My husband is now in the hospital. He was admitted Monday because his lymph nodes on his neck swell up so much, they are worried they are cut of air supply.
I just got off the phone with our oncologist and he said he got the results back from the WBS they did last Friday - and that it did not light up as much as they should have, which makes him think it's not papillay after all. It's not reacting the way it should. My husband has lung nodules but they did a lung biopsy and the results said it's papillary. So I am very very confused. I asked the onco weeks ago if it's lung cancer and he said no, 100% not. So now I wonder... could they have made a mistake? I am frightened.
They are doing a biopsy on the swollen lymphnodes (they are referring to them as mass/tumor...) today but won't have results until probably Friday. We were hoping for papillary ThyCa, it being so easy to treat. Now it doesn't look like it's papillary after all. Again, I am freaking out.
We won't be doing a I-131 therapy after all, they might have to do a different approach. I feel like we're back to square one, not sure what we're dealing with.
On the other hand... I've lost so many tears over this and with a newborn and a 2 year old for months now we're trying to figure out what's going on exactly. Whatever it is... we will deal with it. We will either fight it, live with it, or make the best of what we can. I don't want my children to grow up without their dad, I am hoping that we have many many more years together and happy times. Time is so precious and it is not worth it being miserable all the time... worrying.
Edited January 16, 2013 at 2:17 pm
Does your husband have an endocrinologist or thyroid specialist? I would think since he is in the hospital, it would be easy to get a referral. I'm sorry you are going through so much confusion and uncertainty and hope for a good outcome for your husband. I think making a diagnosis is often difficult. I think it's odd that the labs came back papillary and they are saying it's not but I am new to this and hope someone else can help you more.