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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Discussion topics
Cancer
Brain tumors
Discussion and support for everyone enrolled in a brain tumor study at the NIH and their family members.
want to find someone with the same tumor as our
- By anthony1 · New reply May 18, 2007
- 1 reply
- I was wondering if your child had the same diagnosed as my dauther and if so can we talk about it. Brainstem glioma ...
All 3 discussions...
Leukemia
Discussion and support for everyone enrolled in a leukemia study at the NIH and their family members.
Brazil Gordillo passed away memory for me and help cope with it
- By FightingFox · New reply June 28, 2009
- 2 replies
- Brazil Gordillo my best friend died june 16th 2009, how do i cope with this we fell in love and were taking on from there. I really did love her. The thing i think she love me for was i didnt care if ...
All 2 discussions...
Sarcoma
Discussion and support for everyone enrolled in a sarcoma study at the NIH and their family members.
Lets start connecting
- By ChildrensInn1 · Posted April 12, 2006
- 0 replies
- hello I see we have a few member signed up that are interested in Sarcoma's. Lets get this discussion started. For those who have registered, are you currently being treated at The NIH and visiting The ...
All 2 discussions...
Periodic fever syndromes
Familial Mediterranean fever (FMF)
Discussion and support for everyone enrolled in a familial Mediterranean fever (FMF) study at the NIH and their family members.
Throat issues and FMF
- By Kaylea-Leanne · New reply October 20, 2009
- 2 replies
- My son was diagnosed in 2007 with FMF. He has since been on colchicine liquid since he wouldn't swallow the tablets. He is now 6 years old. Has not really had any fevers since other than some strep throats/ear ...
All 9 discussions...
TRAPS
Discussion and support for everyone enrolled in a TRAPS study at the NIH and their family members.
Is there anyone out there taking Annikinra and has it helped???
- By Kare · New reply September 6, 2009
- 12 replies
- My son was diagnosed with TRAPS at almost four years of age. He is now six and living a drastically improved life, since he started Etanercept. That being said, he has been hospitalized three times in ...
All 14 discussions...
HIDS
Discussion and support for everyone enrolled in a HIDS study at the NIH and their family members.
Welcome
- By ChildrensInn1 · New reply September 13, 2009
- 2 replies
- Dear parents, caregivers and Children's Inn residents: Welcome to the Periodic Fever Syndrome- HIDS discussion group! By Inn resident demand, we can now help you make connections to other families who ...
All 3 discussions...
NOMID
Discussion and support for everyone enrolled in a NOMID study at the NIH and their family members.
Hello
- By FrankandShannon · Posted November 30, 2006
- 0 replies
- Hi, We will be coming to the Inn/NIH in January for our 17 month old. We would like to talk to other families for support. Thanks, Frank and Shannon Parents to Ashleigh ...
All 2 discussions...
PFAPA
Discussion and support for everyone enrolled in a PFAPA study at the NIH and their family members.
How much more does she need to go through to get a diagnosis?
- By AnnaLeeR · New reply September 30, 2009
- 1 reply
- I have a 23 month old daughter, who has fevers every 2 weeks that average out into the 105's. She seems to have a lot of stomach pain or even leg??? With all her dr visits and hospital stays,no joint ...
All 2 discussions...
Childhood-onset schizophrenia
Discussion and support for everyone enrolled in a childhood-onset schizophrenia study at the NIH and their family members.
Meet/Chat with Parents of COS Children
- By Ed · New reply August 15, 2009
- 2 replies
- We would like to meet/chat with other parents who have had a child in the NIMH childhood-onset schizophrenia clinical study ...
All 4 discussions...
Other
General
TCI discussions, talk and chit-chat unrelated to disease groups.
Today at the INN: November 19
- By BKuz · Posted yesterday at 10:04 am
- 0 replies
- Today at the INN... Spanish Speaking Community Meeting 4:30PM Grocery Store Run 6:30PM ExploreINN 7PM English Class 7PM Hope to see you there! To see what's going on the rest of the month check out the ...
All 188 discussions...
Alumni
Discussions and support for past TCI residents and their family members.
More Caribbean Heritage Month Facts
- By dmlw1 · Posted June 20, 2009
- 0 replies
- Entertainers of Caribbean Heritage: Wyclef Jean- Haiti- DOB 10/17/72 Best Known for: Hip-Hop Superstar. One of the most important personalities in Hip-Hop music, He first entered the spotlight in 1993 ...
