Anaplastic Thyroid Cancer

About a week and a half ago my dad had half his thyroid taken out, they took out a baseball size tumor out. After testing the tumor, it is anaplastic thyroid cancer, which is rare and aggressive. Only 1% to 2% of Americans get this kind. It's so heart breaking :( He has heart problems so he cannot do chemo. He is debating whether to do radiation. After looking at the statistics on this cancer, it is sad :( Has anyone out there known anyone who has had this type or have had it? I pray for strength through this and peace. Miracles happen everyday, I am praying for one.

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You need to get on the thyca.org site and read up on this cancer. Your dads health and age will come into play as to his ability to fight this cancer. His tumor is large, so you will need all the information you can get. There is also an e mail support group, and I would suggest you join it. Its link in also on the thyca.org site. You will not have much time to make any decisions regarding his care. It grows that fast. Speed is of the essence.
I will be thinking of you. Let us know how it is going.

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Hi Susan,
When i was diagnosed with ATC two years ago I thought there was not much hope! But I am still here against all odds! Keep the faith! I was treated at the Mayo Clinic in Jacksonville, Fl. went through 7 weeks of radiation, chemo, half of my thyroid taken out & feeding tube, the whole works..i am 55yrs old. I'll pray for you and your family, there is always hope!!!
xoxox Stacey

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Thank you both so much for your stories. Right now I am trying to spend as much I can with him. Especially now while he is able. He goes to the cancer doctor today. It is hard. I will be 34 tomorrow, my dad has been my rock all my life. And you are right, it is human to be selfish and not want to let go. It's so hard. I will keep you all updated.

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Thank you so much sasboca. I am praying and believing. I am so happy you are doing well after 2 years. That is a blessing! Thank you so much for your prayers.

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SusanK814

Did you say how old your Father is? That
has much to do, physical strength, age may
have much bearing on the outcome.

You are so young, it seems tragic that you
are dealing with such an illness, but Cancer
has no respect for those affected, babies to
aged, & those in between.

Hearing that your dad was always your
rock, means he never let you down, what
an example of a wonderful, generous father.
Many people have never experienced such
a blessing, even at 34.

Whatever comes, you have had a good teacher,
you will know as the times comes, the
response most needed! If he was your rock,
now too, so shall you be his. You sound very
mature, much more important than your actual
age! It is with great honor that you will give back
to him and be at his side: whatever the future may bring,
while he remains in our world.
Prayers are with you,
we understand the gammut of feelings
everyone goes through during these times!
Take care of yourself also, caretakers
feel so numb sometimes, each day is
a new challenge. Being willing to accept
a support system may be crucial.

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Thank you so much Gramma4, that was very nice and inspiring. My dad is 60 years old. His health is not so great, he has heart problems. He has bypass surgery at the age of 46 and has had couple more heart attacks over the years. He has a pacemaker, which his battery is about to die in a couple months, but the heart doctors are not concerned to change it now since this is all going on. My dad is in good spirits right now, I am sure he is still trying to be the strong one as long as he can. I am praying for strength through all this and peace. I am so worried about everything, I pray for healing also for him. My dad is my world. Even before all this, I would call him every night even if I saw him that day and talk to him, sometimes 20 mins and sometimes 2 hours. I am trying to be strong.

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Your love for your Dad brings me to tears.
I had that with my parents also, and would
not have changed that for all the money
in the world. I find music very therapeutic,
if you ever had that bond (my dad sang
all the time), bringing in music to him, might
be a way of enjoying time together,
especially since speaking is probably
a struggle for him.
if he had favorites, or you both did,
he will love that you keep letting
him know how much you love him and
those memories can never be taken
away! If that is not you, think of
something that might apply. The
littlest things now actually mean the
most. Some people love music boxes,
I am sure you will think of something.
That way whatever happens in this
journey, there will be meaningful
things you can keep focusing on now
and at a time when you need all
the strength you can muster. These
are things I learned when life seemed
most overwhelming.

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Yes, my dad and I had that bond of music. He plays the guitar and piano. When I was a little girl I would sing while he played the guitar. I think they have me on video of me singing "have you ever seen the rain" while dad played it on the guitar when I was 8 years old or so. We both love the beach also. I plan to take him this weekend. You are right, it is about the little things. Every evening since he told us about his results last week I have gone by his house and just sit on his front porch with him talking. Every moment counts and is a cherished, especially when you have a time frame put in front of you.

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You are giving him exactly what he wants
and needs. If he taught you such empathy
then he indeed has given you a special
gift. That will continue through many
generations, his life has been full and
successful! What more could any human
hope to achieve.

I am so glad you are there and able to
have the opportunity to offer both
physical and emotional support. Often,
distance, jobs, young families keep
loved ones from getting to an ill loved
one's side, that is a terrible situation,
for all involved. If you are given this
opportunity, treasure all moments.
I also believe theses experiences
are meant to shape our lives. A
blessing in disguise, think of a loved one
lost in a tragic accident, suddenly, no
goodbyes, no special memories of
their lives ending, it sounds corny,
but look for the sweetness of this

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Dad had a PET scan done Tuesday, we will know the results tomorrow to see if the cancer has spread. The cancer doctor thinks he may have spread to his kidneys by looking at the CT scan. I am praying not. His feet and ankles are really swollen. He is going to ask the cancer doctor about it. We are gathering his records for possibly going to a clinical trail/study. Depending on what the PET scan shows. I am still praying for healing! I know God is in control!

