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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Journals
Changes that you have requested are on the way
- By Beth · Posted March 28, 2008
- 15 replies
- Hello everyone. We've been hard at work on many of the great suggestions that you've sent us. This week we've been cooking up some changes to the group home page, and hope to make them public very soon ...
Welcome from TeamInspire!
- By TeamInspire · Posted March 13, 2008
- 35 replies
- Hello, old friends and new. Today is a big day for us! We have made numerous improvements to your community, most that were suggestions from you. As you can see the site is very different then before ...
Welcome!
- By Brian · Posted March 13, 2008
- 19 replies
- I am pleased to present Inspire 2.0 -- the result of many months of fun and hard work. We have made numerous improvements to your community, the vast majority of which are ideas that came from you! We ...
BBS
- By nelbamr1 · Posted February 12, 2008
- 0 replies
- HI I'M A MOTHER OF A 10 YEARS OLD BOY WITH BBS. FOR US WAS SO DIFFICULT WHEN WE KNOW THAT HE COULD HAVE THE CONDITION, BUT FOR MY HUSBAND IS MORE DIFFICULT HE CAN'T ACCEPT THAT OUR CHILD HAVE A CONDITION ...
Kids with FMF
- By Mary2 · Posted February 11, 2008
- 13 replies
- Hi everyone, I am a 29 year old mother with a 4 year old son with FMF (Familial Mediterranean Fever) . My husband and I both don’t suffer from FMF, but wish every single day that I had the disease instead ...
one year without periodic fevers
- By althea · Posted August 1, 2007
- 10 replies
- Eric has enjoyed 12 months without any kind of periodic fever symptoms. He’s also been taking one daily Fish Oil capsule for 11 of those months (since about Labor Day 2006). He takes a daily capsule that ...
child onset schizophrenia
- By christine3 · Posted March 21, 2007
- 3 replies
- Greetings, I am interested to talk with others about the subject of schizophrenia/bipolar. I am here with my husband Matthew, our teen daughter was admitted to the unit on Monday 19th March. we are from ...
No Fevers for Seven Months and Counting...........
- By althea · Posted March 9, 2007
- 0 replies
- It's more than 7 months now since Eric's last TRAPS fever. He doesn't take any type of medicine when he's not having a TRAPS fever flare, but he has been taking a daily Fish Oil capsule since mid-September ...
FATHER AND SON WITH FCAS /MUCKLE WELLS
- By CHRISALBEA · Posted December 16, 2006
- 7 replies
- MY NAME IS CHRIS ALBEA, I LIVE IN NORTH CAROLINA WITH MY SON CAMERON. ALL MY LIFE I HAVE LIVED WITH THIS DISEASE,AND NEVER KNEW WHAT IT WAS OR THAT IT WAS HEREDITARY,WE HAVE BEEN DIAGNOSED WITH F.C.A.S ...
How we dealt with TRAPS and the schools
- By althea · Posted November 4, 2006
- 0 replies
- Once we had a diagnosis that legitimized my son's symptoms and the frequency and duration of them, we had to convince his school that he qualified for some protection under the Federal Law regarding the ...
ERIC
- By althea · Posted October 13, 2006
- 0 replies
- My son Eric is currently 16 years old. He was diagnosed with TRAPS mutation R92Q in 2003. When he was 5 months old he was hospitalized for 5 days with a 105 degree fever that came and left with no known ...
Kiara
- By Vanessa · Posted June 25, 2006
- 0 replies
- kiara started fevering at 20 months her first initial fever was for almost 20 days before a break in it and then another break , We are at NIH trying to get diagnosis and help for her. We will be back ...
Looking for CAH Families
- By cahmom · Posted June 6, 2006
- 1 reply
- I have a 7 year old daughter with Congenital Adrenal Hyperplasia. My daughter has Non Salt-Wasting CAH. She is overall pretty healthy despite having to deal with hunger and weight issues every so often ...
Thanks for the dinner it was great!!
- By bubblesbrew · Posted April 17, 2006
- 0 replies
- Hi Lori This is Jennifer & Jacob Brew. I just registered with the site and was so thrilled to find you here!! Jake enjoyed his spaghetti and meatballs sooooo very much and was even kind enough to share ...
TRAPS
- By birdnbee · Posted April 14, 2006
- 1 reply
- My husband and my son have TRAPS. There are times when I feel trapped by their TRAPS ...
Hello to Inn families!
- By mandi · Posted April 10, 2006
- 0 replies
- Hello TCI families! As most of you know I've left my full-time position at The Inn, but I am still working now and again on weekends. I would love to hear from you through this web site. I think of you ...
FMF Convention/support
- By ltodaro · Posted March 24, 2006
- 2 replies
- Hi everyone. I hope other people start sending messages, this is such a great opportunity for us to "meet"!!!! Sometimes it's so frustrating to feel like you are all alone and no one can/will understand ...
Ltodaro
- By ltodaro · Posted March 22, 2006
- 1 reply
- Hello. I am so excited about the opportuntiy to talk with other families who have children suffering with Familial Meditterean Fever! Our third son, Nino(7) has FMF, and is a patient at The National Institues ...
