Why am I not happy that WBS clear?

I had 150mCi RAI on Nov 6th and had my WBS on Nov. 14. Immediately after the scan my husband and i went to see the radiation oncologist. He said there was good uptake and all involvement was in the neck area. He said i am "cancer free". That should be GREAT news, however, i am still a bit scared. I had my TT on August 28th for papillary cancer. 11 out of 20 lymph nodes were positive. I guess I am asking if the RAI killed ALL thyroid cells, how can it come back? I see so many people with reoccurrences and was wondering if there was a lot of lymph node involvement in the beginning. I am so thrilled that the WBS was clear but my husband told my kids (who are 8 and 11 and are very scared) that i have no more cancer and everything is done. How do I know that for sure???

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You can't know for sure and I find that especially difficult. We have to learn to live with the Sword of Damocles over our heads. I see it as a chronic disease that will probably never kill me, but will also never be cured.

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There are many newer studies being done on tg level and recurrence. The newer tg assays are much more sensitive than in the past. Patients that are "undetectable" at levels <.2, .1 , or even lower and who have a negative neck ultrasound at one year post surgery are thought to have a high probability of "cure." But more long term data needs to be collected. I think that in the fairly near future there will be more reliable information about which thyroid cancers are cured, based on tg measurements and also molecular data.

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Thought I was the only one that felt the same. When I got the call from my endo's office that my WBS was clear, I felt like "meh." To me, the news just means they didn't see anything, not that there isn't anything there. It is a lifetime of watching and waiting.

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Exactly my point Natalie 1166. Thought I was the only one.

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