Inverse Psoriasis and Sulfites

My inverse psoriasis has completely healed after 14 months. I did not post during the 14 months that I suffered with inverse psoriasis, but I searched and searched other posts looking for answers, encouragement, ideas and help and now hope to encourage others that are looking toward management of psoriasis without drugs.

I was pregnant and urged to get (against my better judgment) an H1N1 vaccination in late 2009. Within a week I developed a rash on my armpit, then the other armpit, then I developed what appeared to be a diaper rash. 35 years old and three babies of my own and I am dealing with a diaper rash?! Wonderful. I lost the baby, which was devastating, but I figured once the D&C was over, the hormones would calm down, and if it was a pregnancy related rash that it would go away. It didn't. So I went to the OB/Gyn and was tested for STD's - nothing there. I went to three dermatologist - got a first, second and third opinion because I could not believe that an immunosuppressant was the only answer- but that is all they had to offer. The derm did biopsy my rash and confirmed that it was Psoriasis. I also saw two different allergists - because I had a distinct feeling that the itchiness that was tormenting me was somehow related to food. I could not completely explain this, maybe intuition, maybe just observing the correlation between meals and levels of itchiness, maybe my history of food allergies. Anyway, I felt it had something to do with my diet, despite all the western docs telling me it did not have anything to do with food. The allergist pretty much told me I was a little allergic to everything... and good luck. I also saw a colo-rectal surgeon and she said that the sea salt baths had to stop, as they were too drying (this was devastating, as the dead sea salts baths were one of the only things that brought a little relief). She also said to increase my fiber and thats about all she had to offer.

In desperation, I did try the protopic that the derm recommended for a short time, only to develop swollen lymph nodes in my groin that I had never had before. So off to some more doctors and surgeons I went, and eventually they took out the biggest one and biopsied it. No cancer, thank the Lord, but it scared the daylights out of me and I was more determined than every to stay OFF the scary drugs and find another way to cope with this horrible condition.

I read Pagano's "healing psoriasis" book and it made more sense than anything else I had heard, so I diligently went on the very restrictive diets in the book. The diet seemed to help... The rash had grown to 5 or 6 inches in diameter, it was itchy raw, and painful... and the Pagano diet seemed to heal it up. However the itchiness never fully went away. So I continued my search.

I saw 12 different doctors and specialists over 14 months and no one mentioned a sulfite allergy as a possibility. Only my naturopathic MD would even consider the possibility that my psoriasis had anything to do with food. I probably would not have persevered without her encouragement that there was a cause for this and we just had to keep looking until we found it.

I seemed to get itchier after I ate anything at all (which make sense now because sulfites seem to be in everything). I would yo-yo on and off of very restrictive diets including gluten, dairy, nightshades, sugar, and other things that I am allergic to.... corn, soy, oat, various others... and at times the restrictive diet would seem to help, but then I would get sick again (because I was still eating apple cider vinegar, maple, molasses, grapes, grape juice, lemon juice concentrate, and other things FULL of sulfites!) The final trial was vinegar, I gave it up and it seemed to help a LOT. So I researched "vinegar allergy" and learned that some vinegars, like the apple cider kind I was consuming daily, contain sulfites. When I educated myself on sulfites and eliminated all or most of them from my diet, I was completely healed.

I was itchy - SO very itchy - everyday for over a year. I cannot tell you the relief this has brought. Hope it helps someone else. I know that everyone is different, but it worked for me so maybe worth a try for anyone wanting to try to heal with diet. Mine cleared up within days of eliminating the right foods. And, even if a sulfite allergy is not your particular problem, I urge you to keep trying to figure out if you are ingesting something that your body is reacting to -- whatever that may be.

Praying for answers and healing for you,
Kathy

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14 replies. Join the discussion

This site may be of interest to you:

http://www.
fedupwithfoodadditives.info

It covers much of what you have written above.

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I also suffer with periodic episodes of inverse psoriasis. I 100% agree that what we put in our bodies has a HUGE effect on our immune system and on every aspect of our bodies. Not everyone will have the same triggers, and sometimes those triggers change over the years, but I whole heartily agree that it's worth the individuals effort to try to pin point their own triggers.

I have several... lucky me! I was able to clear mine in about 5 days when I went strictly vegetarian (fish and eggs were the only animal products) and eliminated all processed foods.

However, after being clear for 2 years, getting lazy with my diet and going food crazy over the holidays iiiit's baaaack! And worse than the first time. :( So back to what I know works and hoping it's as easy to clear as the first time.

So glad you found what works for you! Thanks for sharing your story.

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Thank you. I am still trying to figure out how to live sulfite free and I appreciate any new info.
Blessings~
Kathy

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I am so sorry that you suffer with inverse P too. I honestly cannot think of many things that could be worse. I kept telling myself, "at least it's not life threatening". Sad when the only good you can find in something - is that it won't kill you! Anyway, good luck in ridding it once again. Happy healthy eating :)
Blessings~
Kathy

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Hello all... Thanks for your shared stories. I recently have cleared the P on my knee and elbow by diet, it is also fading from my ears. I quit eating all nightshads and i haven't had dairy products in a month. I hope that avoiding these foods (oh yeah, and red meat too) will continue to keep me P free.

The only prob area that continues is Inverse in my groin, that i am attepting to treat with Desitin.

Don't want harmful meds in my life! As much as i believe that P can be controlled with Diet, i think the result of it is missing genes/enzymes in our body rather than the fact that we are food sensitive. But, if we can avoid the foods that keep us flaring, it will be the next best thing to a cure!

