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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
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Active journals
New feature - profile completeness gauge
- By Tasha · New reply April 14, 2009
- 14 replies
- Greetings from TeamInspire! I'm your friendly neighborhood designer, here to tell you about some new features. You might notice that today we revamped your member homepage - https://www.inspire.com/member-home.pl ...
"Life with "VHL"
- By teschtruth · New reply April 4, 2009
- 3 replies
- Yes Living with VHL can be challenging at times. I just try to stay positive, and yes I have even lost some family members from Vhl. I look at it like this, there are many other diseases out there that ...
Muckle Wells Syndrome
- By LishandRod31 · Posted April 1, 2009
- 0 replies
- My 2yr old son was recently diagnosed with Muckle Wells Syndrome. I would like to speak with anyone who has any personal or professional experience with this disease. Please contact me. amathias@ojrsd.com ...
Sarah and FMF
- By rybrans07 · New reply March 24, 2009
- 2 replies
- My daughter Sarah is a patient at NIH as well as Children's Hospital of Philadelphia. After 2 long years of sickness she was finally diagnosed with FMF in April 2006 by the Doctors at CHOP (Children's ...
Learn to BEAT BOX!! At Teen Night Monday March 23rd
- By BKuz · Posted March 20, 2009
- 0 replies
- Beat Boxing with Chris Bacon - one of Strathmore's resident artists will be joining us for a fun night of beat boxing. Chris will give us a show of his beat boxing talent and then share some tips and ...
ExploreINN Music Class March 19th at 7:00pm
- By BKuz · Posted March 11, 2009
- 0 replies
- Join us Thursday March 19th 7- 8:00pm for a music class taught by guest music instructor Debbie O'Neill Have fun with friends learning about and playing music! See you there, Bridget ...
Learn Inn Study Hall Schedule for March
- By BKuz · Posted March 11, 2009
- 0 replies
- Friday March 13th 4- 5:00pm in the E dining Room Monday March 16th 5- 6:00pm in the E dining Room Tuesday March 24th 5- 6:00pm in the Art Room Tuesday March 31st 5- 6:00pm in the Art Room Make homework ...
Our New Reflection Space at The Inn
- By spiritual-wellness · Posted February 24, 2009
- 0 replies
- Hey Friends, If you haven't seen or heard about it yet, we have a new room at The Inn called the Reflection Space! It is located on the first floor main hallway. The Reflection Space is a special place ...
Explore Inn Thursday Feb. 19th
- By BKuz · Posted February 18, 2009
- 0 replies
- Join Us for our First Culture Class celebrating African American History month: Watch exciting videos about the cool animals and places in Africa Work together to Fill in the blanks of the "Fabulous Firsts ...
The Children's Inn Book Club
- By BKuz · Posted February 17, 2009
- 0 replies
- We are going to be starting a new book club at The Inn! One for parents and for kids! Please respond to the following questions if you or a family member is interested 1) Would you like to be part of ...
Ltodaro
- By ltodaro · New reply February 14, 2009
- 1 reply
- Hello. I am so excited about the opportuntiy to talk with other families who have children suffering with Familial Meditterean Fever! Our third son, Nino(7) has FMF, and is a patient at The National Institues ...
2009 Teen Retreats at The Children's Inn at NIH
- By spiritual-wellness · Posted February 12, 2009
- 0 replies
- June 22-23 & July 27-28 Join us for a Teen Retreat this summer! If you are scheduled to be at NIH during either of the retreat dates, you'll have a super opportunity for fun, new friends, games, food ...
Adventure Inn Update for Friday Feb. 13th
- By BKuz · Posted February 11, 2009
- 0 replies
- This Friday's field trip changed! Instead of going to the natural History museum we are going to see a play at Imagination stage (see posting below). Deeee-licious dinner and desert to follow the show ...
Adventure Inn Field trip Friday Feb. 13th
- By BKuz · Posted February 9, 2009
- 0 replies
- We will be going to see a fun hip-hop adaptation of Zomo the Rabbit, an African tale. This show will be a lot of fun for the whole family and is very near by at Imagination Stage in Bethesda. Maggiano's ...
Learn Inn Feb. 10th at 5:00pm with Mr. E
- By BKuz · Posted February 9, 2009
- 0 replies
- Join us Tuesday Feb. 10th at 5:00 pm by the bistro for some fun learning about about using microscopes with science teacher, Mr. E! Bridget ...
It's been a while since I last posted
- By CanadaNuse · New reply January 29, 2009
- 2 replies
- Well the year is soon to come to the end, and new year will bring us hope joy, and laughter. We have a lot of things to due before June 2009, that's when Provincial Summer Games are being held in St ...
worried mom
- By bonn250 · New reply January 27, 2009
- 12 replies
- my 7 year old daughter has had fevers every4-6 weeks since she was 4.5 years old she also has swollen lymph nodes,mouth ulcers,rashes,& joint pain. This last 7-10 days. The Drs. think it might be hibernian ...
Explore Inn: Learn and Play a new game today at 5:00pm
- By BKuz · Posted January 12, 2009
- 0 replies
- Come learn how to play a fun and simple brain teaser game today in the Bistro area at 5:00pm We'll learn how to play together and then have a mini tournament! I hope you can be there, Bridget ...
New group in Inspire: The National Body Challenge
- By Brian · New reply January 12, 2009
- 25 replies
- I am pleased to announce that today we added a new group to Inspire: The National Body Challenge. nationalbodychallenge We created this group in partnership with Discovery Health. The group focuses on ...
Pheo
- By iamflasunshine · New reply January 11, 2009
- 1 reply
- Amber is doing fine after having a large Paraganglioma tumor removed last Dec. Her Father has just found out that he has the same SDHB gene that she has. Since my son has it now is my turn to go get tested ...
