** Originally posted by SeanH529 **
I saw this discussion before and wanted to share my story. I've been on Enbrel for about 2 years now, its been great. Cleared me 100% when I first had it. Since then I still have P on my elbows and knees but it's nothing like what I used to live with.
About a month ago I got a pretty bad sore throat. I tried to get rid of it with tylenol and halls :) No dice. It got really bad to the point my throat was REALLY swollen. I went to the doctor. Throat culture, swab test came back negative for strep. Doc gave me amococyln (sorry for spelling). I started using it and after 4 days my P flaired like I haven't seen in YEARS! I mean I have it in places I never did before. My feet, hands, and face.areas I've always been lucky about all got it. My face is cleared up, but the feet and hands still have it.
My first thought was that I was allergic to the amococyln broke out in hives. It seemed like the right thing. I had little red dots all over and they were growing so fast I assumed they were moving around. I figured it wasn't hives when almost 2 weeks go by and I'm still broken out. I stopped taking the amox and thought I could get away with the throat since it felt bettr. Well about a week later my sore throat was right back where I started and I had to get to a doctor. So he gave me a different med and after the 10 days my throat is finally healed. Now the "Hives" are not hives. It's my P back all over I mean head to toe. Since my enbrel 2 years ago I have never seen this.
I went to the derm and asked him for a cortizone shot. In the past my doc has hit me with one to calm my body down, then the Enbrel can usually maintain. I got the shot, but it really hasn't done anything. I was only taking the 50 MG 1 time a week, but he has asked me to double up. Today I tool my 2nd shot in a week, and am hoping to get back to the way I used to be. My doc said this is the first time he's seen someone on Enbrel relapse after a respatory infectiion.
I just moved to the DC area, so I am dealing with a new doctor that doesn't really know my past. It makes me kinda sad because I loved my old doctor, AND wish I had her to talk to about all this.
Has anyone else had this happen to them? have they gotten back to the way they were? Also I noticed on the boards someone mentioned if ou stop enbrel sometimes your body can build a tolerance to it. I've been off of it for up to 2 or 3 weeks while waiting to switch health care providers. Think that might make a difference?
My new doc also told me most of his patients now are on the 50MG 2 times a week routine. I never did. I was on the 25mg 2 times then they made the 50mg prefilled and I went to that. ANY words of advice, or knowledge you guys could share with me on this topic would be greatful..
in closing my advice, if your on Enbrel and things are great, still take care of yourself in the winter time. One bad cold or sore throat can put you right back at square one. With my Enbrel I finally thought my worst P days were behind me. I am well aware that this disease is still in me and can strike whenever it really wants to.