Dear parents, caregivers and Children's Inn residents:
Welcome to the Alumni discussion group!
By Inn resident demand, we can now help you make connections to other families who also have had a child being treated at the NIH and staying at The Children's Inn. Family Exchange is a new pilot program that offers you an opportunity to connect online through The Children's Inn website. We hope past residents and patients will use this alumni discussion group to reconnect with old friends and possibly make some new friends.
I am a staff member at The Children's Inn and I will be temporarily moderating this discussion group until the group is up and running. Eventually, the moderator role will be transferred to one of you.
We hope this new program will prove to be a helpful, supportive tool for you and your family.
Already a member? Sign in
Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Welcome
- By ChildrensInn1
- Posted March 16, 2006 at 5:07 pm · 2 replies
- In Alumni
- Shared with the public
Explore topics in this discussion:
2 replies
- Oldest first
- Newest first
- By blburnett
- Posted May 15, 2006 at 1:02 pm
- Report post
My child is coming to the NIH to participate in a McCune Albright Syndrome study. I would be interested in hearing about this experience from another family who is currently in the study and who has been through the initial week of inpatient tests.
- By brittsmom
- Posted June 20, 2006 at 1:16 pm
- Report post
My daughter is also coming in September. Our daughter has fibrous dysplasia. I also would love to hear about others experiences. We are very excited about coming to the Inn.
Add to the discussion