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Can't get Levoxyl and switching to synthroid

greda
  • By greda · New reply 3:26 am
  • Discussion in Papillary and follicular thyroid cancer (differentiated) · 119 replies
  • I have been on Levoxyl since the beginning of my thyca journey. Now they have to switch me over to synthroid. Is anyone out there having problems getting levoxyl? I was told by the pharmacy that there ...

Allergic to All Thyroid Meds After Levoxyl Recall

MattinNH
  • By MattinNH · New reply 3:11 am
  • Discussion in Long-term survivors · 43 replies
  • Hi, I am a thyroid cancer survivor (Hurthle Cell). I had a total thyroidectomy in 2002 and have been dependent on thyroid hormone replacement meds since. I have taken Levoxyl since the surgery. After ...

Thyroid Cancer has aged me:-(

JuJu55
  • By JuJu55 · New reply 3:07 am
  • Journal · 1 reply
  • This journey that we call THYROID CANCER has definitely weakened my body and soul since diagnosed 10 months ago. I have Hurthle cell am 50 years old, tumor was 4.8 cm. Tg levels after surgery were 46 ...

TSH Went DOWN After 5 Weeks Off Levothyroxine

Colorado-Tiff

What if there was a catastrophe? What can we do to survive w/o our pills?

Greeb
  • By Greeb · New reply 2:33 am
  • Journal · 23 replies
  • During my medical leave, my boyfriend bought me the Xbox game, Rip Tide Dead Island. It’s a game about people trying to survive a zombie apocalypse on an island somewhere in the pacific. While I was playing ...

I'm going to do it! ACDF surgery 6/3!

lolly808
  • By lolly808 · New reply 2:25 am
  • Discussion in Papillary and follicular thyroid cancer (differentiated) · 17 replies
  • Oy Vey! I met with the surgeon in Irvine, CA on the 16th. He did my sister's neck and back surgery. I have almost Exactly the same problems as she did. Sooo, I'm scheduled to have Anterior Cervical Discectomy ...

What if I DON't Have surgery???

algebrafreak
  • By algebrafreak · New reply 2:01 am
  • Journal · 17 replies
  • After reading all the "Life after TT" posts, I am ready to say -LEAVE IT ALONE! My surgeon postponed surgery due to my PTH =10.7. I find out Tuesday if we are back on for surgery. I have memory issue ...

Encouragement

gemgirlqt

Anyone heard from Crystallandon?

Linsifer
  • By Linsifer · New reply 1:32 am
  • Discussion in Papillary and follicular thyroid cancer (differentiated) · 1 reply
  • Has anyone heard from Crystallandon since her surgery on May 14th? I've sent her a couple messages to see how she's feeling, but haven't heard back. She's usually very good about writing. I just want ...

unreal

rubato456
  • By rubato456 · Posted 1:31 am
  • Journal · 0 replies
  • After all the psychological acrobatics went thru to arrive at a decision to proceed with the bronchoscopy its looking like it will have 2 b postponed!! Not by my wishes though. My docs office mentioned ...

Back Pain Weeks After Surgery

Ccretguardn

Getting nervous

Drmommyof2
  • By Drmommyof2 · Posted yesterday at 11:52 pm
  • Discussion in Papillary and follicular thyroid cancer (differentiated) · 0 replies
  • I don't know why, well maybe I do, but I am getting nervous about my upcoming testing. My Endo wants me to have an US of my neck next month. I had a right and central neck dissection 2/4/13 and RAI 3/18/13 ...

..sounds like if you are not taking up RAI anymore, no chance for cure

gemgirlqt
  • By gemgirlqt · New reply yesterday at 11:16 pm
  • Discussion in Papillary and follicular thyroid cancer (differentiated) · 5 replies
  • Very depressed about the responses on here and other websites regarding people that do not take up RAI any longer. It sounds like the cancer becomes more aggressive at that point and the cells have changed ...

rai when to go home question

Kat456
  • By Kat456 · New reply yesterday at 11:09 pm
  • Discussion in Papillary and follicular thyroid cancer (differentiated) · 2 replies
  • I had 100 rai treatment last Thursday at two pm. Dr said restrictions through sunday... Am still not home afraid I will contaminate others awful feeling.Hubby wants me come home Friday which is week and ...

Starting LID today--anyone else?

Zimmer12
  • By Zimmer12 · New reply yesterday at 10:56 pm
  • Discussion in Low iodine diet · 128 replies
  • Getting ready for my six month WBS and possibly a second round of treatment. Anyone want to go through LID together for the next two weeks or have part overlapping? Cheers, Jan ...

The AYA Thyroid Cancer Survivors’ Survey seeks your input.

CherryW
  • By CherryW · New reply yesterday at 10:49 pm
  • Journal · 1 reply
  • It was developed by physicians from the University of California Los Angeles and University of Southern California, with ThyCa: Thyroid Cancer Survivors’ Association, Inc. (www.thyca.org) cooperating ...

TT complete, intense week, happy to be home

Crystallandon
  • By Crystallandon · New reply yesterday at 10:33 pm
  • Discussion in Papillary and follicular thyroid cancer (differentiated) · 3 replies
  • My TT was done on May 14. The surgeon, Dr. Fahey of New York Presbyterian Weil Cornell was absolutely wonderful. The recovery has been smooth. But the tumor did make its way to my larynx and to some lymph ...

Newly Diagnosed with Papillary Thyroid Carcinoma Cancer

Faithbird
  • By Faithbird · New reply yesterday at 9:48 pm
  • Journal · 2 replies
  • Hello Fellow Survivors, I am new to the group. I am 51 years old. I was diagnosed with Papillary Thyroid Carcinoma Cancer on March 28th 2013. I had surgery on April 30th, 2013. I had a Total Thyroidectomy ...

Do most of you always get a freeT4 andT3 with TSH lab?

Linsifer
  • By Linsifer · New reply yesterday at 8:49 pm
  • Discussion in Papillary and follicular thyroid cancer (differentiated) · 3 replies
  • Okay, I'm here to get educated. I don't hear much about free T4 or T3 here. It seems to be all about TSH. As I mentioned in an earlier thread, I had my first TSH level drawn 4 weeks after my TT and it ...

Tirosint - Is anyone on this?

Survivor-09
  • By Survivor-09 · New reply yesterday at 8:28 pm
  • Discussion in Papillary and follicular thyroid cancer (differentiated) · 8 replies
  • Hi guys, I been on Levoxyl since my cancer in November of 2009, since the recall I was switched to Synthroid and I had a very bad reaction to it.. So my doctor is calling me in Tirosint... I have never ...

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