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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Active journals
New feature - additional reply notifications
- By Walter · New reply May 9, 2008
- 19 replies
- Hello everyone. We just added a new feature to help you follow the conversations that you are participating in. You will now get a notification whenever someone replies directly to one of your replies ...
New feature - See what you've replied to
- By Walter · New reply April 30, 2008
- 26 replies
- Hello everyone. We just added a feature that many of you have requested - a list of all of the posts that you have replied to. To get to your list, all you need to do is: 1. Sign in 2. Click "Me" in the ...
Paraganglioma
- By iamflasunshine · Posted April 28, 2008
- 0 replies
- I have a grand daughter that had bad sweating. We didn't know why?? She lived in Vt and would visit us in the summer in Fl so we thought it was our humidity. She had been wearing the same size cloths ...
Educate INN- New Education Program at The Children's Inn
- By BKuz · Posted April 21, 2008
- 0 replies
- Hi, my name is Bridget Kuzma and I am the Education Program Coordinator at The Children's Inn. In the past month we have started a few new education programs to help keep everybody learning while they ...
Programs and Activities 4/21-4/27
- By ManagerofFun · Posted April 20, 2008
- 0 replies
- Monday 4/21: 4:30-6:00PM: Spring Carnival Rosemary, one of our TCI volunteers is hosting a Spring Carnival, full of food, fun and games! This will be held in the Bistro. Come be a part of the action ...
Hello!
- By ManagerofFun · Posted April 20, 2008
- 0 replies
- Hi Inspire Network! My name is Melissa Dutcher and I'm the Family Program Coordinator at the Children's Inn at NIH. Each week, I will be posting what fun and exciting events and activities I have planned ...
Changes that you have requested are on the way
- By Beth · New reply April 7, 2008
- 15 replies
- Hello everyone. We've been hard at work on many of the great suggestions that you've sent us. This week we've been cooking up some changes to the group home page, and hope to make them public very soon ...
Welcome from TeamInspire!
- By TeamInspire · New reply April 7, 2008
- 35 replies
- Hello, old friends and new. Today is a big day for us! We have made numerous improvements to your community, most that were suggestions from you. As you can see the site is very different then before ...
Looking for CAH Families
- By cahmom · New reply March 31, 2008
- 1 reply
- I have a 7 year old daughter with Congenital Adrenal Hyperplasia. My daughter has Non Salt-Wasting CAH. She is overall pretty healthy despite having to deal with hunger and weight issues every so often ...
BBS
- By nelbamr1 · Posted February 12, 2008
- 0 replies
- HI I'M A MOTHER OF A 10 YEARS OLD BOY WITH BBS. FOR US WAS SO DIFFICULT WHEN WE KNOW THAT HE COULD HAVE THE CONDITION, BUT FOR MY HUSBAND IS MORE DIFFICULT HE CAN'T ACCEPT THAT OUR CHILD HAVE A CONDITION ...
one year without periodic fevers
- By althea · New reply October 24, 2007
- 10 replies
- Eric has enjoyed 12 months without any kind of periodic fever symptoms. He’s also been taking one daily Fish Oil capsule for 11 of those months (since about Labor Day 2006). He takes a daily capsule that ...
No Fevers for Seven Months and Counting...........
- By althea · Posted March 9, 2007
- 0 replies
- It's more than 7 months now since Eric's last TRAPS fever. He doesn't take any type of medicine when he's not having a TRAPS fever flare, but he has been taking a daily Fish Oil capsule since mid-September ...
How we dealt with TRAPS and the schools
- By althea · Posted November 4, 2006
- 0 replies
- Once we had a diagnosis that legitimized my son's symptoms and the frequency and duration of them, we had to convince his school that he qualified for some protection under the Federal Law regarding the ...
ERIC
- By althea · Posted October 13, 2006
- 0 replies
- My son Eric is currently 16 years old. He was diagnosed with TRAPS mutation R92Q in 2003. When he was 5 months old he was hospitalized for 5 days with a 105 degree fever that came and left with no known ...
Kiara
- By Vanessa · Posted June 25, 2006
- 0 replies
- kiara started fevering at 20 months her first initial fever was for almost 20 days before a break in it and then another break , We are at NIH trying to get diagnosis and help for her. We will be back ...
Thanks for the dinner it was great!!
- By bubblesbrew · Posted April 17, 2006
- 0 replies
- Hi Lori This is Jennifer & Jacob Brew. I just registered with the site and was so thrilled to find you here!! Jake enjoyed his spaghetti and meatballs sooooo very much and was even kind enough to share ...
TRAPS
- By birdnbee · New reply April 16, 2006
- 1 reply
- My husband and my son have TRAPS. There are times when I feel trapped by their TRAPS ...
Hello to Inn families!
- By mandi · Posted April 10, 2006
- 0 replies
- Hello TCI families! As most of you know I've left my full-time position at The Inn, but I am still working now and again on weekends. I would love to hear from you through this web site. I think of you ...
