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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Journals
Chapter 2 - My Mom's surgery in 1996
- By motorgirl85 · Posted November 11, 2009
- 4 replies
- This will not be a very detailed recollection because its already been 13 years ago. Two years after my first surgery my Mom came down with a flu that she just didn't seem to be able to overcome. She ...
Chapter 1 - My first surgery in 1994
- By motorgirl85 · Posted November 10, 2009
- 0 replies
- When I was an 8 year-old and going on 9, I remember a time in which I was vomiting a lot and complaining of a stomach ache all the time. So my Mom took me to my pediatrician. After checking my stomach ...
Introduction
- By motorgirl85 · Posted November 10, 2009
- 0 replies
- Hi my name is Jennifer Woods, I would like to say that I'm your typical 24 year old but I'm not due to Carney Complex (also called Carney Syndrome). I would like to share my personal and medical history ...
Inspire members featured
- By Brian · Posted October 28, 2009
- 29 replies
- Today Massachusetts General Hospital's Proto Magazine published a wonderful profile of nine Inspire members. Each of these stories underscores what we all know to be true -- that Inspire is a special ...
what do i do?
- By a_powerfully_mind · Posted September 16, 2009
- 19 replies
- i just found out that i can't play sports any more and i have nothing to focus all the bad energy on ...
problems again!
- By afields90 · Posted September 13, 2009
- 1 reply
- Dylan was doing so well, we had to homebound him from school in March due to he got so ill he missed a whole month of school. For six months he only had one episode. He is now a freshman in high school ...
3 years since last TRAPS fever!
- By althea · Posted September 9, 2009
- 8 replies
- My son is now 19 years old and in his second year of college. He takes no meds. He does still take a Fish Oil capsule daily. No fevers, no TRAPS symptoms now for 3 years!!! He lived in a college dorm ...
Blue Mommy Van
- By JLH1 · Posted August 25, 2009
- 1 reply
- Hi friends. I wrote the following essay for our daughter's CarePage website (www.carepages.com key word AshleyHendrick), but decided to post it on this site as well. I am guessing there are many of you ...
SAPHO
- By teenager13withSapho · Posted August 17, 2009
- 1 reply
- 08/17/09 I was diagnosed with SAPHO finally today. I was sick for 2 days in March and after that my life has gone down hill. I lost 28 pounds,got very bad acne and now I hurt really bad in my ankle and ...
My Story- as of 6/20/09
- By hannahmontoya · Posted August 12, 2009
- 6 replies
- I'm your typical 16 year-old girl that has gone through some pretty atypical stuff. If there's anything that I've learned from going through what I've gone through, its that the only way to take life ...
Scheduled maintenance this evening
- By TeamInspire · Posted August 10, 2009
- 13 replies
- All, Inspire will be performing database updates this evening starting at 8:00 Eastern. We expect the updates to take no more than 2 hours and the site will be unavailable at this time. We thank you for ...
Time to return but torn up about leaving my Mom in ICU
- By Mom_of_SAPHO_child · Posted July 27, 2009
- 0 replies
- Here I am 5 days before we have to leave to take our son back to the NIH and my Mom is in ICU. I am so upset about having to leave her but I don't have a choice. I have nothing packed, no shopping done ...
Nomid
- By mikeandshannon · Posted July 25, 2009
- 1 reply
- My 11 month old daughter and has had quite the journey in her life so far. It started at 3 1/2 weeks when she was admitted to the hospital for failure to thrive. After numerous tests,it was determined ...
My grandson's birthday
- By Hindustani41 · Posted July 16, 2009
- 0 replies
- Please see the photographs on facebook on my son's page: Sanjaykjindal ...
HIDS
- By mommymanda · Posted July 12, 2009
- 8 replies
- Payton is now almost 4 and it seems like he just keeps getting new symptoms. It feels as if he never gets a break! As of right now we are on Kineret injections during episodes for 3 days and also on Humira ...
returning to the Inn
- By Mom_of_SAPHO_child · Posted July 8, 2009
- 10 replies
- Wow, how time flies. Only 3 and a half weeks and we will be back at the NIH again. It seems like we were there only a little while ago, can't believe that was December. We get there lunch time Saturday ...
Again its' been a while since I last posted
- By CanadaNuse · Posted July 4, 2009
- 0 replies
- A lot has happened since we last posted. Current Up date from NIH isn't going to be clear cut and to the point. All it say's that my daughter Ashley case is more complex then they thought! Yesterday July ...
TE AMO BRAZIL GORDILLO
- By FightingFox · Posted June 23, 2009
- 0 replies
- Beacuse of this site i learned so much just form hearing form others. I feel like i did when i was at the inn ever one is there to help form all over form the states to japan every one. I want to thank ...
New to Inspire
- By Mom_of_SAPHO_child · Posted June 16, 2009
- 5 replies
- Hi there everyone. This is my first journal and I'm really not sure what to write but here goes nothing. I am the mother of a six year old boy that was diagnosed with SAPHO Syndrome in April, 2008. The ...
Share your story via video!
- By TeamInspire · Posted June 15, 2009
- 28 replies
- Sometimes the most powerful message each of us can share is our personal story -- our own experience. With upcoming healthcare legislation pending, one way we can be advocates is to share these stories ...
