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Living with an ICD

Share your story with other community members and offer advice and support.

what happens when the ICD is tested?

formydad
  • By formydad · New reply September 7, 2008
  • 11 replies
  • Hello: My father has to have his ICD tested. He had one implanted 4 weeks ago, and after the procedure they were not able to test it. Can anyone tell me what exactly they do? I'm assuming they have to ...

Anxiety and depression

Reneemj
  • By Reneemj · New reply September 3, 2008
  • 3 replies
  • Since my shocks in May I've been dealing with a lot of anxiety and depression.. at first it was because of the actual event now it's because I have a low vibrating feeling in my chest that's making me ...

Should I be worried?

Tammy1
  • By Tammy1 · New reply September 3, 2008
  • 7 replies
  • I am 38, had my SCA Oct. 23, 2007 and ICD placed Oct. 29, 2007. I am 'perfectly' healthy according to the Dr's and no explaination can be made as to what I have. No Long Q-T syndrome, not Brugada or WPW ...

What one feels after the icd....

formydad
  • By formydad · New reply August 26, 2008
  • 5 replies
  • As you can see from my member name "formydad", this is exactly what it's about... I'm writing this on behalf of my dad, he just turned 70 and three weeks yesterday he had an ICD implanted. He has been ...

defib going off every week

fabu
  • By fabu · New reply August 5, 2008
  • 5 replies
  • i had my defib installed may 28 and has gone off 5 times, afraid to go back to work, not knowing when it might happen. they say go to the hospital, but the food gettin boring. any suggestions ...

SCAA's "Ask the Expert" Web Chat

kristjen
  • By kristjen · Posted August 4, 2008
  • 0 replies
  • Hello everyone, SCAA is holding its second "Ask the Expert" web chat on Monday, August 11th at 9:45 AM EDT. Please join Dr. Kevin Thomas of the Duke University Medical Center on a discussion of The Disparity ...

Wii Fitness

gtrogers
  • By gtrogers · New reply June 15, 2008
  • 10 replies
  • Has anyone heard you shouldn't use the Wii or Wii Fit if you have a Pacemaker or ICD? I bought one yesterday and was really excited about it and now I'm hearing I shouldn't use it? I did call St. Jude ...

Has anyone had both Medtronic leads replaced at once?

joy1
  • By joy1 · New reply May 29, 2008
  • 8 replies
  • My doctor tells me BOTH my icd leads have potential problems: the atrial lead has shifted position and is using up the battery faster than it should, and the other lead is one of the recalled leads. He ...

Living with a spouse with an ICD

GolfCap
  • By GolfCap · New reply April 25, 2008
  • 9 replies
  • Do you feel this tough to deal with. I can't seem to relax with it...I'd love to know how other spouces feel ...

Adjusting to Your ICD - Web Chat

kristjen
  • By kristjen · New reply April 22, 2008
  • 2 replies
  • Hello everyone, SCAA is holding its first "Ask the Expert" web chat on Sunday, May 4 at 4:00 PM EDT. Please join Dr. Howard Farkas of Northwestern University on a discussion of his study related to ICD ...

ICDs being hacked or not? Just an F.Y.I.

MetalGoddess
  • By MetalGoddess · Posted March 24, 2008
  • 0 replies
  • http://www.cnn.com/2008/HEALTH/03/12/hea rt.devicehack.ap/index.html ...

Medtronic Lead Recall

wbabab
  • By wbabab · New reply February 25, 2008
  • 17 replies
  • I read in the news today Medtronic has recalled leads for an ICD named "Sprint Fidelis." I have not been able to reach Medtronic by phone and so far my doctor knows little. Does anyone have any information ...

New to SCAA and ICDs

wbabab
  • By wbabab · New reply October 16, 2007
  • 9 replies
  • I am rather new to all of this. I have had heart disease since 1993. I have had quadruple bypass surgery, two stents implanted and now am now a candidate for SCA. So my cardiologist insisted I get an ...

Repetitive Shocks

fibbygirl
  • By fibbygirl · New reply October 3, 2007
  • 6 replies
  • I have been having shocks in strings of up to 28 at a time. Has anyone heard of this happening to anyone else? I am 30 years old and on my second ICD in four years ...

Brian, here's what I want to know. THANKS

LoisCSmith
  • By LoisCSmith · New reply September 6, 2007
  • 12 replies
  • Brian, you just wrote "WHAT DO YOU WANT TO KNOW"!! Well, after my 2nd bout with Cardiomyopathy & being in Gross Heart Failure, this Spring 2007, I was in Northridge, CA Hosp. for over 1 mo. Finally, when ...

What are you doing about it

DERIIFOUNDATION
  • By DERIIFOUNDATION · Posted September 5, 2007
  • 0 replies
  • Hello, My name is Marcus , I lost my nephew Danny to HCM three days after I was diagnosis with HCM. And I do have a ICD and I'm on COREG and Aspirin. He was coming home from Western Kentucky University ...

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