** Originally posted by Kiki223 **
I want to share my story with everyone to increase awareness about Enbrel. Many will swear that Enbrel is their miracle drug and it was the answer to their prayers. For those people, I am truly happy that they have found their answer. For me, the story goes a little differently...
I recently had a liver resection operation during which they removed my entire right liver. This half of my liver held 5 tumors, the largest one measuring approximately 7 cm in diameter. My surgery was conducted at Memorial Slooan Kettering Cancer Center in Manhattan (one of the leading cancer centers in the world) A team of pathologist, surgeons, and oncologists worked on my case and concluded I have a low grade case of leiomyosarcoma caused by recent immunosuppresants (Enbrel).
Prior to this, last January, I was hospitalized with PCP pneumonia and CMV virus. I was in the hospital for 31 days, during which I had a lung biopsy and a liver biopsy. This was also concluded to be cause by Enbrel. It had supressed my immune system so severely, that I was suseptible to almost every infection possible.
Lastly, prior to this, and the first indication of side effects was my entire lower right leg went numb overnight. Once again, this also was concluded to be caused by Enbrel. Over a year later, it is still to this day, numb is certain areas.
The scary part is I only took Enbrel for 5 weeks. However, a year and a half later I am still suffering side effects.
I have learned through my 25 years of psoriasis treatments that for me personally, the side effects are more often than not worse than the flare up. I have made the personal decision to no longer treat my psoriasis the traditional way. In place, I treat it with mental therapy. My psoriasis is directly affected by stress. Over the past 2 and a half years, I have received mental health therapy. I have learned ways to prevent stress from building and ways to control stress when it occurs. This has been the healthiest and most effective treatment yet for my psoriasis and I can honestly say that I am comfortable living with my psoriasis.
I hope this has built awareness regarding Enbrel and side effects in general. My wish is for everyone to find what works for them and be comfortable with your life.
Karen in NY :o