Active discussions
- By BKuz · Posted November 25, 2008
- In General · 0 replies
- I hope you can join us today, Weds Nov. 26, up in the Bistro area at 7pm as we come together to try writing new types of poems about the things we are most thankful for. There will also be fun thanksgiving ...
- By dmlw1 · Posted November 21, 2008
- In Alumni · 0 replies
- Did you know: that Senator Ben Nighthorse Campbell was captain of the US Olympic judo team in 1964 and was a three-time U.S. judo champion. that there are still over 200 Indian and Eskimo tribes in the ...
- By dmlw1 · Posted November 21, 2008
- In General · 0 replies
- Did you know: that Senator Ben Nighthorse Campbell was captain of the US Olympic judo team in 1964 and was a three-time U.S. judo champion. that there are still over 200 Indian and Eskimo tribes in the ...
- By Map · New reply November 21, 2008
- In PFAPA · 1 reply
- Hi, I have a 5 1/2 year old son who was born three weeks early and has had therapy on and off since he was born due to Hypotonia and Coordination Disorder. He has had fevers on and off since he was 2 ...
- By lroublick · New reply November 21, 2008
- In General · 3 replies
- hi..I am a parent of an 8 year old girl who was diagnosed with ALPS at the age of 2...I have yet to meet or speak with other parents who have a child/children with this disease. Hoping to conect with ...
- By rybrans07 · New reply November 19, 2008
- In Familial Mediterranean fever (FMF) · 7 replies
- Today I received the phone call none of us want to hear. Sarah's doctor called to tell me that her urine was positive for proteins and blood. He didn't say much else except that he was going to discuss ...
- By rybrans07 · Posted November 17, 2008
- In Familial Mediterranean fever (FMF) · 0 replies
- Hi my name is Kim and my daughter Sarah has FMF. I read on someone else's journal that there are Conventions for families dealing with Periodic Fever Syndromes to get together for the weekend. This journal ...
- By rybrans07 · Posted November 17, 2008
- In Familial Mediterranean fever (FMF) · 0 replies
- My daughter Sarah is a patient at NIH as well as Children's Hospital of Philadelphia. After 2 long years of sickness she was finally diagnosed with FMF in April 2006 by the Doctors at CHOP (Children's ...
- By mommymanda · New reply November 17, 2008
- In HIDS · 6 replies
- We are looking for other families dealing with HIDS. We have an almost 3 yr old son who was diagnosed at about 19 months. We have been going to the NIH since April 2007 about every 3 months. We have met ...
- By BKuz · Posted November 17, 2008
- In General · 0 replies
- Don't miss this wonderful opportunity to enjoy hands on activities and cool demonstrations with Scientist Mr. Freiland this Thursday, Nov. 20th at 7:00pm in The Art Room! You've never been to a Science ...
- By dmlw1 · Posted November 15, 2008
- In Alumni · 0 replies
- DID YOU KNOW: that during World War I, the language of the Choctaw Indians was used to encode messages, but that in World War II, the language of the Navajo Indians was used. The Navajo language was considered ...
- By dmlw1 · Posted November 15, 2008
- In General · 0 replies
- DID YOU KNOW: that during World War I, the language of the Choctaw Indians was used to encode messages, but that in World War II, the language of the Navajo Indians was used. The Navajo language was considered ...
- By BKuz · Posted November 10, 2008
- In General · 0 replies
- Join us this Friday Nov. 14th at 3:30 pm on an exciting field trip to The Maryland Science Center in Baltimore's beautiful Inner Harbor Space is limited so please sign up at the welcome desk ASAP! Looking ...
- By dmlw1 · Posted November 6, 2008
- In Alumni · 0 replies
- Hi Everyone: We are celebrating Native American Heritage Month at the Children's Inn! Over the next couple of weeks, I'll be posting "Fun Facts" about Native American/Eskimo Heritage. Here's this week's ...
- By dmlw1 · Posted November 6, 2008
- In General · 0 replies
- Hi Everyone: We are celebrating Native American Heritage Month at the Children's Inn! Over the next couple of weeks, I'll be posting "Fun Facts" about Native American/Eskimo Heritage. Here's this week's ...
- By ManagerofFun · Posted October 29, 2008
- In General · 0 replies
- Week at a Glance: Monday, October 27nd - Sunday, November 2nd Monday: Make Your Own Crayons! 4:30PM Teen Night with Amy 6:30PM Dog Visit Living Room 7PM Tuesday: Halloween Fun with Rosemary in the Bistro ...
- By BKuz · Posted October 28, 2008
- In General · 0 replies
- November is going to be a month in Educate INN you don't want to miss! Please check out the fun schedule below and email me at kuzmab@mail.nih.gov if you would like a tutor to give one of your children ...
- By BarbieDoll · Posted October 11, 2008
- In General · 0 replies
- e and a group are having a fundraiser called “Children Of The Future” for the Children’s Inn at the National Institute Of Health in Bethesda Maryland. I go to the National Institute Of Health twice a ...
- By BKuz · Posted October 6, 2008
- In General · 0 replies
- Learn INN: Tuesday study halls with snacks! during parent reception by the bistro 4:30- 5:30 pm **on Tuesday Oct 14th and 28th Learn INN will be from 5:30- 6:30 pm** Explore INN: Oct 16th and 18th 7:00 ...
- By dmlw1 · New reply September 25, 2008
- In Alumni · 1 reply
- Did You Know This time frame was chosen by Congress because it coincides with the Independence Days of 5 Spanish speaking countries. In addition, Mexico declared its independence on September 16, and ...
