** Originally posted by julius **
No, Enbrel does not "suck", and nor do any of the other biologics. But now that I have your attention, imo members do a diservice to fellow P sufferers when they make these broad judgments about these medications for others, esp when broadcasted in the title and then followed by their personal horror story. Pigfan and Gailandray's husband have had terrible experiences on Raptiva but so have people on Remicade (I'll take a P outbreak over lymphoma any day) and as MySon (included at end here) recently posted here on Enbrel. The point is that these biologics are a godsend even though they come with risks, and everyone reacts differently but in a broader sense has demonstrated by rigorous long term studies with thousands of patients, all the biologics work for roughly 30%-60% of people who try them. Everyone reacts differently just as we do to other medical treatments, but if you discourage P sufferers to try viable treatment options, then ultimately they lose. Just because my father died after heart surgery, I'm not going to go screaming how lousy bypass procedures are for others. Its the same thing. Talk about your experiences, catharse, whatever but don't put blanket judgments that something is a bad treatment option just because it didn't work for you (see Copernicus' findings for more about this).
Here's MySon's post, he relates is horrible experience without a judgment of the medication's potential for others:
"I have tried all psoriasis medication out there, and then to Enbrel...that was a woooz...I was hospitalize for three weeks after the third injection...my P hit me so bad that I had no use of my hands and leg with THICK RED scales on 100% of my body to a point that if I breath, it cracks and bleed that my mother says taking off the thick scales was like peeling off a tile...yeah that think... During hospitalization, I was put back on cyclos and finally saw some skin...then started on remicade regiment...and try to wean me off cyclos. I have been on remicade since Feb 04, after three weeks of hospitalization from Enbrel..."
Last edited by myson : 08-29-2004 at 08:17 AM.