Join now

Already a member? Sign in

Welcome to Inspire!

What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.

Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.

How - Joining Inspire is completely free and usually takes less than a minute. Join now!

corner corner corner

3 Year Old son with TRAPS and a Lymphatic Malformation

noahdavidsjourney
0 Recommendations

My 3-year-old son just got diagnosed with TRAPS last August. He has also had a lymphatic malformation since birth. I just found this site listed on the Australia Yahoo group TRAPS Support. I haven't been able to find anyone else in the U.S. until now that had been diagnosed with TRAPS so I am kind of relieved to have found some support. I just wanted to let everyone know that I have a website for Noah and it has a lot of information and links about TRAPS on it. It also has support group links and someoutreach programs as well as pictures of him. The address is www.freewebs.com/noahdavidsjourney/index.htm

Explore topics in this discussion:

TRAPS

1 reply

jacksonba

Just curious which rheumatologist you guys see in st louis. I lived there for a year when I was in med school but we were still trying to find a diagnosis then. I wasn't diagnosed until later on at the mayo clinic. I saw a Dr. Sandra Hoffman in st louis. I also visited your website. It was very good.
Thanks,
Angela

Add to the discussion

Don't have an Inspire account? Join now!

Forgot password?

Group leaders

You