New reply March 27, 2014
  • 13 replies
  • are there any one never recurrent during 20 years, or 30 years I read reports indicating there above 70% never recurrent. but i see a lot of recurrence in our fourm, I want to know some people never recurrent ...

a letter to endocrinologists

  • By annakathryn · New reply March 27, 2014
  • 51 replies
  • For a long time I've been appalled at the lack of support and information I and so many of our friends on Inspire have received from their endocrinologists while battling thyroid cancer. I decided today ...

Bone density test

  • By juantina2b · New reply March 24, 2014
  • 6 replies
  • Due to the severe joint pain they have scheduled me a bone density test... I'm not sure what the outcome gonna be since I've been suffering from severe hypocalcemia for last three years ...

TSH Normal, still feeling terrible

  • By RayTay · New reply March 14, 2014
  • 22 replies
  • I am 4months post total thyroidectomy. For the first time, my TSH was 0.99 which I was told is normal. However, I still feel terrible: fatigue, short term memory deficits, tearful, etc. Has anyone else ...


  • By swilch · New reply March 13, 2014
  • 1 reply
  • Posted this under papillary carcinoma, but probably more appropriate here: Hi all, My first post. Glad to be here and find some folks who share the journey, even if we are all at different stages. Just ...

Impact on working life - High school teacher

  • By jennymarie30 · New reply March 13, 2014
  • 7 replies
  • I guess I can regard myself as a long-term survivor - my TT for papillary cancer was at the end of 2007. I bounced back pretty well and threw myself back into my work (high school teacher) once my RAI ...

Things you can do

Support ThyCa

Help ThyCa: Thyroid Cancer Survivors' Association reach its goals and support people like yourself by making a donation today.

Donate to  ThyCa: Thyroid Cancer Survivors' Association

Discussion topics

Help and information from ThyCa

Community leaders