I am a thyroid cancer survivor (Hurthle Cell). I had a total thyroidectomy in 2002 and have been dependent on thyroid hormone replacement meds since. I have taken Levoxyl since the surgery.
After the Levoxyl recall my doc sent me Tirosint samples knowing I was allergic to Synthroid. He said it has the least amount of other fillers and other junk, and reading about it online it appears to be true. So I started TIrosint and about 8 hours later I started to get itchy. I stopped taking it, switched back to my back up supply of Levoxyl and the itchiness went away. I called my doctor and he sent me samples of 50mg Synthroid to try stating it had no dyes in that dosage. I took it for 2 days and broke out in hives on my face and head. I called my doctor again and he said to try the Tirosint again. This time I took it for 3 days straight and I just about lost my mind itching so much. Now I am back on Levoxyl (supply starting to run low) and my doc said if I am allergic to Tirosint and Synthroid then we have a "big problem." He said there are other meds out there but they all have the same ingredients as the meds I am allergic to, plus a bunch of other junk in them and they are not good for you.
I asked my doctor whats going to happen and he said either I take the Tirosint and "suck up the allergic reaction" or I have about 6 months to live after I stop taking Levoxyl.
Since the Levoxyl recall was a voluntary recall (not FDA mandated) I called Pfizer to see if anything could be done. The customer service line goes like this... "Press 1 if you are a doctor, press 2 if you are an investor, press 3 if you are a patient." I see the phone tree as a list of priorities and I knew it wasn't going to go well. When I got someone on the phone she was more concerned about getting my name, address, phone, etc than anything else. Once I got through that I explained the problem. All she kept saying was, call your doctor or pharmacist. When I asked if there were any Levoxyl pills in inventory she said "most likely, somewhere in our company." When I asked how to get a hold of these medications she said "it is impossible." I explained that if I am allergic to the other meds I am going to die. She said "I'm very sorry to hear that." I asked her under the circumstances, if it comes to that will Pfizer help me... "no sir, I'm very sorry" is all I got.
My doc gave me a script for generic so I could try it and I am going to take another chance at Tirosint hoping its a coincidence since my doc doubted I was having a reaction to it... I hope he's right... its worth a 3rd try.
Has anyone else ever run into this? Any ideas? I've done a bunch of research online but I am not a chemist or a doctor. I feel like I have been left to my own devices to save my life.