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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Active journals
Explore Inn: Electric Circuits/ Circuitos Eléctricos!
- By BKuz · Posted January 5, 2009
- 0 replies
- Fun activity learning about how Electric Circuits work! Explore Inn: Electric Circuits Tuesday Jan. 6th 5:00pm by the bistro Circuitos Eléctricos martes 6 de enero 5:00pm cerca del bistro ...
No Learn Inn on Dec. 30th
- By BKuz · Posted December 30, 2008
- 0 replies
- FYI- there will not be a Learn Inn on Dec. 30th Have a Happy New Years and I hope to see you next week! Bridget ...
Trip to the National Christmas Tree on Monday
- By BKuz · Posted December 24, 2008
- 0 replies
- Hope you can join us: Monday Dec. 29th 4:00pm Adventura Viaje a árbol de Navidad nacional Lunes 29 de diciembre 4:00 PM Please sign up at the front desk ASAP :)!! It is a beautiful tree in DC right by ...
Periodic Fever Syndrome Conventions?
- By rybrans07 · New reply December 18, 2008
- 6 replies
- Hi my name is Kim and my daughter Sarah has FMF. I read on someone else's journal that there are Conventions for families dealing with Periodic Fever Syndromes to get together for the weekend. This journal ...
Peace to all
- By spiritual-wellness · Posted December 18, 2008
- 0 replies
- During this holiday season, May hope, peace & joy be with you all. Warmly, Amy Rev. Amy Lewis Spiritual Wellness Coordinator The Children's Inn at NIH 301.443.6671 ...
Why are we here?
- By Brian · New reply December 16, 2008
- 135 replies
- When we started this community, each of us faced important health issues in our lives. Some of us have family members with medical conditions. Many of us have medical conditions of our own. All of us ...
Learn Inn today
- By BKuz · Posted December 16, 2008
- 0 replies
- 3:30-4:30pm Learn Inn will be early today! Hope to see you there :) Bridget ...
Feeling more lost then ever! with medical and education
- By CanadaNuse · New reply December 13, 2008
- 3 replies
- A lot has been happening on the home front. Ash's medical team including mental health are changing her dosage of medications, times given etc. In hopes that the current combination of medications will ...
Explore Inn: Story time, cocoa, and crafts
- By BKuz · Posted December 8, 2008
- 0 replies
- Wednesday Dec.10th 4:30pm in the Bistro: What is winter like where you are from? Come share and learn about the season we are in! Stay warm with cocoa while you… Listen to Wintery stories Talk about your ...
Educate Inn: Holiday Activities
- By BKuz · Posted December 3, 2008
- 0 replies
- Join us in the Bistro for Holiday fun! We will be building gumdrop bridges, solving holiday puzzles, and doing simple crafts that make wonderful gifts! Tomorrow- Thursday Dec. 4th 7:00pm Hope to see you ...
Join Educate Inn for Thanksgiving Poems
- By BKuz · Posted November 25, 2008
- 0 replies
- I hope you can join us today, Weds Nov. 26, up in the Bistro area at 7pm as we come together to try writing new types of poems about the things we are most thankful for. There will also be fun thanksgiving ...
Still going strong!
- By Jordensmom · Posted November 24, 2008
- 0 replies
- Wow, the last few months have been so unbeleivable. In June Doctor Goldbach-Mansky increased Jordens dose of colchicine by .3 mg/day, and the difference is incredible. Jordens last HIGH fever was at the ...
Its been a while since I last posted!
- By CanadaNuse · New reply November 17, 2008
- 2 replies
- There has been alot going on, since our last post, and honestly I don't know where to start. We had over TEN doctor visits and still not closer to anything. But we keep on getting more clinical DX for ...
Explore Inn: Fun Science Experiments
- By BKuz · Posted November 17, 2008
- 0 replies
- Don't miss this wonderful opportunity to enjoy hands on activities and cool demonstrations with Scientist Mr. Freiland this Thursday, Nov. 20th at 7:00pm in The Art Room! You've never been to a Science ...
FMF Convention/support
- By ltodaro · New reply November 14, 2008
- 2 replies
- Hi everyone. I hope other people start sending messages, this is such a great opportunity for us to "meet"!!!! Sometimes it's so frustrating to feel like you are all alone and no one can/will understand ...
Getting better!
- By Jordensmom · New reply November 13, 2008
- 2 replies
- Well what a painful journey. But I guess with pain and frustration comes wisdom and discovery. Jorden has been taking Colchicine for 8 months. the first 6 months we did not see much of a change, but there ...
Adventure Inn: Baltimore Inner Harbor and The Maryland Science Center
- By BKuz · Posted November 10, 2008
- 0 replies
- Join us this Friday Nov. 14th at 3:30 pm on an exciting field trip to The Maryland Science Center in Baltimore's beautiful Inner Harbor Space is limited so please sign up at the welcome desk ASAP! Looking ...
Educate INN November- Baltimore, science, and flexible one-on-one tutoring
- By BKuz · Posted October 28, 2008
- 0 replies
- November is going to be a month in Educate INN you don't want to miss! Please check out the fun schedule below and email me at kuzmab@mail.nih.gov if you would like a tutor to give one of your children ...
Article about the Authors visiting The Inn
- By BKuz · Posted October 14, 2008
- 0 replies
- This is a wonderful story about the authors who will be at The Inn Monday to speak about "It's Good to Know a Miracle: Dani's Story." Parents Pen a 'Survival Guide' to Leukemia http://www.washingtonpost.com ...
Meet the Author Event Monday Oct. 20th
- By BKuz · Posted October 14, 2008
- 0 replies
- Please join us for a Meet th Monday October 20th at 5:00pm Meet the Authors of the book “It’s Good to Know a Miracle: Dani’s Story”. This story is a journal of one family’s struggle with leukemia, written ...
