The Children's Inn at NIH Support Community

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school

By silky · Posted 10:58 am
Discussion in TRAPS · 0 replies
I am concerned about my daughter starting preschool this year. She has TRAPS and is on Enbrel injections, so she is unable to recieve her live vacines. She is not supposed to be around sick kids, and ...

Today at the INN: July 29

By BKuz · Posted July 29, 2010
Discussion in General · 0 replies
Today at the Inn... 3:30PM - Camp INNcredible 6:30PM - Grocery Store Run - ExploreINN 7:00PM - English Class =] Hope to see you there! To see what's going on the rest of the month check out the Inn's ...

Today at the INN: July 28

By BKuz · Posted July 28, 2010
Discussion in General · 0 replies
Today at the Inn... 3:30PM - Camp INNcredible =] Hope to see you there! To see what's going on the rest of the month check out the Inn's website at childrensinn.org and follow these instructions: 1. Click ...

Today at the INN: July 27

By BKuz · Posted July 27, 2010
Discussion in General · 0 replies
Today at the Inn... TEEN RETREAT!!!! 3:30PM - Camp INNcredible 5:00PM-7:00PM - Seated Massage 6:30PM - Grocery Store Run 7:00PM - BINGO! =] Hope to see you there! To see what's going on the rest of the ...

Today at the INN: July 26

By BKuz · Posted July 26, 2010
Discussion in General · 0 replies
Today at the Inn... TEEN RETREAT!!!! 3:30PM - Camp INNcredible 6:30PM - Grocery Store Run =] Hope to see you there! To see what's going on the rest of the month check out the Inn's website at childrensinn.org ...

Hindsight

By JLH1 · New reply July 23, 2010
Journal · 2 replies
Hello everyone. I wrote the following "post" for my daughter's CarePage (www.carepages.com patient name AshleyHendrick). These words came out of my thankfulness for everything my family is now able to ...

Today at the INN: July 20

By BKuz · New reply July 21, 2010
Discussion in General · 2 replies
Today at the Inn... 3:30PM - Camp INNcredible 4:30PM - Parent Reception 5:00PM-7:00PM - Seated Massage 6:00M - Family Dinner 6:30PM - Grocery Store Run 7:00PM - Scrapbooking! =] Hope to see you there ...

Today at the INN: July 21

By BKuz · Posted July 21, 2010
Discussion in General · 0 replies
Today at the Inn... 3:30PM - Camp INNcredible 4:45PM - Free Dinner Trip to Ledo's Pizza!!! =] Hope to see you there! To see what's going on the rest of the month check out the Inn's website at childrensinn.org ...

ALPS - Question about diagnosing

By dlmclaugh · New reply July 20, 2010
Discussion in General · 2 replies
My 16 month old daughter has had a High WBC since birth. Was have been seeing a hematologist/oncologist for almost 8 months now. About 4 months ago, we did testing for ALPS. The initial ALPS screen came ...

Chronic Eosinophilic Pneumonia

By CEWilson · Posted July 19, 2010
Discussion in General · 0 replies
My 17 yr old son has been diagnosed with CEP and I am interested in talking to others who have dealt with this ...

Today at the INN: July 19

By BKuz · Posted July 19, 2010
Discussion in General · 0 replies
Today at the Inn... 3:30PM - Camp INNcredible 4:30PM - Stretching with Marga 6:00PM - Family Dinner by Wendy Robinson and friends 6:30PM - Grocery Store Run 7:00PM - Family Night!!! =] Hope to see you ...

Thoughts about being a father...

By JLH1 · New reply July 18, 2010
Journal · 2 replies
I wrote the following words for my daughter's CarePage (www.carepages.com) patient name AshleyHendrick. I thought I would share them on this site as well... Good morning friends. Today I am writing about ...

Motivational books for children dealing with cronic illness

By NicoMo · Posted July 17, 2010
Discussion in General · 0 replies
Does anyone know a motivational book for a 12 year old boy ?, my son has a rare neuromuscular syndrome and is kind of depressed and isolated. We will appreciate suggestions to cheer him up. Thank you ...

Today at the INN: July 15

By BKuz · Posted July 15, 2010
Discussion in General · 0 replies
Today at the Inn... 3:30PM - Camp INNcredible 6:00PM - Performance by the Traveling Players 6:30PM - Grocery Store Run 7:00PM - English Class =] Hope to see you there! To see what's going on the rest ...

Today at the INN: July 14

By BKuz · Posted July 14, 2010
Discussion in General · 0 replies
Today at the Inn... 2:30PM - AdventureINN to the Baltimore Harbor! 3:30PM - Camp INNcredible =] Hope to see you there! To see what's going on the rest of the month check out the Inn's website at childrensinn.org ...

Today at the INN: July 13

By BKuz · Posted July 13, 2010
Discussion in General · 0 replies
Today at the Inn... 9:30AM - 3:30PM - SIBLING DAY!!!! 3:30PM - Camp INNcredible 4:30PM - Parent Reception 5:00PM - 7:00PM - Seated Massage 6:30PM - Grocery Store Run 7:00PM - BINGO! =] Hope to see you ...

Today at the INN: July 12

By BKuz · Posted July 12, 2010
Discussion in General · 0 replies
Today at the Inn... 3:30PM - Camp INNcredible 6:30PM - Grocery Store Run - Teen Night! 7:00PM - Dog Visit =] Hope to see you there! To see what's going on the rest of the month check out the Inn's website ...

ALPS

By lroublick · New reply July 6, 2010
Discussion in General · 46 replies
hi..I am a parent of an 8 year old girl who was diagnosed with ALPS at the age of 2...I have yet to meet or speak with other parents who have a child/children with this disease. Hoping to conect with ...

Today at the INN: July 6

By BKuz · Posted July 6, 2010
Discussion in General · 0 replies
Today at the Inn... 3:30PM - Camp INNcredible 4:30PM - Nationals Game!!! 5:00 - 7:00PM - Seated Massage 6:30PM - Grocery Store Run 7:00PM - Scrapbooking! =] Hope to see you there! To see what's going ...

Support your group and raise awareness with badges

By Walter · New reply July 4, 2010
Journal · 71 replies
Hi everyone. We added a new feature today that you can use to support your groups and the organizations that sponsor them, and get the word out about the causes that are important to you. If you visit ...

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The Children's Inn at NIH Support Community connects patients, families, friends and caregivers for support and inspiration. The Children's Inn at NIH Support Community is sponsored by The Children's Inn at NIH in partnership with Inspire.