Good luck to all.

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If inverse psoriasis is from food, why does mine remit when it is exposed to sunlight? And very responsive, with in a day I notice a difference. It seems to me there is a Vit D connection. But nothing seems to cure it!

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Manda,
Well, Im not entirely sure why. In my humble opinion, I believe that our bodies are fighting hard to heal themselves. And perhaps the Vit D helps the bodies natural healing process - whatever the cause may be. Clearly, my cause was the sulfites - and while somethings (dead sea salt soaks in particular) would help the healing process, a dead sea salt deficiency was not the cause.

I agree that Vit D has a huge connection with all autoimmune dysfunction and I take Vit D drops daily.

I believe that everyone is different. We all have different triggers, different responses, and can tolerate different lifestyles, diets, and meds. I am not saying sulfites are the answer for everyone. What really discouraged me during my illness was the absolute disregard from any dermatologist or medical professional that this could have anything to do with food or have any cure! They would certainly rather I take immune suppressants, and risk infection and cancer, than work with me to identify and eliminate a trigger. Because I was able to (painstakingly) identify and cure my disease on my own, I am more appalled that they attempted to steer me away from this much healthier approach and wished only to shove drugs into me.

That is why I am sharing. I just think there needs to be a counter balance. Because when every derm out there is saying, 'we don't know the cause' and 'there is no cure', I feel compelled to stand up and say - I believe they are wrong. Just MHO, but they were wrong with me.

BTW, I completely understand considering the drugs. I used them myself and would have eventually gone on them again if I had explored every other natural approach and failed. I'm just glad that I had my naturopathic doctor encouraging me, and I know that not everyone has that so I would like to be that voice of encouragement to anyone else that cares to listen.

God bless you and heal you!
Kathy

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Thanks Kathy. I do a lot with diet, but have not hit on a single cause. Fortunately my psoriasis is mild and responds to UVB. It has gotten a slowly little worse over the years, so I continue like you to eliminate things to try and isolate it. I appreciate your experience. I may try eliminating sulfites this summer. I seem to be able to be more committed in the summer to changes. LOL
Thanks again.
Manda

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Thanks for sharing. I have just finished reading Pogano's "Healing Psoriasis", and posted a discussion asking if anyone had read this book and if they had tried his program. I believe too that diet has a lot to do with P. Although I have not figured out what may be my trigger, so happy to hear you figured yours out. How to cut out dairy, sweets, chocolate??? I have had scalp P, for 20 years. Time to get proactive.

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Hey Kathy,
Did you have a test that actually indicated that you have a reaction to sulfites or did you do this purely by elimination? This is interesting to me because I have given up processed foods, I have increased the use of cider and balsamic vinegar. Soy seems to be the hardest food to avoid though, as it is in almost every thing in some form or another.
I am glad you have remitted.
Thanks for helping others with your experience.
Manda

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Good morning Manda,

I did not take a test. It was purely elimination that I discovered my sulfite sensitivity. However, in my research, I came across this paper from 2004 that seems to suggest that a simple sulfite urine test is possible.
http://www.funimky.com/downloads/SULFITE%20SENSITIVITY.pdf
If you have a doctor willing to consider this, she may be able to get this sulfite dipstick and test you. However I found that my symptoms were almost immediately resolved, so the elimination experiment was super easy for me.

Additionally, it recommends Molybdenum and B12 which I have already discussed with my NMD as treatment options (among other things). If you test positive or find in your food elimination trials that you are sensitive, there are sulfite sensitive resources that I can point you to.... the first is this article "knowing your demons"
http://www.readingtarget.com/nosulfites/knowing.htm
There is actually a ton of sulfite info on this website, so if you have the time, read it all. But this gives a quick look at the major offenders.

An interesting side note.... the apple cider vinegar that made me super itchy all of the time and contributed to my psoriasis rash is only listed as a "10". I also had one panic attack (adrenalin rushes, elevated heart rate, and general feeling of panic for a couple of days) after I ate homemade bread with molasses as an ingredient, and molasses is listed as a "90" on the sulfite scale. I did not realize what cause the panic attack at the time, but now it makes perfect sense!

Let me know if you have other questions. I am happy to share all that I can.

Blessings~
Kathy

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Meditation-
Fortunately for me, I did not have to give up dairy or sweets. I can have organic milk and other dairy and I can have cane sugar and raw honey :) . But, I SO know what you mean because I did give these wonderful things and more up on my various elimination diets over the last year and a half. The greatest part of finding my sulfite trigger has been adding back in foods that I was previously unnecessarily avoiding! I still can't have much chocolate though, for its natural sulfite content - bummer!

Another note - in my sulfite research I have found that sulfites can contribute significantly to asthma! US statistics say 5% of asthmatics may be sulfite sensitive, but I've seen reports from Australia that suggest more like 30%! My son has asthma and none of his doctors mentioned it! (But what did I expect...) Now I am watching him closely and have seen some asthma attacks specifically after eating a high sulfite food. So, he will be joining me in the sulfite free diet. Just wanted to mention, in case there is anyone suffering from psoriasis AND asthma - I would definitely look into this as a possible trigger.

Blessings~
Kathy

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Kathy, thank you so much for your reply. It is comforting to know that someone else understands about the diet issues, and giving up certain foods. Interesting relation betwen sulfites and asthma. Good luck with your son.
I did not know that chocolate is full of sulfites. Must do some research! :)
Thanks again.
meditation

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Hey Kathy,
Thank you for the great information.
Keep us posted if anything new is revealed!
Manda

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