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Discussion and support for everyone enrolled in a HIDS study at the NIH and their family members.
- By ChildrensInn1 · New reply September 13, 2009
- 2 replies
- Dear parents, caregivers and Children's Inn residents: Welcome to the Periodic Fever Syndrome- HIDS discussion group! By Inn resident demand, we can now help you make connections to other families who ...
- By msmizz · New reply September 10, 2009
- 7 replies
- my 7yr old son was diagnosed with hids and periodic fever syndrome last february. his doctor at cincinnati childrens said that since so little is known about this condition that he should be involved ...
- By mommymanda · New reply July 12, 2009
- 9 replies
- We are looking for other families dealing with HIDS. We have an almost 3 yr old son who was diagnosed at about 19 months. We have been going to the NIH since April 2007 about every 3 months. We have met ...