ALTERNATIVES TO MEDICINE FOR OSTEOPOROSIS

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Okay, I am late doing this note, but I have sporadically been researching the topic of osteoporosis and now know something I would like to share. My history quickly: menopause at 48, diagnosed with osteopenia and osteoporosis a few years later, hip fracture from a severe fall this year. I am now 64. I have been on Fosomax, Actonal, and Boniva. The 1st drug produced esophagitis. Severe chest pains with the others--now occasionally experience GERD (Gastro Esophageal Reflux Disease) and as you all know by now the anti-acid drugs and protonics (cut off the digestive juices) are bad for osteoporosis. Why? This is a brief layperson's explanation which I have researched through the Clinical Trials division of the National Institute of Health. A primary source is the Chief of Bioengineering at a NYS University. For bones to grow at any age old bone needs to be reabsorbed by the body. The bisphosphonates (Foxomax et al. are absorbed by the osteoclasts--the part of the bone responsible for old bone disposal). New bone is built by the osteoblasts--the process of new bone building is set off by the function of the osteoclasts--the "old" part of the bone that is disposed of. It's like a nursing baby setting off its mother's hormones to produce more milk. No nursing=no new milk production. It is not known how old bone is disposed of that contains bisphosphonates. Problem: very little bone is sluffed off each year--about 1%. So just by stopping Fosomax etc. you do not stop the action of the drugs. They are there for a long, long time. And for people who have been taking them for years this presence of an unnatural substance could prove to be a dire circumstance.
2. For new bone to form the bones need nutricion which they get through the blood steam and lymphatic system. The blood is pushed through the body not just by the heart but by the soleus muscle which is a muscle behind your calf muscle. The soleus muscle--known as our second heart--is primarily involuntary. That means you cannot strengthen it with weight lifting and walking. It is connected to the body's system that maintains our equilibrium--and we know most fractures as we age are the result of falls.
3. What to do? You have heard of the vibration machines. The one with FDA approval-the Juvent 1000--does little for osteoporosis. The FDA has only approved the 1000 as a device to improve equilibrium and gneral muscle tone. GOOD NEWS: bioengineers are bringing to the market (1 to 2 years) a device which does improve the functioning of the soleus muscle according to well-designed studies that involve control groups. These platforms can be used sitting down or standing. The results so far have been outstanding--that is new bone is formed. Vibrational techniques are being tested on the NASA astronauts who lose bone in their weightless environmente in space and on skiers and other athletes who suffer traumatic injuries.
4. In the meantime consistent practice of T'ai Chi which focuses on balance has proved to be highly effective. Much more effective than Physical Therapy and/or weight lifting--neither of which I would abandon because the stronger you are the less likely you are to fall, lose balance, etc. All activity is beneficial. Dancing is particularly beneficial because music stimulates an area of the brain linked to balance, one's sense of place in space and good feelings.
I will send some links to recent papers on these topics when I have more time. Michele Garden, PhD

9 replies

Thank you , Thank you, for this valuable information. Took Fosomax for 5-6 years, last dexa scan shows I have gone from ostiopenia to osteoporosis. Dr. advised me to take Forteo, declined. Next Dr. (last week) advised me to go back on Fosomax plus Evista. When he read off side effects of Evista, I said "No, No, No." I am 77 years old and working on Yoga and back exercises, also a light weight (115 lbs) . Have gone from 5'6 to 5'4. What to do????

I'll send some links about the latests research. In the meantime as I mentioned in my note you want to do T'ai Chi. I am looking for a DVD myself. Or take a class. A lot depends on your financial situation since you live in the US no doubt. I have decided NOT to take any bisphosphantes ever again. They stay in your body and may interfere with the natural process of old bone disposal (resorbtion). Forteo is so new there is no long term clinical evidence. You've lost some height. How important is that? Do you have pain anywhere? Are your activities limited? You want to consider all these things. In the meantime you can do weight bearing exercise to achieve some benefit. Did you mean you are lifting 115 pounds? That is a lot. If you are that strong you are doing very well. I imagine you meant 15 pounds. Try to add a little weight if it is 15 pounds. Eat really well--check out the reference to Natrition Action--it's a really good publication. Reread what I wrote. Right now you can buy a costly vibration machine, the Juvent 1000. The price has gone down to about $1,200. It is approved for muscle improvement and may add some bone. Maybe your doctor can get some payment from Medicare--this is an interesting issue. If these vibration machines reach the market they will transform the treatment of osteoporosis. Keep busy and try dancing. Keep in touch. Michele Garden

