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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Active journals
Kids with FMF
- By Mary2 · New reply November 5, 2009
- 12 replies
- Hi everyone, I am a 29 year old mother with a 4 year old son with FMF (Familial Mediterranean Fever) . My husband and I both don’t suffer from FMF, but wish every single day that I had the disease instead ...
Inspire members featured
- By Brian · New reply November 4, 2009
- 29 replies
- Today Massachusetts General Hospital's Proto Magazine published a wonderful profile of nine Inspire members. Each of these stories underscores what we all know to be true -- that Inspire is a special ...
HIDS
- By mommymanda · New reply October 20, 2009
- 8 replies
- Payton is now almost 4 and it seems like he just keeps getting new symptoms. It feels as if he never gets a break! As of right now we are on Kineret injections during episodes for 3 days and also on Humira ...
Daughter diagnosed with TRAPS
- By silky · New reply October 8, 2009
- 9 replies
- My almost 3 year old daughter has been diagnosed with TRAPS R92Q mutation and is being followed by Dr. Kastner ...
My Story- as of 6/20/09
- By hannahmontoya · New reply October 7, 2009
- 6 replies
- I'm your typical 16 year-old girl that has gone through some pretty atypical stuff. If there's anything that I've learned from going through what I've gone through, its that the only way to take life ...
what do i do?
- By a_powerfully_mind · New reply September 29, 2009
- 17 replies
- i just found out that i can't play sports any more and i have nothing to focus all the bad energy on ...
SAPHO
- By teenager13withSapho · New reply September 20, 2009
- 1 reply
- 08/17/09 I was diagnosed with SAPHO finally today. I was sick for 2 days in March and after that my life has gone down hill. I lost 28 pounds,got very bad acne and now I hurt really bad in my ankle and ...
what do i do?
- By a_powerfully_mind · New reply September 16, 2009
- 10 replies
- So on monday i had this sharp pain in my gut were my tumor was when i had cancer i told my dad on wednesday since it was getting worse and i also said that it is harder than it once was. He said to tell ...
problems again!
- By afields90 · New reply September 13, 2009
- 1 reply
- Dylan was doing so well, we had to homebound him from school in March due to he got so ill he missed a whole month of school. For six months he only had one episode. He is now a freshman in high school ...
3 years since last TRAPS fever!
- By althea · New reply September 10, 2009
- 2 replies
- My son is now 19 years old and in his second year of college. He takes no meds. He does still take a Fish Oil capsule daily. No fevers, no TRAPS symptoms now for 3 years!!! He lived in a college dorm ...
New to Inspire
- By Mom_of_SAPHO_child · New reply September 9, 2009
- 5 replies
- Hi there everyone. This is my first journal and I'm really not sure what to write but here goes nothing. I am the mother of a six year old boy that was diagnosed with SAPHO Syndrome in April, 2008. The ...
Blue Mommy Van
- By JLH1 · New reply August 31, 2009
- 1 reply
- Hi friends. I wrote the following essay for our daughter's CarePage website (www.carepages.com key word AshleyHendrick), but decided to post it on this site as well. I am guessing there are many of you ...
Guestbooks are now live!
- By TeamInspire · New reply August 15, 2009
- 6 replies
- Hello everyone, Last week we mentioned that we'd be adding guestbooks to Inspire in the near future, and they are now live! We're very excited about this feature and hope you enjoy it. To check out your ...
Scheduled maintenance this evening
- By TeamInspire · New reply August 12, 2009
- 13 replies
- All, Inspire will be performing database updates this evening starting at 8:00 Eastern. We expect the updates to take no more than 2 hours and the site will be unavailable at this time. We thank you for ...
Nomid
- By mikeandshannon · New reply August 3, 2009
- 1 reply
- My 11 month old daughter and has had quite the journey in her life so far. It started at 3 1/2 weeks when she was admitted to the hospital for failure to thrive. After numerous tests,it was determined ...
Time to return but torn up about leaving my Mom in ICU
- By Mom_of_SAPHO_child · Posted July 27, 2009
- 0 replies
- Here I am 5 days before we have to leave to take our son back to the NIH and my Mom is in ICU. I am so upset about having to leave her but I don't have a choice. I have nothing packed, no shopping done ...
My grandson's birthday
- By Hindustani41 · Posted July 16, 2009
- 0 replies
- Please see the photographs on facebook on my son's page: Sanjaykjindal ...
returning to the Inn
- By Mom_of_SAPHO_child · New reply July 13, 2009
- 10 replies
- Wow, how time flies. Only 3 and a half weeks and we will be back at the NIH again. It seems like we were there only a little while ago, can't believe that was December. We get there lunch time Saturday ...
child onset schizophrenia
- By christine3 · New reply July 13, 2009
- 3 replies
- Greetings, I am interested to talk with others about the subject of schizophrenia/bipolar. I am here with my husband Matthew, our teen daughter was admitted to the unit on Monday 19th March. we are from ...
Again its' been a while since I last posted
- By CanadaNuse · Posted July 4, 2009
- 0 replies
- A lot has happened since we last posted. Current Up date from NIH isn't going to be clear cut and to the point. All it say's that my daughter Ashley case is more complex then they thought! Yesterday July ...
