ThyCa: Thyroid Cancer Survivors' Association Support Community

The ThyCa: Thyroid Cancer Survivors' Association Support Community connects patients, families, friends and caregivers for support and inspiration... More about this group

Newly Diagnosed with Papillary Thyroid Carcinoma Cancer

By Faithbird · New reply 9:01 pm
Journal · 5 replies
Hello Fellow Survivors, I am new to the group. I am 51 years old. I was diagnosed with Papillary Thyroid Carcinoma Cancer on March 28th 2013. I had surgery on April 30th, 2013. I had a Total Thyroidectomy ...

I'm going to do it! ACDF surgery 6/3!

By lolly808 · New reply 8:56 pm
Discussion in Papillary and follicular thyroid cancer (differentiated) · 21 replies
Oy Vey! I met with the surgeon in Irvine, CA on the 16th. He did my sister's neck and back surgery. I have almost Exactly the same problems as she did. Sooo, I'm scheduled to have Anterior Cervical Discectomy ...

Thyroid surgery soon

By CarolinaGirl77 · New reply 8:06 pm
Journal · 52 replies
Two and a half days until thyroid surgery. Two weeks ago, April 29th, I was sitting in the doctors office with day to day stuff on my mind, never expecting life would change when the doctor walked into ...

Allergic to All Thyroid Meds After Levoxyl Recall

By MattinNH · New reply 7:53 pm
Discussion in Long-term survivors · 57 replies
Hi, I am a thyroid cancer survivor (Hurthle Cell). I had a total thyroidectomy in 2002 and have been dependent on thyroid hormone replacement meds since. I have taken Levoxyl since the surgery. After ...

Questions About Lung Nodule?

By Andy123 · New reply 7:44 pm
Discussion in Papillary and follicular thyroid cancer (differentiated) · 9 replies
Hi all, thanks for reading my 1st post! I am very worried about some results my wife got this week - she has recently had further CT investigation that has revealed a solitary 5mm lung nodule. To give ...

Anyone happy on T4 alone? What does T3 do?

By lisacarole · New reply 7:38 pm
Discussion in Long-term survivors · 2 replies
Is anyone happy on T4 alone-no weight gain, not depressed, not sweating/not freezing, no pain issues etc? What are your levels and what med are you taking? I've been on Levoxyl for 19 years, gained 80 ...

New ~

By rosie_van · New reply 7:34 pm
Discussion in Papillary and follicular thyroid cancer (differentiated) · 7 replies
Hello everyone ~ Thank you for the welcome to the group ~ I am glad that I found this group as I feel as I am going nuts dealing with this and researching things! :) I had my complete thyroid removed ...

Starting LID today--anyone else?

By Zimmer12 · New reply 7:22 pm
Discussion in Low iodine diet · 133 replies
Getting ready for my six month WBS and possibly a second round of treatment. Anyone want to go through LID together for the next two weeks or have part overlapping? Cheers, Jan ...

TT complete, intense week, happy to be home

By Crystallandon · New reply 7:17 pm
Discussion in Papillary and follicular thyroid cancer (differentiated) · 6 replies
My TT was done on May 14. The surgeon, Dr. Fahey of New York Presbyterian Weil Cornell was absolutely wonderful. The recovery has been smooth. But the tumor did make its way to my larynx and to some lymph ...

..sounds like if you are not taking up RAI anymore, no chance for cure

By gemgirlqt · New reply 7:09 pm
Discussion in Papillary and follicular thyroid cancer (differentiated) · 9 replies
Very depressed about the responses on here and other websites regarding people that do not take up RAI any longer. It sounds like the cancer becomes more aggressive at that point and the cells have changed ...

unreal

By rubato456 · New reply 7:02 pm
Journal · 7 replies
After all the psychological acrobatics went thru to arrive at a decision to proceed with the bronchoscopy its looking like it will have 2 b postponed!! Not by my wishes though. My docs office mentioned ...

Lymph nodes - How do you know if thyca is there too?

By DA95 · New reply 6:49 pm
Discussion in Papillary and follicular thyroid cancer (differentiated) · 1 reply
I've been reading that a lot of thyca patients had there lymph nodes sampled during surgery & now I am wondering why my mom's endo surgeon did not do this. Is there another way to determine if it has ...

Switch to synthroid from levoxyl problems ?

By caseykrz · New reply 6:45 pm
Discussion in Papillary and follicular thyroid cancer (differentiated) · 6 replies
Anyone else having a problem with the switch to synthroid ? I made the switch on April 28th ,and by may 10th I was getting tired and worn down, by May 14th I was getting lightheaded and body aches like ...

Getting ready for surgery at mskcc

By kshop3 · New reply 6:22 pm
Discussion in Papillary and follicular thyroid cancer (differentiated) · 1 reply
It took a long time to decide on where to get surgery and follow-up care. After spending hours and hours on the net comparing facilities, surgeons, endos, pathologists, ultrasound, nuke ect... I finally ...

Is anyone else just plain mad at everyone?

By barbofflorida1971 · New reply 6:16 pm
Discussion in Papillary and follicular thyroid cancer (differentiated) · 9 replies
Sorry everyone but today I just have to say a few things and hope that my friends here can help me understand my feelings. I am pretty much mad at most of my family and friends and here is why! My "journey ...

Blocked Tear Ducts

By bowens · New reply 6:13 pm
Discussion in Papillary and follicular thyroid cancer (differentiated) · 5 replies
I am wondering if anyone has had blocked tear ducts from the RAI ...

Thyroid Cancer has aged me:-(

By JuJu55 · New reply 5:33 pm
Journal · 9 replies
This journey that we call THYROID CANCER has definitely weakened my body and soul since diagnosed 10 months ago. I have Hurthle cell am 50 years old, tumor was 4.8 cm. Tg levels after surgery were 46 ...

Raspy Voice

By toni-pisciuneri · New reply 5:07 pm
Discussion in Papillary and follicular thyroid cancer (differentiated) · 2 replies
Not sure if anyone else has experienced this but i had a total thyroid removal due to papillary cancer, no lymph nodes effected and now 1 1/2 years later my voice is really starting to crack almost like ...

The AYA Thyroid Cancer Survivors’ Survey seeks your input.

By CherryW · New reply 4:32 pm
Journal · 7 replies
It was developed by physicians from the University of California Los Angeles and University of Southern California, with ThyCa: Thyroid Cancer Survivors’ Association, Inc. (www.thyca.org) cooperating ...

After RAI and Nose Sores

By Booterbeth · New reply 3:41 pm
Discussion in Papillary and follicular thyroid cancer (differentiated) · 10 replies
Anyone else suffer with sores in their nose after RAI? I am having a time with them ...

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The ThyCa: Thyroid Cancer Survivors' Association Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by ThyCa: Thyroid Cancer Survivors' Association, an Inspire trusted partner.