Long-term survivors
Connect with other survivors who are past the initial years of treatment and follow-up.
Discussions
Allergic to All Thyroid Meds After Levoxyl Recall
- By MattinNH · New reply 7:26 pm
- 41 replies
- Hi, I am a thyroid cancer survivor (Hurthle Cell). I had a total thyroidectomy in 2002 and have been dependent on thyroid hormone replacement meds since. I have taken Levoxyl since the surgery. After ...
Anyone happy on T4 alone? What does T3 do?
- By lisacarole · New reply 12:11 pm
- 1 reply
- Is anyone happy on T4 alone-no weight gain, not depressed, not sweating/not freezing, no pain issues etc? What are your levels and what med are you taking? I've been on Levoxyl for 19 years, gained 80 ...
Doctor prescribed twice what I should be on-what should I do?
- By lisacarole · New reply yesterday at 3:34 am
- 3 replies
- I've been on Levoxyl (137mcg) for 19 years-I'm alive but have a pretty poor quality of life-always at another doctor for some issue-ususally pain. Anyway, Levoxyl was recalled-now was my chance to ask/beg ...
Levoxyl to Synthroid ?
- By wjg22 · New reply May 20, 2013
- 9 replies
- Well have see a lot of this going on ? Any Good reports out there ? from levoxyl to synthroid ? I went to Levoxyl years ago from synthroid, Just trying to feel better, but I can't remember what if any ...
Slow release T3 vs. Cytomel
- By 13yearsandcounting · New reply May 17, 2013
- 1 reply
- Does anyone here have better luck with a compounded slow release T3 instead of Cytomel? Was it "gentler" and not hit as hard? Was the dosing similar or did you find you need more slow release? Any information ...
HYPOPARATHYROID annual meeting
- By mazbarth · New reply May 17, 2013
- 5 replies
- There is still time to register for the 7th International Hypoparathyroidism Patient Conference? Wondering if it’s worth it? Check out our youtube video and see what others have to say - http://www.youtube.com/watch?v=x8kuQo06F ...
Are you a Hypo-Parathyroid patient in California?
- By mazbarth · New reply May 16, 2013
- 5 replies
- Are you being treated for HYPO-PARATHYROIDISM (i.e. long-term calcium issues, usually after thyroid surgery), living in the Bay Area, Northern or Central California? We are compiling a list of ANY doctors ...
Anyone else getting colds and infections a lot after surgery
- By dearmama · New reply May 15, 2013
- 18 replies
- Ever since my thyroid was removed along with the cancer on it I keep getting upper respiratory infections and colds. I had the surgery in august and I have had 7 colds, ear infections and sinus problems ...
How Many Thyroid Operations ?
- By wjg22 · New reply May 9, 2013
- 2 replies
- Well ! I know Most of us have gone through the TT But what I'm wondering is " How many times have people out their had Thyroid cancer operations ? and how did the turn out. Things get better or worse ...
Life after a full thyroidectomy
- By Mhoholuk · New reply May 8, 2013
- 23 replies
- I was diagnosed with Th Ca in May of 2011. I had a full thyroidectomy and have had great results. All my bloodwork is normal. I am now struggling with some symptoms that have become unbearable such as ...
Leg pain
- By sfdeb · New reply May 6, 2013
- 11 replies
- Hello All! I am almost 2 years out from my TT, and overall doing well, but I have been experiencing pretty serious leg pains. I know I've seen others talk about this on this site, but can't locate anything ...
Panic help!
- By cheesyme · New reply May 5, 2013
- 10 replies
- I have had cancer levels at zero for a year and a half after TT and rai of 150... My body scan after was clear too. My question (and venting) to the group is if anyone still feels panicked? Does it ever ...
Looking for help -- quality of life
- By AB1 · New reply May 4, 2013
- 8 replies
- Hello, I'm hoping some of you may be able to advise or help educate me. I'm struggling with anxiety, depression and pain. A15 yr survivor of papillary thyroid cancer I was treated with RAI in Canada in ...
Fine needle aspiration
- By run_26miles · New reply May 4, 2013
- 16 replies
- I was diagnosed in may 2006, had nodes removed, then the thyroid removed. Recurrent in 2/2007. 2 RAI treatments, thyrogen injections, ultrasounds and scans yearly. So basically I've been thru the ringer ...
Who has been without a thyroid over 10 years?
- By 46withoutathyroid (Inactive) · New reply May 3, 2013
- 23 replies
- I have been without a thyroid since 2000 due to palilary thyroid cancer.Who else has been without a thyroid over 10 years and how are you doing ...
A (video) case for using Natural Desiccated Thyroid
- By mazbarth · New reply April 30, 2013
- 9 replies
- Just saw this easy to understand video re: value of using natural desiccated thyroid (i.e. Armour, etc) & on the value of combination of T4 with T3. http://www.youtube.com/watch?feature=pla yer_embedded&v=RXnE7tTc9vY ...
Cytomel joint pain
- By 13yearsandcounting · New reply April 30, 2013
- 2 replies
- Ok, so I've been on 5mcg of cytomel along with 137 mcg of Synthroid for a few weeks. The brain fog is gone and I feel happier (hard to explain). However, the frustrating part is that I have side effects ...
Levoxyl running out
- By caseykrz · New reply April 28, 2013
- 6 replies
- I have been on Levoxyl now for 12 yrs.,and just got the last weeks worth that my pharmacy had in stock. My endo is calling in a prescription for synthroid , was wondering if anyone has had reactions to ...
Dr. Only Tested for Anti- Thyroglobulin Anti-bodies
- By sprintinggirl · New reply April 28, 2013
- 4 replies
- I'm five years out from TT after papillary diagnosis. This year my endo only tested me for TgAB. She didn't even request an actual Tg test. Is this something new I don't know about? Also I think this ...
cancer survivor
- By melis3471 · Posted April 26, 2013
- 0 replies
- butterfly bandits in the Pittsburgh area is putting together a fund raiser for thyroid cancer..if u are a survivor and lives in the Pittsburgh area...pleae let me know how to contact u ...
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Discussion topics
- Papillary and follicular thyroid cancer (differentiated)
- Medullary thyroid cancer
- Multiple endocrine neoplasia type 2 (MEN2)
- Anaplastic thyroid cancer
- Pediatric thyroid cancer
- Using targeted therapies
- Low iodine diet
- Childbearing and thyroid cancer
- Long-term survivors
- Mental challenges of living with thyroid cancer
- Young adults and thyroid cancer
- Family members and caregivers
- In memoriam: Love, loss, and legacy
- ThyCa fundraising and thyroid cancer research grants
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