Family members and caregivers

Family members and caregivers need support too. Connect with others who know what it's like here.

Discussions

Worried about my mom

sherryc66
  • By sherryc66 · New reply April 16, 2014
  • 3 replies
  • My mom is 67 and lives 1100 miles from me. She has a nodule on her left side of thyroid that is covered with calcification and the right side is enlarged. She had a FNA and they could get 10 cells from ...

Dont know if this is where I need to be ....

usimomma
  • By usimomma · New reply March 16, 2014
  • 14 replies
  • Good morning , I am new to this and really don't know if this site is where I need to be but I will start here . In 2002 I was diagnosed with a thyroid disease . Until this past month I have been able ...

thyrogen side effect help

TeresaH
  • By TeresaH · New reply March 8, 2014
  • 3 replies
  • My husband is 1 year out from thyroidectomy and got Thyrogen injections this week and is very sick. Flu like symptoms, constant vomiting. Chills, sweating. Is this normal? Don't know if I should take ...

Kaiser referral to MD Anderson

PuriJyoti
  • By PuriJyoti · New reply March 4, 2014
  • 1 reply
  • Does anyone has idea if MD Anderson accepts Kaiser Insurance ...

FINALLY

Hannahdneaaa
  • By Hannahdneaaa · New reply February 20, 2014
  • 9 replies
  • My mom finally got a second opinion from MD ANDERSON and it is mind boggling the information that our doctor told us! Very different from what the other doctor were saying. She may not even need the RAI ...

Assistant for treatment

alrowe1968
  • By alrowe1968 · New reply February 2, 2014
  • 3 replies
  • I had my thyroid removed 8/2012. Now, I have to go through 33 treatments of radiation since my cells will not take up the iodine and will have to travel 120 miles daily. Does anyone know of gas assistance ...

Parathyroid implant surgery in arm

happydaysrhere
  • By happydaysrhere · New reply January 31, 2014
  • 3 replies
  • Friend had hypothyroidism, surgery botched and parathyroid also gone, suffering with countlessnissues, could die. Needs a parathyroid implant in arm, who is best, even internationally at doing this? And ...

endocrinologists in Charleston, WV

lovarev
  • By lovarev · New reply January 26, 2014
  • 1 reply
  • It is not known yet if my aunt has thyroid cancer, but, she does have thyroid issues and is post-bypass surgery at the moment....are there any great endocrinologists in the Charleston WV area that you ...

Thyroid Cancer Specialist in New York

DonaldPC
  • By DonaldPC · New reply December 24, 2013
  • 19 replies
  • Hi Everyone, My Nephew was recently diagnosed with Thyroid Cancer and i'm looking for info on what Doctors people have used in the New York Area and why you used them. It seems from my research of Endocrinologist ...

Depression in Connecticut

bluefiregreen
  • By bluefiregreen · New reply December 22, 2013
  • 1 reply
  • Hi there. I'm in need of help for a friend. My best friend is struggling with depression and (I suspect) and eating disorder. She lives in Connecticut. She was here to support me though my recent treatment ...

Nexavar

Danielsnonni
  • By Danielsnonni · New reply December 21, 2013
  • 4 replies
  • Looking to connect with anyone that has metastatic PTC with lung nodules currently being treated with Nexavar. My husband is in the wait and see stage and considering Nexavar but would like to talk to ...

Castle -- a rare form of TC

Sanfranmel
  • By Sanfranmel · New reply December 2, 2013
  • 3 replies
  • Hello Team My wife Mary, who is 60 years old, was diagnosed with a very rare form of TC called Castle. In August 2013, she had TT surgery. Then came six weeks of external radiation with two chemo (carboplatin ...

Cleaning up after RAI

xpat_mom
  • By xpat_mom · New reply December 2, 2013
  • 3 replies
  • Hi! Just finished my RAI 3 day isolation. I stayed in my son's room as it is much smaller than mine and easier to clean : ) I have cleaned the bathroom, dusted, vacuumed and wiped down every conceivable ...

Helping us be informed

nuttyBuddy
  • By nuttyBuddy · New reply November 17, 2013
  • 2 replies
  • As a computer scientist I have watched with hope, anticipation, but also some trepidation the re-deployment of the Watson technology, which won the Jeopardy Challenge, to medicine. The benefits of this ...

endos in WV, KY, OH area

lovarev
  • By lovarev · New reply November 10, 2013
  • 4 replies
  • I am looking for a good endocrinologist near the vicinity of Huntington, WV for my aunt. She does not yet have a diagnosis and it may not be cancer, but there are thyroid issues to resolve. I live quite ...

Urging the Family to GET CHECKED!

clever52
  • By clever52 · New reply October 17, 2013
  • 18 replies
  • After having my thyroid removed, I have encouraged my children to get a full thyroid panel. I especially worry about my youngest child who was diagnosed with depression but has all the same symptoms I ...

Low dose of RAI?

curacautin
  • By curacautin · New reply October 7, 2013
  • 2 replies
  • I found tremendous support from the ThyCa community from the moment that my husband was diagnosed. Here is the story.....he was diagnosed last December 20. Surgery was Feb. 20 with a rather large nodule ...

HUGE thanks to thyca support friends

smartemom
  • By smartemom · Posted September 11, 2013
  • 0 replies
  • My family is large, with many thyroid problems. One of my 5 sisters takes a T3T4 combo, and suddenly developed intense jaw tightness, sore shoulder, and wrist. She had been stable on her meds for a while ...

Becoming a cash cow for endocrinologists

Overlyaverage (Inactive)
  • By Overlyaverage (Inactive) · New reply September 7, 2013
  • 4 replies
  • My daughter who is 42 was diagnosed with thyroid cancer 6 years ago. The diagnosis was accidental in that while seeing her doctor for another reason he thought she might have a thyroid cancer. She was ...

THYROID PROBLEMS NEED TO COME OUT OF THE CLOSET

butter999
  • By butter999 · Posted July 23, 2013
  • 0 replies
  • HOW CAN WE MAKE THYROID PROPER DIAGNOSIS BECOME A KNOWN TO ALL BEFORE WE BECOME AWARE AFTER THE FACT THAT DISASTER LOOMS. THIS CLOSETED SECRET HAS HIDDEN FOR MORE THAN 100 YEARS. IT IS VITAL THAT A PROPER ...

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