Inspire connects patients, families, friends and caregivers for support and inspiration... More about this group

"A wake-up call from a young e-patient: 'I need to be heard'”

John2
  • By John2 · Posted April 15, 2014
  • Journal · 0 replies
  • From: John Novack, Communications Director, Inspire 4/15/14 Dear members, I am writing to share with you a new guest column in "Scope," the Stanford University School of Medicine's medical blog: "A wake-up ...

Enjoying Every Moment

SurroundingHope
  • By SurroundingHope · New reply April 9, 2014
  • Journal · 12 replies
  • Over the years I have survived. All forms of abuse from my family, cops that wouldnt help, school wouldnt help, and friends couldnt do anything. Abandonment, Abuse, Neglect, and so much more. When I turned ...

EHLERS DANLOS SUPPORT GROUP MEETING

lori326
  • By lori326 · Posted April 6, 2014
  • Journal · 0 replies
  • Central pa support group meets on April 19th 3-5 pm at the SUBURBAN OUTPATIENT PAVILION 2100 Harrisburg pike,lancaster pa 17604. 3rd floor conference room .Come share and make new friends. Lori ...

What I wrote him

SurroundingHope
  • By SurroundingHope · Posted March 28, 2014
  • Journal · 0 replies
  • The day I became yours you became mine. Forever we will be together, through hell and back again, we will figure out any challenge. I gave you my heart the night we met and the more we talked the more ...

What he wrote to me

SurroundingHope
  • By SurroundingHope · New reply March 25, 2014
  • Journal · 10 replies
  • Babe I love you and always will. I love the way you look at me with those beautiful eyes; the way they radiant just blows me away. You make me want to do the best in everything. The way I feel when I ...

The Inspire Q&A: Inspire talks with Don Dizon, MD

John2
  • By John2 · New reply March 19, 2014
  • Journal · 12 replies
  • The Inspire Q&A: Inspire talks with Don Dizon, MD Dear members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients ...

Our second annual report with Stanford Medical School

Brian
  • By Brian · Posted March 19, 2014
  • Journal · 0 replies
  • We just finished a brand new special report, “Experts by experience 2014: A compilation of patients’ stories”, in partnership with the Stanford University School of Medicine. It is a 31-page collection ...

THIS IS ME

AlabamaBeauty
  • By AlabamaBeauty · Posted March 19, 2014
  • Journal · 0 replies
  • I am an Alabama beauty alright. I was born and raised a bama girl. I have not had a privileged life but that is OK. I think that my experiences of my past has strengthened me. I love to sing and i love ...

WHY IS IT HARD TO SEE YOURSELF THE WAY OTHERS DO YOU?

AlabamaBeauty
  • By AlabamaBeauty · Posted March 19, 2014
  • Discussion in Questions · 0 replies
  • I DON'T UNDERSTAND WHY I CANT SEE MY SELF THE WAY MY BOYFRIEND AND FRIENDS SEE ME......I NEED HELP ...

Hitting a milestone -- 5,000 photos posted already

John2
  • By John2 · Posted March 18, 2014
  • Journal · 0 replies
  • From: John Novack, communications director, Inspire 3/18/14 Dear members, I'm writing to let you know that in a little more than a month, members here have posted more than 5,000 photos. Congratulations ...

"Let symptoms–not age–influence treatment"

John2
  • By John2 · Posted March 11, 2014
  • Journal · 0 replies
  • From: John Novack, Communications Director, Inspire 3/11/14 Dear members, I am writing to share with you a new guest column in "Scope," the Stanford University School of Medicine's medical blog: "Let ...

Running In Public

sammyp95
  • By sammyp95 · New reply March 1, 2014
  • Journal · 2 replies
  • So, I'm normally very self conscious I absolutely despise working out in front of people. I never enjoyed being in front of people for long periods of time because I always felt like they were watching ...

My health journey

trobes7x
  • By trobes7x · New reply February 25, 2014
  • Journal · 2 replies
  • The Past few years have been very tough but it has made me stronger. Still no diagnosis, But I am fighting ...

The Inspire Q&A: Inspire talks with Kathy Nieder, MD

John2
  • By John2 · New reply February 23, 2014
  • Journal · 36 replies
  • The Inspire Q&A: Inspire talks with Kathy Nieder, MD By John Novack, Communications Director, Inspire Dear members, We at Inspire are pleased to bring you the latest in a series of interviews with people ...

NBC journalist seeking your opinion about “Minute Clinics”

John2
  • By John2 · Posted February 19, 2014
  • Journal · 0 replies
  • From: John Novack, Communications Director, Inspire 2/19/13 Dear members, An NBC reporter is looking to interview parents who have taken their babies or older children to retail health clinics, so-called ...

Introducing Photos for Inspire

Walter
  • By Walter · New reply February 13, 2014
  • Journal · 180 replies
  • Hello everyone, Today at Inspire we’re excited to announce the launch of a new feature, and it’s one that many of you have requested -- the ability to upload photos to Inspire. You can now add photos ...

EDS SUPPORT GROUP MEETING IN FEBRUARY

lori326
  • By lori326 · New reply January 23, 2014
  • Journal · 9 replies
  • We hold our support group meeting every third Saturday at the Lancaster wellness center/Suburban Outpatient Pavilion at 2110 Harrisburg pike, Lancaster pa from 3-5 pm. All are welcome. We share stories ...

I need a long hug that never ends...

beautifulmistake
  • By beautifulmistake · New reply January 21, 2014
  • Discussion in Illnesses · 41 replies
  • Depression sucks.. idk what to do anymore people say just smile, hang out with friends you will feel so much better after that but to be honest here it doesn't help at all. I feel alone. Yes I have friends ...

been awhile since I posted-EDS takes over your life.

lori326
  • By lori326 · Posted January 20, 2014
  • Journal · 0 replies
  • Its been so long since I posted. EDS takes over your life and consumes you ,and it becomes exhausting and overwhelming. I haven't wanted to talk as the holidays took its toll and daughter is finishing ...

Thank You, From Inspire

Walter
  • By Walter · New reply December 3, 2013
  • Journal · 108 replies
  • Hello everyone, As Thanksgiving approaches, all of us at Inspire would like to take a moment to thank you for being part of our community. While we wish no one had to deal with the serious health issues ...

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