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Susank - Your difficult situation and your loving relationship with your father moves me so much. I want to call my elderly father and tell him I love him. He is not well, and I haven't spent enough time with him. Thank you for the wake up call.

I wish you both peace during this difficult time.

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Thank you so much Gramma4 for your encouraging words. It means so much. Your words make me cry, because you are hitting everything that I am going through right on the head. You know what this is like and I thank you for your time to help me with this. I am trying to take care of me. It is hard. I am trying to be there for my dad as much as I can and work 40 hours a week also. My brother, Donnie, lives about 45 mins away. He is married and as a 2 year son, Adam. My brother comes down as much as he can also and visits dad and we all went to the cemetery last weekend to pick out a plot and all. The one thing my dad did tell us when he told us the results a few weeks ago was that he will regret or miss not seeing Adam ( his grandson ) grow up. :( It breaks my heart. We will know the results today of the PET scan. I will keep you updated.
Zheni-You are most welcome. You should call your father and tell him you love him. You never appreciate the value of a minute until you are handed a time limit. Cherish every moment you can.

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Susan,
I believe your Dad will always remain
with you, Donnie, Adam, even future
children you will have, in a spiritual,
supportive sense. Our daily trials
and tribulations probably would
seem much less troublesome, after
all, in that "better place, a heavenly
peaceful home", there is no suffering.

I have seen many times, after a family
loses a loved one, soon there will be
a birth. Almost as if that joy is an indication that
life must go on; a reminder that our loved
ones live on, in another little human being,
suddenly a look, a smile, an expression is
full evidence, those we have loved are still near...

My Mom always hated to have her picture
taken, made this funny uncomfortable smile,
every single time. Now, my 8 year old grandson
does the same identical look, we LOVE it! My
son is calm, level-headed, loves to read, he
and my 6 year old grandson are so like
my Dad. When I have a day where
I feel particularly sad I don't have my parents
here; I allow myself to acknowledge my
feelings, they are very real and valid.
Then, I give thanks for the blessings and memories
that remain.

I just hope someday, someone else
feels or remembers some of the unique things
about me.

I am a thyca survivor in congestive
heart failure.

Not a single person knows
where or when their last
breath is really coming.
However long we & those we love
may be on earth, the funny,
bittersweet, happier
memories, now and later,
are the testimony that their
lives were not forgotten, the love
lives on.

Could he watch you fly a beautiful kite,
plant his favorite veggie, flowers? Pictures
Adam can enjoy when older, stories
that make him know Grandpa...
Most importantly, just keep holding his hand!
Precious moments will belong in your
heart, always, between a father
and sweet daughter.

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Last week the cancer doctor said from the CT scan that Dad had cancer on his kidneys and lymph nodes around his lungs. The PET scan results showed it isn’t there anymore! There is activity around his neck, but the doctor is not sure if that is cancer or from where the tissue is healing. He still probably needs to do radiation. But what a blessing! God is good!
The other day my brother went to work and his job told him to go home since it was his birthday. Donnie had to take a cab to go back to get his car. My brother talked to the cab driver about Dad and that cab driver prayed with Donnie in that cab, held his hand, quoting scriptures from the bible. Donnie said tears were coming down that cab drivers face. He told Donnie when he saw Dad, to put his hand on Dad’s forehead. Donnie did that day when he saw him. Tell me he was not an angel sent. God is working through other people as well. It is amazing
Still praying and praying for healing. Thanking God for what he is doing. God is in control.

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Wow - that brought me to tears! So much love all around you, and beauty growing out of tragedy.

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Susan,

That is beyond words, to imagine experiencing.
There absolutely are miracles that occur.
Sometimes we are so wrapped up in life we
do not see or recognize. We are praying
this continues. There are without a doubt
angels among us. All things are
possible, when we believe in the Higher
Power to guide and guard us! We must
trust that what happens is for a reason.
We are not in charge, thankfully.

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Yes, my brother said to tell the story of what he experienced doesn't do justice to what he felt and what it actually like. Dad has an appointment Thursday with a clinical trail study place, it is about an hour and half a way. We will see what this doctor says. I have faith and I am believing!

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Susan,

I am sure this will feel like a very long
week.

I don't think most of the time we realize
that "faith" has gotten us through
everyday... It is so much a part
of us, every choice we make, the fiber
of our lives. It seems kind of sad, it takes
the "wake up calls" for we "oh so busy
humans" to stop long enough to notice
the miracles, the important moments that
fly by each day! The love we feel for
family and friends, is just supposed to
be there. In reality, it takes lots of work,
appreciation, strength to nurture, patience,
the will to see it through. Without a doubt,
we need miracles, angels, (winged and human
form) a God who's love is never ending. We
cannot quite understand those who
do not have such faith, it makes sense,
if we exist, there must be a plan! I feel
calm to know that there is a point to life.

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You are so right Gramma, everything you say is inspiring and is perfect to how life is. <3

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Susan,

I have been praying the appointment Thursday
was better news. It is confusing
when some test results are so
unlike other information you had
been dealing with? I am sure it was
a very long and exhausting day.
We are here for you when you need
someone.

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