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General

TCI discussions, talk and chit-chat unrelated to disease groups.

Today at the INN: October 19!

BKuz
  • By BKuz · Posted October 19, 2009
  • 0 replies
  • Today at the INN... Rosemary's Halloween Party! 4:30PM YANO (Young Adult Night Out) 6PM Family Dinner by Christ Episcopal Church of Kensington 6PM Grocery Store Run 6:30PM Family Night!! 7PM Hope to see ...

Today at the INN: October 15!

Cait
  • By Cait · Posted October 15, 2009
  • 0 replies
  • Today at the INN... Grocery Store Run 6:30PM NIH Clinical Center Field Trip to Local Shopping Mall 6:30PM (to reserve, call 301-496-2233 by 4:30PM and meet in 1st Floor North Lobby of the Clinical Center ...

Today at the INN: October 14!

ManagerofFun
  • By ManagerofFun · Posted October 14, 2009
  • 0 replies
  • Today at the INN... Open Music Studio with Vera! 4:30PM Arts INNplace 7PM Hope to see you there! To see what's going on the rest of the month check out the Inn's website at childrensinn.org and follow ...

Today at the INN: October 6!

ManagerofFun
  • By ManagerofFun · Posted October 13, 2009
  • 0 replies
  • Today at the INN... Learn INN 4:30PM Parent Reception 4:30PM Seated Massage 5-7PM Grocery Store Run 6:30PM Family Dinner by Southern Management E Dining Rm 6PM Bingo!! 7PM Hope to see you there! To see ...

ALPS

lroublick
  • By lroublick · New reply October 7, 2009
  • 25 replies
  • hi..I am a parent of an 8 year old girl who was diagnosed with ALPS at the age of 2...I have yet to meet or speak with other parents who have a child/children with this disease. Hoping to conect with ...

Today at the INN: October 6!

ManagerofFun
  • By ManagerofFun · Posted October 6, 2009
  • 0 replies
  • Today at the INN... Visit with Vi 4PM Interfaith Service 5PM Cooking with Rosemary 4:30PM Seated Massage 5-7PM Grocery Store Run 6:30PM Scrapbooking! 7PM *Family Night!* 7PM Hope to see you there! To ...

Today at the INN: October 5!

ManagerofFun
  • By ManagerofFun · Posted October 5, 2009
  • 0 replies
  • Today at the INN... Visit with Vi 4PM Starlight Starbright Arts & Crafts Party! 5:30PM Grocery Store Run 6:30PM *Family Night!* 7PM Hope to see you there! To see what's going on the rest of the month ...

Today at the INN: October 1!

ManagerofFun
  • By ManagerofFun · Posted October 1, 2009
  • 0 replies
  • Today at the INN... Visit with Vi 4PM Cooking with Rosemary in the Bistro! 4:30PM NIH Clinical Center Field Trip to the Movies 6:30PM (to reserve, call 301-496-2233 by 4:30pm and meet in the 1st Floor ...

Today at the INN: September 30!

ManagerofFun
  • By ManagerofFun · Posted September 30, 2009
  • 0 replies
  • Today at the INN... Visit with Vi 4PM Arts INNplace: Fused Glass with Kathie! 7PM Hope to see you there! To see what's going on the rest of the month check out the Inn's website at childrensinn.org and ...

Today at the INN: September 29!

ManagerofFun
  • By ManagerofFun · Posted September 29, 2009
  • 0 replies
  • Today at the INN... Visit with Vi 4PM Parent Reception 4:30PM Cooking with Rosemary! 5PM Seated Massage Upper Living Room 5-7PM Grocery Store Run 6:30PM Scrapbooking 7PM Hope to see you there! To see ...

Today at the INN: September 24!

ManagerofFun
  • By ManagerofFun · Posted September 24, 2009
  • 0 replies
  • Today at the INN... Visit with Vi 4PM Spanish Speaking Community Meeting 4:30PM NIH Clinical Center Field Trip to a Local Mall 6:30PM (to reserve, please call 301-496-2233 by 4:30PM and meet in the 1st ...

Book Fair!

BKuz
  • By BKuz · Posted September 23, 2009
  • 0 replies
  • *Don't forget our Book Fair is still going on in the Living Room of the Children's Inn! Please feel free to browse the books and take whatever you feel will benefit you and your family! There are tons ...

Today at the INN: September 23!

ManagerofFun
  • By ManagerofFun · Posted September 23, 2009
  • 0 replies
  • Today at the INN... Visit with Vi 4PM Open Music Studio 5PM Celebrating our Heritage Arts INNplace: Hispanic ArtWorks with Rachel! 7PM Hope to see you there! To see what's going on the rest of the month ...

Today at the INN: September 22!

ManagerofFun
  • By ManagerofFun · Posted September 22, 2009
  • 0 replies
  • Today at the INN, there are a variety of activities going on for our kids and families! Visit with Vi 4PM Parent Reception 4:30PM Learn INN 4:30PM Seated Massage 5-7PM Family Dinner by Marriot E Dining ...

Today at the INN: September 21!

ManagerofFun
  • By ManagerofFun · Posted September 21, 2009
  • 0 replies
  • Today at the INN, there are a variety of activities going on for our kids and families! Visit with Vi 4PM Family Dinner by Wendy Robinson E Dining Rm 6PM Grocery Store Run 6:30PM NIH Clinical Center Field ...

Any one else with ALPS?

moesmom
  • By moesmom · New reply September 21, 2009
  • 5 replies
  • My 4 yr old son has ALPS and we've been going to the NIH for 3 years now every 3 months or sooner. In that time, I've not met another ALPS patient and would love to find some one else to be able to talk ...

Friday at the INN: September 18!

ManagerofFun
  • By ManagerofFun · Posted September 16, 2009
  • 0 replies
  • Happy Friday! Today at the INN... Visit with Vi 4PM Hope to see you there! To see what's going on the rest of the month check out the Inn's website at childrensinn.org and follow these instructions: 1 ...

Thursday at the INN: September 17!

ManagerofFun
  • By ManagerofFun · Posted September 16, 2009
  • 0 replies
  • Thursday at the INN there will be... Visit with Vi 4PM Celebrating Everyone's Birthday! NIH Clinical Center 1 SE Patio 5:30PM Grocery Store Run 6:30PM Explore INN 7PM English Class 7PM Hope to see you ...

Today at the INN: September 16!

ManagerofFun
  • By ManagerofFun · Posted September 16, 2009
  • 0 replies
  • Today at the INN there will be... Visit with Vi 4PM Free Dinner Trip to Ledo's Pizza 4:45PM (Please sign up at the front desk!) Arts INNplace: Exploring our Environment with Eileen 7PM Hope to see you ...

The INN's Book Fair!

BKuz
  • By BKuz · Posted September 15, 2009
  • 0 replies
  • Please don't forget about the Book Fair going on in the main hallway of the INN! Feel free to browse the books and take what you are interested in! We have the children's books separated by age/grades ...

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