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Familial Mediterranean fever (FMF)
Discussion and support for everyone enrolled in a familial Mediterranean fever (FMF) study at the NIH and their family members.
Periodic Fever Conventions?
- By rybrans07 · New reply May 14, 2009
- 9 replies
- Hi my name is Kim and my daughter Sarah has FMF. I read on someone else's journal that there are Conventions for families dealing with Periodic Fever Syndromes to get together for the weekend. This journal ...
fmf and cronic illnesses
- By paula_mosseri · New reply May 11, 2009
- 8 replies
- I am the parent of a child with fmf. I was wondering if anyone else is experienceing cronic illness, other than fevers, with fmf? She misses so much school, and not because of the fevers ...
Sarah has protein in her urine as well as blood-anxiety ridden Mom
- By rybrans07 · New reply April 23, 2009
- 9 replies
- Today I received the phone call none of us want to hear. Sarah's doctor called to tell me that her urine was positive for proteins and blood. He didn't say much else except that he was going to discuss ...
Throat issues and FMF
- By Kaylea-Leanne · New reply March 17, 2009
- 1 reply
- My son was diagnosed in 2007 with FMF. He has since been on colchicine liquid since he wouldn't swallow the tablets. He is now 6 years old. Has not really had any fevers since other than some strep throats/ear ...
Sharing our Experiences
- By rybrans07 · Posted November 17, 2008
- 0 replies
- My daughter Sarah is a patient at NIH as well as Children's Hospital of Philadelphia. After 2 long years of sickness she was finally diagnosed with FMF in April 2006 by the Doctors at CHOP (Children's ...
Mary's blog entry Feb 08
- By Mel · New reply February 14, 2008
- 2 replies
- Hi Mary I am an adult with TRAPS, similar to FMF, and came upon this community by accident! I'm sure you will find help here but there is also a very active world wide Yahoo group called FMF support ...
Patients??
- By ltodaro · New reply October 3, 2006
- 4 replies
- Is anyone a patient or a Parent of a patient with FMF? What type of protocol are you a part of? What types of medications work and what hasn't helped you or your child? Currently, our son is benefitting ...
Welcome/Support
- By ltodaro · New reply August 15, 2006
- 2 replies
- This is a wonderful opportunity to connect online with parents/friends and family who are dealing with FMF. Hopefully we can meet each other and lend our support...what treatments have worked, what hasn't ...
Welcome
- By ChildrensInn1 · Posted March 16, 2006
- 0 replies
- Dear parents, caregivers and Children's Inn residents: Welcome to the Periodic Fever Syndrome- FMF discussion group! By Inn resident demand, we can now help you make connections to other families who ...
