Cancer
Discussion and support for everyone enrolled in a brain tumor study at the NIH and their family members.
- By anthony1 · New reply May 18, 2007
- 1 reply
- I was wondering if your child had the same diagnosed as my dauther and if so can we talk about it. Brainstem glioma ...
Discussion and support for everyone enrolled in a leukemia study at the NIH and their family members.
- By ChildrensInn1 · Posted March 16, 2006
- 0 replies
- Dear parents, caregivers and Children's Inn residents: Welcome to the Leukemia discussion group! By Inn resident demand, we can now help you make connections to other families who also have a child with ...
Discussion and support for everyone enrolled in a sarcoma study at the NIH and their family members.
- By ChildrensInn1 · Posted April 12, 2006
- 0 replies
- hello I see we have a few member signed up that are interested in Sarcoma's. Lets get this discussion started. For those who have registered, are you currently being treated at The NIH and visiting The ...
Periodic fever syndromes
Discussion and support for everyone enrolled in a familial Mediterranean fever (FMF) study at the NIH and their family members.
- By rybrans07 · New reply November 19, 2008
- 7 replies
- Today I received the phone call none of us want to hear. Sarah's doctor called to tell me that her urine was positive for proteins and blood. He didn't say much else except that he was going to discuss ...
Discussion and support for everyone enrolled in a TRAPS study at the NIH and their family members.
- By Momofthree · Posted August 21, 2008
- 0 replies
- I'll spare a lot of details. My son (18 months) was just DX with TRAPS. The MD's here are shocked and said they will start sending us to speacailst to "treat" this disease. I am sure my other two boys ...
Discussion and support for everyone enrolled in a HIDS study at the NIH and their family members.
- By mommymanda · New reply November 17, 2008
- 6 replies
- We are looking for other families dealing with HIDS. We have an almost 3 yr old son who was diagnosed at about 19 months. We have been going to the NIH since April 2007 about every 3 months. We have met ...
Discussion and support for everyone enrolled in a NOMID study at the NIH and their family members.
- By FrankandShannon · Posted November 30, 2006
- 0 replies
- Hi, We will be coming to the Inn/NIH in January for our 17 month old. We would like to talk to other families for support. Thanks, Frank and Shannon Parents to Ashleigh ...
Discussion and support for everyone enrolled in a PFAPA study at the NIH and their family members.
- By Map · New reply November 21, 2008
- 1 reply
- Hi, I have a 5 1/2 year old son who was born three weeks early and has had therapy on and off since he was born due to Hypotonia and Coordination Disorder. He has had fevers on and off since he was 2 ...
Discussion and support for everyone enrolled in a childhood-onset schizophrenia study at the NIH and their family members.
- By Ed · New reply August 2, 2008
- 1 reply
- We would like to meet/chat with other parents who have had a child in the NIMH childhood-onset schizophrenia clinical study ...
Other
TCI discussions, talk and chit-chat unrelated to disease groups.
- By BKuz · Posted November 25, 2008
- 0 replies
- I hope you can join us today, Weds Nov. 26, up in the Bistro area at 7pm as we come together to try writing new types of poems about the things we are most thankful for. There will also be fun thanksgiving ...
Discussions and support for past TCI residents and their family members.
- By dmlw1 · Posted November 21, 2008
- 0 replies
- Did you know: that Senator Ben Nighthorse Campbell was captain of the US Olympic judo team in 1964 and was a three-time U.S. judo champion. that there are still over 200 Indian and Eskimo tribes in the ...
