Questions about Humara/Enbril

• By JerseyMikeK
• Reply 1645788
• April 15, 2008 at 2:10 pm
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** Originally posted by MikeK **

Hi Jboswell,

Welcome to the board. :cool: Nice to meet you.

I'm the co-leader of the NPF affiliated support group that meets on the last Tuesday of every month in New York City. (Our next meeting is Tuesday, April 29, 2008 at 7:00 p.m.) We meet at Rockefeller University Hospital (http://www.rucares.org/), which is on the campus of Rockefeller University (http://www.rockefeller.edu/) which is located at:

1230 York Avenue
New York, NY 10065

It's kind of sort of across the street from Memorial Sloan Kettering cancer center. Unfortunately, it's also about as far from the subway as you can get and still be in City. The closest subway stops are 68th Street - Hunter College on the 6 train (the Lexington Avenue line) and Lexington Avenue on the F train (the Sixth Avenue line). It would be great if you can join us. As wonderful as these boards as, there's really nothing quite like being in the same place at the same time as other people who are dealng with the same issues that we all face every day.

Anyone know of a GREAT Derm. in NYC???

Dr Jacob Levitt (http://www.mountsinai.org/Find%20A%20Doctor/profile.do?id=00000725000014972 27342&officeDrawer=pat) from Mt. Sinai hospital spoke at our last meeting. He was wonderful! I know two patients of his and they both speak very highly of him.

I've met Dr. Mark G. Lebwohl (http://www.mountsinai.org/Find%20A%20Doctor/profile.do?id=00000725000014971 24382&officeDrawer=pat
at several NPF funtions. He seems very nice. He's the chair of the dermatology department at Mt. Sinai. He's also the chair of the NPF's medical board ( http://www.psoriasis.org/aboutus/inside/medical_board.php).

I've also met Dr. Bruce Strober (http://www.med.nyu.edu/clinicians/strobb01.html) from NYU at several NPF functions. He also seems very nice and he's also on the NPF's medical board (http://www.psoriasis.org/aboutus/inside/medical_board.php).

I have several friends who are patients of Dr. Steven R. Cohen at Montefiore Medical Center in the Bronx: (http://www.montefiore.org/physiciandirectory/index.cfm?provider=11115455&ro w=1). They all speak VERY highly of him. Unfortunately, I hear through the grapevine that he's not taking new patients (I would call and plead my case) and Montefiore is not exactly around the corner. (It's on Gun Hill Road, which is the next to the last stop on the D train.)

You cannot go wrong with any of the above doctors.

I hope this helps.

Good luck. Keep us posted and I hope to see you at one of our meetings.

Mike

• By npf-9766 (Inactive)
• Reply 1645790 · In reply to 1645789 by PAOARA
• April 15, 2008 at 7:29 pm
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** Originally posted by sfondiler **

I have been on Enbrel for about 18 months. It took over six months to really start working but within 8 months, my skin was COMPLETELY CLEAR. It was a miracle. However, over the last few months, the psoriasis is coming back even though I'm still on thew Enbrel. Am I the only one this has happened too. It's very depressing. Iam thinking about stopping but am afraid of what will happen. I've thought about switching to Humira but am not sure how my body will react. Has anyone gone from Enbrel to Humira with good results?

• By npf-395 (Inactive)
• Reply 1645791 · In reply to 1645790 by npf-9766
• April 15, 2008 at 8:59 pm
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** Originally posted by TJM718 **

Hi. I've lived in NYC my whole life. I've had P for 30 years. I can send you a list of my derms if you send me a private message.

I have had great success on Humira. I was on Enbrel for awhile but like the 2x a month schedule of Humira.

You should definitely come to the next support group. You'll meet me, Mike K, and some other nice people.

Well, keep us posted. I hope you find relief soon. You can find a good derm in the city. We had one speak at our last meeting. He was great.

• By npf-4226 (Inactive)
• Reply 1645792 · In reply to 1645791 by npf-395
• April 16, 2008 at 9:27 am
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** Originally posted by MikeTC **

jbos,

It sounds like you stopped taking Humira & Enbrel after they're working; why did you stopped? I tried both and found them to be comparable in their results but Humira is half the dosage (half the injections and half the pain) so that's my favorite.

FYI, I had PA and P; although they both were effective on PA, Humira or Enbrel were not effective on my P until I added UVB treatment to Humira. I’m now 100% cleared and presently on Humira once every two weeks for maintenance.

