NF-2 and acoustic neuromas or just acoustic neuroma

• By gpawelski
• Posted July 3, 2008 at 7:28 am
• Report post

Acoustic neuromas, also called schwannomas, are a non-cancerous tumor that develops on the nerve that connects the ear to the brain. The tumor usually grows slowly. As it grows, it presses against the nerves responsible for hearing and balance. Radiosurgery is usually the standard treatment (IMRT, Conformal Radiation, Stereotactic Radioablation).

Signs and symptoms of acoustic neuromas may include hearing loss, usually gradual - although in some cases sudden - and occurring on only one side or more pronounced on one side, ringing (tinnitus) in the affected ear, dizziness (vertigo), loss of balance, facial numbness and tingling. The tumor also may press on the brainstem and in rare cases, it may grow large enough to compress the brainstem and be life-threatening.

BrainTalk Communities

http://brain.hastypastry.net/forums/forumdisplay.php?s=ef0518b004e5e9314db7 f920da4e031f&f=107

Clinical Trials and Noteworthy Treatments for Brain Tumors

http://virtualtrials.com/volresults/

Brain Talk About Stereotactic Radiosurgery (IRSA)

http://forums.prospero.com/irsa/start

• Reply

• By dragonfly57
• Posted July 15, 2008 at 6:04 am
• Report post

I am currently being evaluated to see if I have this.

• Reply

• By hippie
• Posted August 16, 2008 at 5:48 pm
• Report post

i do have nf2 as my yougest son who is 16,my problem is all the little bumbs,lumbs all over i hate it....

• Reply

• By 555
• Posted October 30, 2008 at 7:35 pm
• Report post

I just thought that I would let you know that is a speific group http://www.inspire.com/groups/neurofibromatosis-inc/
that has a lot of info on NF both type 1 and 2 and you might get more replies to questions you have if you did not know about this group already.

• Reply

• By 1stukie
• Posted November 19, 2008 at 10:07 am
• Report post

You are the 1st person I have found that has NF2. I hope you still get on and see this reply as maybe you can help me. My 12 yr old grandson recently dx with acoustic neuromas and is deaf in one ear and HOH in other. Any thing I read on the computer is so bleak and my heart breaks for him about his future. Can you give me info on how you and your son is and help me out in any way to see some light at the end of the tunnel. this news has devastated us. would appreciate any info and help. thanks

• Reply

Add to the discussion