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Kids with FMF
- By Mary2 · New reply November 5, 2009
- Journal · 12 replies
- Hi everyone, I am a 29 year old mother with a 4 year old son with FMF (Familial Mediterranean Fever) . My husband and I both don’t suffer from FMF, but wish every single day that I had the disease instead ...
Inspire members featured
- By Brian · New reply November 4, 2009
- Journal · 29 replies
- Today Massachusetts General Hospital's Proto Magazine published a wonderful profile of nine Inspire members. Each of these stories underscores what we all know to be true -- that Inspire is a special ...
Today at the INN: November 4
EducateINN Activities- Nov. 3
Today at the INN: November 3
1st Book Club Meeting at the INN!
Today at the INN: November 2
Today at the INN: October 27
I cant forget
- By FightingFox · Posted October 20, 2009
- Discussion in General · 0 replies
- I'm Marc. I just been throw 3 mental health units 2 in the marines one back home for depression growing up i never had a problem with depression. It mostly started when Brazil Gordillo died you think ...
Throat issues and FMF
- By Kaylea-Leanne · New reply October 20, 2009
- Discussion in Familial Mediterranean fever (FMF) · 2 replies
- My son was diagnosed in 2007 with FMF. He has since been on colchicine liquid since he wouldn't swallow the tablets. He is now 6 years old. Has not really had any fevers since other than some strep throats/ear ...
HIDS
- By mommymanda · New reply October 20, 2009
- Journal · 8 replies
- Payton is now almost 4 and it seems like he just keeps getting new symptoms. It feels as if he never gets a break! As of right now we are on Kineret injections during episodes for 3 days and also on Humira ...
Today at the INN: October 20!
LearnINN- Tuesday Oct. 20
The Learning Center!
Today at the INN: October 19!
Today at the INN: October 15!
Today at the INN: October 14!
- By ManagerofFun · Posted October 14, 2009
- Discussion in General · 0 replies
- Today at the INN... Open Music Studio with Vera! 4:30PM Arts INNplace 7PM Hope to see you there! To see what's going on the rest of the month check out the Inn's website at childrensinn.org and follow ...
Today at the INN: October 6!
- By ManagerofFun · Posted October 13, 2009
- Discussion in General · 0 replies
- Today at the INN... Learn INN 4:30PM Parent Reception 4:30PM Seated Massage 5-7PM Grocery Store Run 6:30PM Family Dinner by Southern Management E Dining Rm 6PM Bingo!! 7PM Hope to see you there! To see ...
Daughter diagnosed with TRAPS
- By silky · New reply October 8, 2009
- Journal · 9 replies
- My almost 3 year old daughter has been diagnosed with TRAPS R92Q mutation and is being followed by Dr. Kastner ...
My Story- as of 6/20/09
- By hannahmontoya · New reply October 7, 2009
- Journal · 6 replies
- I'm your typical 16 year-old girl that has gone through some pretty atypical stuff. If there's anything that I've learned from going through what I've gone through, its that the only way to take life ...
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The Children's Inn at NIH Support Community connects patients, families, friends and caregivers for support and inspiration. The Children's Inn at NIH Support Community is sponsored by The Children's Inn at NIH in partnership with Inspire.