From what I read is that we need to be on some type of treatment (Humira, UVB etc…) even when we’re 100% cleared; P or PA may come back more angrier than ever if the treatments were stopped. I don’t want to chance it since it is working so well. Just my $0.02.

• By npf-7154 (Inactive)
• Reply 1645793 · In reply to 1645792 by npf-4226
• April 16, 2008 at 8:41 pm
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** Originally posted by bratb1 **

Hi

I have been on both Enbrel and Humira. I was on Enbrel for about a year and a half and it had great results. My derm is not really sure why it stopped working for me. It is my understanding that some people have great long term results from Enbrel so I do not want to discourage you from using it. I am currently on Humira and my skin is almost clear. My derm told me that it is not uncommon to have to go back and forth between the two, found that odd, but he is a great doctor. I have no out of pocket cost after my first 2 months on Humira and paid about $75.00 for my co-pay on enbrel. I guess that depends on your insurance coverage. One really great thing I like about Humira is the injections are not as frequent as Enbrel. I have not had any side effects from Humira or Enbrel.
Take good care
BratB

• By richj
• Reply 1645794 · In reply to 1645793 by npf-7154
• April 17, 2008 at 8:08 pm
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** Originally posted by RichJ **

hi sfondiler and jboswell,
welcome to the p family. you have meet some of the wonderful people on here and will find alot of great info. welcome and nice to meet you.

have a good night all

richard

• By psilka
• Reply 1645795 · In reply to 1645790 by npf-9766
• April 17, 2008 at 8:45 pm
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** Originally posted by psilka **

I have been on Enbrel for about 18 months. It took over six months to really start working but within 8 months, my skin was COMPLETELY CLEAR. It was a miracle. However, over the last few months, the psoriasis is coming back even though I'm still on thew Enbrel. Am I the only one this has happened too. It's very depressing. Iam thinking about stopping but am afraid of what will happen. I've thought about switching to Humira but am not sure how my body will react. Has anyone gone from Enbrel to Humira with good results?

was on Enbrel 3 yrs, P began coming back slowly after 18mo.just took my first double dose if Humira. After 4 days no adverse side effects. none evr experienced with Enbrel. Enbrel took about 2mo to start showing improvement.eventually 75% clear.-Joe

• By npf-9767 (Inactive)
• Reply 1645796 · In reply to 1645790 by npf-9766
• December 23, 2010 at 5:43 pm
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** Originally posted by RJ **

I have been on Enbrel for about 18 months. It took over six months to really start working but within 8 months, my skin was COMPLETELY CLEAR. It was a miracle. However, over the last few months, the psoriasis is coming back even though I'm still on thew Enbrel. Am I the only one this has happened too. It's very depressing. Iam thinking about stopping but am afraid of what will happen. I've thought about switching to Humira but am not sure how my body will react. Has anyone gone from Enbrel to Humira with good results?

First off I have had P for 30 yrs getting more sever as I got older 49 now used enbril for 8 mo 3yrs ago went into remission for 15 months started to flare 10 m0n ago had become sever again have stared humira last friday and Im starting tosee and feel relive all ready so if you can afford it (im in Canada and its about 3500. a month) it would be worth a try.( edit) should have looked at the date of your post lol this info is probable of little value to you now

• By richj
• Reply 1645797 · In reply to 1645796 by npf-9767
• December 23, 2010 at 7:38 pm
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** Originally posted by RichJ **

hi r j,
welcome to the p family. you have meet some of the wonderful people on here and will find alot of great info. welcome and nice to meet you.

try and have a good day all

richard

• By npf-8296 (Inactive)
• Reply 1645798 · In reply to 1645797 by richj
• December 24, 2010 at 12:12 pm
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** Originally posted by benny10 **

Hi Guys,

I am struggling to decide on which Biologic to start. I like Stelara for the infrequent shots. but Stelara does not have the long term safety of Embrel and Humira.
I am thinking of going with Humira due to it's reported safety profile and the higher efficacy over Embrel. The warnings do look frightening on any of these Bilogics. Can someone help ? Anyone know of bad things happening with Humira?
The p is really starting to take over my life.....need releif. What to do ?

• By richj
• Reply 1645799 · In reply to 1645798 by npf-8296
• December 24, 2010 at 12:36 pm
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** Originally posted by RichJ **

hi benny,
im sorry that i can't help much with your ?. but i can bump you to the top and maybe some one will come through and help:). i wish you the best

merry christmas all

richard