Hi everyone, just got home from seeing the oncologist. A little background: metastatic pap thyca. TT in 2007, 2 neck dissections, 2 RAI, non-avid. Tg has never gone down below 5, trending up, now 24. I have persistent neck node involvement, lung nodules, and hilar nodes (in chest, outside the lungs) that are PET positive. Instead of a third neck dissection, my surgeon suggested a systemic treatment that may address all fronts. The oncologist I saw today suggests starting me on Sorafenib (Nexavar), but he said he would monitor my progress with chest ex-rays and Tg only. He thinks PET scans deliver too much radiation for someone who's already had a lot.
If you are on Sorafenib or any other oral chemo for lung nodules, how are you monitored? Any opinion on the subject of PET scans and radiation exposure?