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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Active journals
returning to the Inn
- By Mom_of_SAPHO_child · New reply July 13, 2009
- 10 replies
- Wow, how time flies. Only 3 and a half weeks and we will be back at the NIH again. It seems like we were there only a little while ago, can't believe that was December. We get there lunch time Saturday ...
child onset schizophrenia
- By christine3 · New reply July 13, 2009
- 3 replies
- Greetings, I am interested to talk with others about the subject of schizophrenia/bipolar. I am here with my husband Matthew, our teen daughter was admitted to the unit on Monday 19th March. we are from ...
Again its' been a while since I last posted
- By CanadaNuse · Posted July 4, 2009
- 0 replies
- A lot has happened since we last posted. Current Up date from NIH isn't going to be clear cut and to the point. All it say's that my daughter Ashley case is more complex then they thought! Yesterday July ...
Share your story via video!
- By TeamInspire · New reply June 23, 2009
- 28 replies
- Sometimes the most powerful message each of us can share is our personal story -- our own experience. With upcoming healthcare legislation pending, one way we can be advocates is to share these stories ...
TE AMO BRAZIL GORDILLO
- By FightingFox · Posted June 23, 2009
- 0 replies
- Beacuse of this site i learned so much just form hearing form others. I feel like i did when i was at the inn ever one is there to help form all over form the states to japan every one. I want to thank ...
Support your group and raise awareness with badges
- By Walter · New reply June 22, 2009
- 39 replies
- Hi everyone. We added a new feature today that you can use to support your groups and the organizations that sponsor them, and get the word out about the causes that are important to you. If you visit ...
Follow Inspire on Twitter and Facebook!
- By TeamInspire · New reply June 12, 2009
- 32 replies
- We're happy to announce that you can now stay in touch with what's happening at Inspire by following us on both Twitter and Facebook. While Inspire communities are still the best places to connect with ...
Perfection
- By JLH1 · New reply June 9, 2009
- 1 reply
- The following is another "post" I copied from my daughter's hospital CarePage (www.carepages.com AshleyHendrick). I originally wrote this last December, but was reminded of it today while thinking about ...
You're Invited to the 2009 Teen Retreats at The Children's Inn at NIH
- By spiritual-wellness · Posted June 9, 2009
- 0 replies
- It's summer! It's time to have some fun! We hope that you will join us for our 2009 Teen Retreats on Monday/Tuesday, June 22-23 & July 28-29 at The Children's Inn at NIH. The Teen Retreats are for everyone ...
Guestbooks - An exciting addition to Inspire
- By TeamInspire · New reply June 9, 2009
- 35 replies
- Hello everyone, We're writing to let you know about a great new feature we'll be adding to Inspire in the very near future: guestbooks. This is a feature that many of you have requested, and we're very ...
God and suffering
- By JLH1 · New reply June 3, 2009
- 2 replies
- I wrote the following "post" for my daughter's CarePage site while thinking about why so many children are forced to deal with illnesses like cancer (www.CarePages.com AshleyHendrick). It has been a while ...
Been a great 5 months!
- By afields90 · Posted June 2, 2009
- 0 replies
- Dylan was eventually home bound tutored for the remaining of the year since he had missed 47 days of school and at the beginning of March he was so far behind that summer school looked like the only option ...
Living With TRAPS
- By marylouise · New reply May 23, 2009
- 2 replies
- Hi Everyone, I am a mother of two ault children who have struggled with TRAPS since the ages of 16 and 20. It took years to get a diagnosis. They were both diagnosed by genetic testing in 2008. My oldest ...
progress is progress...
- By Jordensmom · New reply May 23, 2009
- 2 replies
- Jorden just had a check up with his pediatrician, then a few days later a follow up with the rheumatologists at UCSF, and in a few days we head back to the NIH. In 6 months, since the new dosage of colchicine ...
Crazy busy
- By Jordensmom · Posted May 23, 2009
- 0 replies
- I wanted to write about our last visit to the NIH just after we returned home, but it didn't happen. THe trip was flustered, they did not give us enough time, since they cooridinated the flights this ...
is it normal?
- By a_powerfully_mind · New reply May 13, 2009
- 11 replies
- I get up at 6 in the mourning to go to school every day and on school night i go to bed at 8:30 since I am all ways so tired. I eat health and i run a mile every day to stay in shape. But when ever i ...
My Life
- By purfectbryonna · New reply May 12, 2009
- 11 replies
- I recently had a baby girl named Mah'Riayh Grayce. Her father died on the way to the hospital...she was born on my birthday so i have always called her mommy's angel..but now i have a child and no friends ...
New feature: video!
- By Brian · New reply May 12, 2009
- 24 replies
- I am pleased to announce that we have updated Inspire to support video. You can now share a video of yourself, videos that you find inspirational or informative, and more. I've included one of myself ...
Moms, you rock!
- By TeamInspire · Posted May 1, 2009
- 0 replies
- Looking for a unique and extraordinary way to say "thank you" to your mom? In honor of Mother's Day, good friend of Inspire Dr. Gwenn (of http://www.PediatricsNow.com and http://www.DrGwennIsIn.com) will ...
Anyone using Arcalyst (rilonacept)?
- By LishandRod31 · Posted April 23, 2009
- 0 replies
- Would like to hear from anyone using this medication. My son was recently diagnosed with Muckle Wells Syndrome and has been prescribed this medication. How is it working for you ...
