ThyCa: Thyroid Cancer Survivors' Association Support Community

The ThyCa: Thyroid Cancer Survivors' Association Support Community connects patients, families, friends and caregivers for support and inspiration... More about this group

cleaning up after RAi

By shenandoah519 · New reply 2:22 pm
Discussion in Papillary and follicular thyroid cancer (differentiated) · 5 replies
I had my RAI last Thursday.. when I got home i felt ok even ate quite well...that evening I got pretty bad nausea. I had some Zofran and that really works well. I still had a little nausea yesterday but ...

Questions About Lung Nodule?

By Andy123 · Posted 2:22 pm
Discussion in Papillary and follicular thyroid cancer (differentiated) · 0 replies
Hi all, thanks for reading my 1st post! I am writing to ask a question about my wife who has recently been going through some further investigation work. To give a brief history, she had papillary thyroid ...

Surgery & Recovery Time & Working

By Charlene_V · New reply 2:21 pm
Discussion in Mental challenges of living with thyroid cancer · 8 replies
I am scheduled to see the surgeon on Thursday. Already told it was cancer, just don't know what kind or what stage. I work full-time outside the home. With reading all the posts about appointments, testing ...

Bilateral Vocal Cord Paralysis

By rianne07 · New reply 1:56 pm
Discussion in Papillary and follicular thyroid cancer (differentiated) · 3 replies
Hi guys, My mom was diagnosed with papillary thyroid cancer January of this year. She underwent complete thyroidectomy on April 12. We all thought it went well though she had a very hoarse voice. After ...

Surgery in two days

By jsv · New reply 1:49 pm
Discussion in Papillary and follicular thyroid cancer (differentiated) · 1 reply
I'm scheduled for TT on on 5/23. Since Sunday I have been having a sensation in my neck where the nodule is. It's not quite a pain, but I can feel it, and my neck is swollen in that spot. Has anyone else ...

Yikes.

By ady8e80 · New reply 1:47 pm
Journal · 5 replies
I kind of had a moment at work today. My boss has been making it difficult to know whether I will actually have much time off to recuperate or not. I'm on probation because I have not quite worked 6 months ...

Starting LID today--anyone else?

By Zimmer12 · New reply 1:32 pm
Discussion in Low iodine diet · 116 replies
Getting ready for my six month WBS and possibly a second round of treatment. Anyone want to go through LID together for the next two weeks or have part overlapping? Cheers, Jan ...

Release of Medical Records - HIPAA Laws

By DebDeb1969 · New reply 1:27 pm
Discussion in Papillary and follicular thyroid cancer (differentiated) · 4 replies
Just wondering if anyone has had trouble getting their records released? I am in the process of switching endo's and requested my entire file be sent to me from my old endo. I got a packet in the mail ...

It has come back

By LarryN · New reply 1:03 pm
Discussion in Anaplastic thyroid cancer · 23 replies
Have had clean CT scans from 2009 till Jan. New lump discovered in Jan scan. Had a PET scan 2 weeks ago at MD Anderson. I have a small tumor growing under the radiated right thyroid. Found out my right ...

Allergic to All Thyroid Meds After Levoxyl Recall

By MattinNH · New reply 12:52 pm
Discussion in Long-term survivors · 13 replies
Hi, I am a thyroid cancer survivor (Hurthle Cell). I had a total thyroidectomy in 2002 and have been dependent on thyroid hormone replacement meds since. I have taken Levoxyl since the surgery. After ...

Thyroid cancer stage 4 - Treatment for cure or reduce the spreading

By Sasidharan · New reply 12:40 pm
Discussion in Papillary and follicular thyroid cancer (differentiated) · 3 replies
My Dad (66 years) had thyroid cancer and went through difficult situations in the last two and half years. After two years the PET scan is showing there are cancerous cells spread into multiple locations ...

What if I DON't Have surgery???

By algebrafreak · New reply 12:03 pm
Journal · 4 replies
After reading all the "Life after TT" posts, I am ready to say -LEAVE IT ALONE! My surgeon postponed surgery due to my PTH =10.7. I find out Tuesday if we are back on for surgery. I have memory issue ...

Nausea postop RAI

By shenandoah519 · Posted 11:28 am
Discussion in Papillary and follicular thyroid cancer (differentiated) · 0 replies
It' day 5 postop RAI and I'm still having some nausea especially after eating...is this normal ...

De differentiated (non-avid) to differentiated ?

By Upma · New reply 11:01 am
Discussion in Papillary and follicular thyroid cancer (differentiated) · 3 replies
Hi All, Is there a possibility that De differentiated (non-avid) cells become differentiated ? Mine in 2012 was differentiated and in 2013 Jan it became De differentiated (non-avid). So is it possible ...

What if there was a catastrophe? What can we do to survive w/o our pills?

By Greeb · New reply 10:47 am
Journal · 11 replies
During my medical leave, my boyfriend bought me the Xbox game, Rip Tide Dead Island. It’s a game about people trying to survive a zombie apocalypse on an island somewhere in the pacific. While I was playing ...

Thyroid cancer

By algebrafreak · New reply 10:35 am
Discussion in Papillary and follicular thyroid cancer (differentiated) · 17 replies
Scheduled for total thyroid removal next Thurs 5/23. Got a call today that my bloodwork shows high levels of calcuim..possible para thyroid removal. Now surgery may be postponed. All tests & appts. started ...

HERE IS HOW THE VISIT WENT and WHAT LED TO WHY I"M CHANGING SURGEONS!

By beingcelestial · New reply 10:32 am
Discussion in Papillary and follicular thyroid cancer (differentiated) · 13 replies
Here's what happened at consult with my former surgeon for 2nd surgery: As excellent a surgeon as he is, he does not like when patients ask questions and know to much info. I asked him to tell me if he ...

Thyroid surgery soon

By CarolinaGirl77 · New reply 9:38 am
Journal · 47 replies
Two and a half days until thyroid surgery. Two weeks ago, April 29th, I was sitting in the doctors office with day to day stuff on my mind, never expecting life would change when the doctor walked into ...

Tirosint - Is anyone on this?

By Survivor-09 · New reply 9:23 am
Discussion in Papillary and follicular thyroid cancer (differentiated) · 4 replies
Hi guys, I been on Levoxyl since my cancer in November of 2009, since the recall I was switched to Synthroid and I had a very bad reaction to it.. So my doctor is calling me in Tirosint... I have never ...

Does anyone else have a problem with your head moving

By kat1954 · New reply 8:59 am
Discussion in Papillary and follicular thyroid cancer (differentiated) · 1 reply
I didn't notice at firstbut my daughter asked me why my head is moving slightly like saying yes. I had a right neck dissection in October, 2012 is it possibly from that or also I am on 250 mg yes I said ...

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The ThyCa: Thyroid Cancer Survivors' Association Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by ThyCa: Thyroid Cancer Survivors' Association, an Inspire trusted partner.