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Periodic Fever Syndrome
- By JanDanAmaya · New reply yesterday at 5:09 pm
- Journal · 6 replies
- Hello I have joined this site as my 3 year old daughter has been suffering with high fevers at least once a month and has finally been diagnosed with periodic fever syndrome. She is being referred to ...
HELP! Is this PFAPA???
- By savannahsmum · New reply yesterday at 5:05 pm
- Discussion in PFAPA · 2 replies
- Hi, I have an 11 yr old who is just now getting the Possible diagnosis of PFAPA... She has had chronic fevers, sore throats most of her life. I was always told, it viral and has to run it's course. Or ...
Cured our daughter of PFAPA....MUST READ
- By Angel39 · New reply yesterday at 5:01 pm
- Journal · 2 replies
- Where do I start?? I have spent literally HUNDREDS of hours researching. I will start with our story....Maia is my four year old. She's had PFAPA since the age of 20 months. Month after month she was ...
Celebrating 3 months of NO SYMPTOMS of PFAPA
- By Angel39 · New reply yesterday at 4:58 pm
- Journal · 2 replies
- We are celebrating 3 months today with no symptoms!! We are praising GOD for his blessings and all of the wonderful people in our lives who helped us, educated us, and pushed us to make life changes for ...
Five million
- By Brian · New reply May 18, 2013
- Journal · 205 replies
- Dear members, Yesterday, Inspire reached a milestone: five million posts written by members! Each of these posts, and the 700 million words they contain, are a simple measure of how much we all do to ...
My child won't take the Prednisone
A new Inspire report in collaboration with Stanford Medical School
- By Brian · New reply May 5, 2013
- Journal · 84 replies
- As many of you know, Inspire has a professional collaboration with the Stanford University School of Medicine. Inspire members have written personal stories for the Stanford Scope column. I am pleased ...
The Inspire Q&A: Inspire talks with Deanna Attai, MD
- By John2 · New reply April 16, 2013
- Journal · 16 replies
- Dear members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients and caregivers worldwide. The people in this ...
We have cured our 4 year old of PFAPA!!!!! Must read!!!
What's HappenINN: March 11- 16, 2013
- By Ryan_Whited · Posted March 11, 2013
- Journal · 0 replies
- March 11, 2013 3:30 pm AdventureINN to DC 6:00 pm Family Dinner by NHLB 6:30 pm Grocery Run 7:00 pm Dog Visit March 12, 2013 4:30 pm African Storyteller 5:30-7:00 pm Seated Massage 6:00 pm Family Dinner ...
What's HappenINN: March 4- 9, 2013
- By Ryan_Whited · Posted March 4, 2013
- Journal · 0 replies
- March 4, 2013 3:30 pm INN the Arts Trip to VisArts 6:00 pm Family Dinner by Booz Allen 6:30 pm Grocery Store Run 7:00 pm Family Night: Creative Cooking with Elise Museles March 5, 2013 4:00 pm Only Make ...
What's HappenINN: February 25-28, 2013
- By Ryan_Whited · Posted February 25, 2013
- Journal · 0 replies
- Monday February 25 4:30 pm AFCEA Art Contest Reception 6:00 pm Family Dinner by NIH Fellows 6:30pm Grocery Run (Please sign up at the welcome desk) 7:00 pm Family Night Tuesday February 26 4:30 pm Only ...
What's HappenINN: February 19-24, 2013
- By Ryan_Whited · Posted February 19, 2013
- Journal · 0 replies
- February 19, 2013 Only Make Believe and Parent Reception 4:30 pm Seated Massage 5:30-7:00 pm Dinner by B'nai Tzedek 6:00 pm Grocery Run 6:30 pm (Please sign up at the welcome desk) Art & Collage 7:00 ...
What's HappenINN: February 14, 2013
- By Ryan_Whited · Posted February 14, 2013
- Journal · 0 replies
- Valentine's Day Candy Making in the NIH RT Clinic at 1:30 pm Snack and Discover 4:30 pm Grocery Run 6:30 pm (Please sign up at the welcome desk) To see what's going on the rest of the month check out ...
What's HappenINN: February 12, 2013
- By Ryan_Whited · Posted February 12, 2013
- Journal · 0 replies
- 4:00pm Mardi Gras Party by Davis & Associates 5:30pm Seated Massage 6:00pm Family Dinner by Booz Allen 6:30pm Grocery Run 7:00pm BINGO To see what's going on the rest of the month check out the Inn's ...
The Inspire Q&A: Inspire talks with Lindsey Miller
- By John2 · New reply February 6, 2013
- Journal · 13 replies
- We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients and caregivers worldwide. The people featured in our Q&A series ...
fmf
- By debie1231 · New reply January 27, 2013
- Journal · 1 reply
- my son cody has fmf,but he seems to have alot of other problems,he gets ear infections,his eyes are rim with purple,his taking steroids all the time to keep his lungs working right.His attacks are very ...
We're hiring!
- By Walter · Posted January 22, 2013
- Journal · 0 replies
- Hello everyone, We have a position open with our engineering team at Inspire, and I'd like to share the job description with you in the event you know just the person we're looking for. We found our most ...
perodic fever syndrome
- By ricketykate · New reply January 5, 2013
- Journal · 3 replies
- hi I have both my daughter and granddaughter with this illnes i decided to reseach more into this after watching my granddaughter 3yrs old go thru agony yestersday i try an look for different things that ...
FMF???
- By craaazycajun · New reply December 19, 2012
- Discussion in Familial Mediterranean fever (FMF) · 5 replies
- My 4 year old daughter has been suffering from fevers for two years. Today we got her genetic tests back and it shows that she has I591T variant in the MEFV Gene. They told me she has FMF and is to start ...
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The Children's Inn at NIH Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by The Children's Inn at NIH, an Inspire trusted partner.
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