My body weight is 115 lbs. Will return to Tai Chi. Stopped Tai Chi after bad eye surgery. (Another failed endeavor, Dr. error). Need to start strenth training again. Thanks for info on vibration system.

Do not do strength (weight bearing) exercise, stopped regular exercise after a cataract surgery (with IOL restore lens) that was not inserted correctly. Couldn't see well for 9 months from possible puncture of membrane. After 3 new doctors, I had eye surgery on left eye Nov. 25 (with IOL implant Crystalens). Back to Osteoporosis, the 115 lbs is my body weight. Last Dr. said being thin is a disadvantage.

I have not started having any bone loss but fear it is in my future because my grandmother has it. She is 90 years old and had a vertebra glued back together before Christmas. This is a concern for me. I am looking forward to hearing more.

Looking forward to your posting the links you mentioned ! Suggestion to save you time, just copy and paste the links into a short post.

I am new to this issue and would be interested in any links you could provide regarding the info wherein you stated: "...Severe chest pains with the others--now occasionally experience GERD (Gastro Esophageal Reflux Disease) and as you all know by now the anti-acid drugs and protonics (cut off the digestive juices) are bad for osteoporosis...." I need this information to take to my next doctor appointment as he is not happy that I took myself off of the Fosomex and another doctor put me on anti-acid drugs for GERD. I had no idea the two issues were related!

Thank you for all the information,

I am a Pharmacist and unfortunatley drugs like Fosamax, Forteo, Actonel, Boniva are the only things that are scientifically proven to prevent or treat osteoporosis. Esphogitis is very common with these drugs. That is why the Pharmacist warns you about drinking a full glass of water, and not lying down after taking it, and not taking any other food, beverage or drink for at least 30 minutes because this can cause the medication to reflux up into your esphogus. You can try high doses of calcium and vitamin D. They might possibly help. And yes if you are small framed you are at a disadvantage to getting osteoporosis.

As you are a Pharmacist, I wanted to share that I also was told that Fosamax can cause some people to have strokes. I had a stroke back in 1998. I am now 63 and I recently took myself off of the Fosamax after reading that it can cause strokes. I did not know about the esphogitis link until I read the posts. I had been taking the Fosamax first thing in the morning with lots of water and waiting 30 minutes before eating. Still had issues with GERD as per an upper G.I. exam and my own observations. This is all very confusing to me as I don't want to be a "victim" of a drug that is still being "tested" on the masses but I don't want to start shrinking either! I have been taking calcium 20+ years and added vitamin D(3) two years ago. I had been exercising daily for over 20+ years until a horse related injury a year ago, am now in the healing process and in PT so that I can return to some form of exercise. This whole issue is just overwhelming as I just had a bone scan and show some bone loss. Yikes!

I have been using Boniva for about a year now. I have Short Bowel Syndrome after a bowel resection for removal of NHL. I lost weight for the first year and had trouble maintaining weight for 2 more years. I couldn't absorb enough calories to be able to exercise for a total of 5 years. The surgery coincided with menopause.

Since the medications for osteoporosis are not easily absorbed by most, my rheumatologist recommended IV infusions or Boniva or reclast and recommended that Tai Chi would be better than weight bearing exercise.

I have tolerated the IV Boniva well--and my oncologist tells me that cancer patients who receive Reclast as a chemo therapy have tolerated it very well. Boniva is given with an IV push every 3 months. Reclast is given by IV only once per year.

The best research i have found shows that Reclast does a better job of strenthening bone from without--i don't have the background to understand all the chemistry of reclast, but i have been impressed by the increase of bone density.

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