Discussion topics

Cancer

Brain tumors

Discussion and support for everyone enrolled in a brain tumor study at the NIH and their family members.

want to find someone with the same tumor as our

anthony1
  • By anthony1 · New reply May 18, 2007
  • 1 reply
  • I was wondering if your child had the same diagnosed as my dauther and if so can we talk about it. Brainstem glioma ...

All 3 discussions...

Leukemia

Discussion and support for everyone enrolled in a leukemia study at the NIH and their family members.

Welcome

ChildrensInn1
  • By ChildrensInn1 · Posted March 16, 2006
  • 0 replies
  • Dear parents, caregivers and Children's Inn residents: Welcome to the Leukemia discussion group! By Inn resident demand, we can now help you make connections to other families who also have a child with ...

All discussions...

Sarcoma

Discussion and support for everyone enrolled in a sarcoma study at the NIH and their family members.

Lets start connecting

ChildrensInn1
  • By ChildrensInn1 · Posted April 12, 2006
  • 0 replies
  • hello I see we have a few member signed up that are interested in Sarcoma's. Lets get this discussion started. For those who have registered, are you currently being treated at The NIH and visiting The ...

All 2 discussions...

Periodic fever syndromes

Familial Mediterranean fever (FMF)

Discussion and support for everyone enrolled in a familial Mediterranean fever (FMF) study at the NIH and their family members.

Sarah has protein in her urine as well as blood-anxiety ridden Mom

rybrans07
  • By rybrans07 · New reply November 19, 2008
  • 7 replies
  • Today I received the phone call none of us want to hear. Sarah's doctor called to tell me that her urine was positive for proteins and blood. He didn't say much else except that he was going to discuss ...

All 8 discussions...

TRAPS

Discussion and support for everyone enrolled in a TRAPS study at the NIH and their family members.

What Works for TRAPS

Momofthree
  • By Momofthree · Posted August 21, 2008
  • 0 replies
  • I'll spare a lot of details. My son (18 months) was just DX with TRAPS. The MD's here are shocked and said they will start sending us to speacailst to "treat" this disease. I am sure my other two boys ...

All 11 discussions...

HIDS

Discussion and support for everyone enrolled in a HIDS study at the NIH and their family members.

Looking for others

mommymanda
  • By mommymanda · New reply November 17, 2008
  • 6 replies
  • We are looking for other families dealing with HIDS. We have an almost 3 yr old son who was diagnosed at about 19 months. We have been going to the NIH since April 2007 about every 3 months. We have met ...

All 2 discussions...

NOMID

Discussion and support for everyone enrolled in a NOMID study at the NIH and their family members.

Hello

FrankandShannon
  • By FrankandShannon · Posted November 30, 2006
  • 0 replies
  • Hi, We will be coming to the Inn/NIH in January for our 17 month old. We would like to talk to other families for support. Thanks, Frank and Shannon Parents to Ashleigh ...

All 2 discussions...

PFAPA

Discussion and support for everyone enrolled in a PFAPA study at the NIH and their family members.

My 5 1/2 year old son

Map
  • By Map · New reply November 21, 2008
  • 1 reply
  • Hi, I have a 5 1/2 year old son who was born three weeks early and has had therapy on and off since he was born due to Hypotonia and Coordination Disorder. He has had fevers on and off since he was 2 ...

All discussions...

Childhood-onset schizophrenia

Discussion and support for everyone enrolled in a childhood-onset schizophrenia study at the NIH and their family members.

Meet/Chat with Parents of COS Children

Ed
  • By Ed · New reply August 2, 2008
  • 1 reply
  • We would like to meet/chat with other parents who have had a child in the NIMH childhood-onset schizophrenia clinical study ...

All 3 discussions...

Other

General

TCI discussions, talk and chit-chat unrelated to disease groups.

Join Educate Inn tomorrow for Thanksgiving Poems

BKuz
  • By BKuz · Posted November 25, 2008
  • 0 replies
  • I hope you can join us today, Weds Nov. 26, up in the Bistro area at 7pm as we come together to try writing new types of poems about the things we are most thankful for. There will also be fun thanksgiving ...

All 28 discussions...

Alumni

Discussions and support for past TCI residents and their family members.

More Native American Heritage Month Facts

dmlw1
  • By dmlw1 · Posted November 21, 2008
  • 0 replies
  • Did you know: that Senator Ben Nighthorse Campbell was captain of the US Olympic judo team in 1964 and was a three-time U.S. judo champion. that there are still over 200 Indian and Eskimo tribes in the ...

All 8 discussions...

Search

Find information and discussion about health topics in 304,234 posts by members like yourself. Learn more...

Join

Join safe, secure groups sponsored by trusted organizations that care about your health. Learn more...

Connect

Connect with 80,769 members and make friends who share your interests, learn about conditions and treatments, find support and more. Learn more...

You