New
- By BKuz · Posted November 25, 2008
- Journal · 0 replies
- I hope you can join us today, Weds Nov. 26, up in the Bistro area at 7pm as we come together to try writing new types of poems about the things we are most thankful for. There will also be fun thanksgiving ...
- By BKuz · Posted November 25, 2008
- Discussion in General · 0 replies
- I hope you can join us today, Weds Nov. 26, up in the Bistro area at 7pm as we come together to try writing new types of poems about the things we are most thankful for. There will also be fun thanksgiving ...
- By Jordensmom · Posted November 24, 2008
- Journal · 0 replies
- Wow, the last few months have been so unbeleivable. In June Doctor Goldbach-Mansky increased Jordens dose of colchicine by .3 mg/day, and the difference is incredible. Jordens last HIGH fever was at the ...
- By bonn250 · Posted November 22, 2008
- Journal · 4 replies
- my 7 year old daughter has had fevers every4-6 weeks since she was 4.5 years old she also has swollen lymph nodes,mouth ulcers,rashes,& joint pain. This last 7-10 days. The Drs. think it might be hibernian ...
- By dmlw1 · Posted November 21, 2008
- Discussion in Alumni · 0 replies
- Did you know: that Senator Ben Nighthorse Campbell was captain of the US Olympic judo team in 1964 and was a three-time U.S. judo champion. that there are still over 200 Indian and Eskimo tribes in the ...
- By dmlw1 · Posted November 21, 2008
- Discussion in General · 0 replies
- Did you know: that Senator Ben Nighthorse Campbell was captain of the US Olympic judo team in 1964 and was a three-time U.S. judo champion. that there are still over 200 Indian and Eskimo tribes in the ...
- By Map · Posted November 21, 2008
- Discussion in PFAPA · 1 reply
- Hi, I have a 5 1/2 year old son who was born three weeks early and has had therapy on and off since he was born due to Hypotonia and Coordination Disorder. He has had fevers on and off since he was 2 ...
- By rybrans07 · Posted November 17, 2008
- Discussion in Familial Mediterranean fever (FMF) · 7 replies
- Today I received the phone call none of us want to hear. Sarah's doctor called to tell me that her urine was positive for proteins and blood. He didn't say much else except that he was going to discuss ...
- By rybrans07 · Posted November 17, 2008
- Discussion in Familial Mediterranean fever (FMF) · 0 replies
- Hi my name is Kim and my daughter Sarah has FMF. I read on someone else's journal that there are Conventions for families dealing with Periodic Fever Syndromes to get together for the weekend. This journal ...
- By rybrans07 · Posted November 17, 2008
- Discussion in Familial Mediterranean fever (FMF) · 0 replies
- My daughter Sarah is a patient at NIH as well as Children's Hospital of Philadelphia. After 2 long years of sickness she was finally diagnosed with FMF in April 2006 by the Doctors at CHOP (Children's ...
- By CanadaNuse · Posted November 17, 2008
- Journal · 0 replies
- A lot has been happening on the home front. Ash's medical team including mental health are changing her dosage of medications, times given etc. In hopes that the current combination of medications will ...
- By BKuz · Posted November 17, 2008
- Journal · 0 replies
- Don't miss this wonderful opportunity to enjoy hands on activities and cool demonstrations with Scientist Mr. Freiland this Thursday, Nov. 20th at 7:00pm in The Art Room! You've never been to a Science ...
- By BKuz · Posted November 17, 2008
- Discussion in General · 0 replies
- Don't miss this wonderful opportunity to enjoy hands on activities and cool demonstrations with Scientist Mr. Freiland this Thursday, Nov. 20th at 7:00pm in The Art Room! You've never been to a Science ...
- By rybrans07 · Posted November 15, 2008
- Journal · 5 replies
- Hi my name is Kim and my daughter Sarah has FMF. I read on someone else's journal that there are Conventions for families dealing with Periodic Fever Syndromes to get together for the weekend. This journal ...
- By dmlw1 · Posted November 15, 2008
- Discussion in Alumni · 0 replies
- DID YOU KNOW: that during World War I, the language of the Choctaw Indians was used to encode messages, but that in World War II, the language of the Navajo Indians was used. The Navajo language was considered ...
- By dmlw1 · Posted November 15, 2008
- Discussion in General · 0 replies
- DID YOU KNOW: that during World War I, the language of the Choctaw Indians was used to encode messages, but that in World War II, the language of the Navajo Indians was used. The Navajo language was considered ...
- By rybrans07 · Posted November 14, 2008
- Journal · 0 replies
- My daughter Sarah is a patient at NIH as well as Children's Hospital of Philadelphia. After 2 long years of sickness she was finally diagnosed with FMF in April 2006 by the Doctors at CHOP (Children's ...
- By BKuz · Posted November 10, 2008
- Journal · 0 replies
- Join us this Friday Nov. 14th at 3:30 pm on an exciting field trip to The Maryland Science Center in Baltimore's beautiful Inner Harbor Space is limited so please sign up at the welcome desk ASAP! Looking ...
- By BKuz · Posted November 10, 2008
- Discussion in General · 0 replies
- Join us this Friday Nov. 14th at 3:30 pm on an exciting field trip to The Maryland Science Center in Baltimore's beautiful Inner Harbor Space is limited so please sign up at the welcome desk ASAP! Looking ...
- By dmlw1 · Posted November 6, 2008
- Discussion in Alumni · 0 replies
- Hi Everyone: We are celebrating Native American Heritage Month at the Children's Inn! Over the next couple of weeks, I'll be posting "Fun Facts" about Native American/Eskimo Heritage. Here's this week's ...
