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Living with an ICD
Share your story with other community members and offer advice and support.
It's a girl!
- By ilisten2009 · Posted June 23, 2009
- 0 replies
- As many of you say, my new birthday is June 17, 2009, the day I got my brand spanking new, St Jude Medical, Current RVVF ICD. The implantation, I was told by my Dr, was picture perfect! I was graced with ...
Driving with ICD
- By Amindya · New reply June 21, 2009
- 12 replies
- Hi, I am 39 Y mother of 02 kids 4/1 years. I fainted twice and Dr. decided me to have ICD implantation for trachycardia. I got it on 06.12.2008. I got my first shock on 30.03.2009 and today also i felt ...
ICD and Pregnancy
- By Amindya · Posted June 20, 2009
- 0 replies
- Hi, I got my ICD implanted in December 2008. I am 40 years old and having 02 kids, 1 & 4. I just feel that I am pregnant again even though I took precautions to not to be... Can anyone tell me about some ...
Palpatations, pain, wierd feelings in chest
- By socalfun64 · New reply June 15, 2009
- 6 replies
- Okay, I'm going through some really tough times and need your feedback. It seems that you guys are the only ones who can understand what we feel and deal with. I'm on new meds, Metropol 200mg and I don't ...
Should I get an ICD for Cardiac Sarcoid?
- By luv2fysh · New reply June 13, 2009
- 27 replies
- Hi- I have sarcoids on my heart and my doctor is telling me I should get an ICD. I just came across this site looking for more information on living with an ICD. While this is a wonderful place to share ...
5 Months after ICD, site very painful
- By Imcre8ive · New reply June 9, 2009
- 7 replies
- Hi! I have written before about my pain at the site. Not only does it feel like acid burning when even my clothing like a sweater touches it, I accidently tapped it with my hairbrush and I saw stars for ...
Life is terminal so enjoy it
- By Greg2000 · New reply June 8, 2009
- 1 reply
- Life is Terminal so enjoy it. To all of the SCA members. I would like to share what being 2 years new is like. Just two years ago a little after I turned 50. I had, 3 pretty bad heart attacks; fortunately ...
shortness of breath
- By tvono1 · New reply June 8, 2009
- 3 replies
- Hi I had my ICD implanted in December of 2008, since then I have had major shortness of breath, and a lot of anxiety, I understand the anxiety is normal, but has anyone else experenced the shortness of ...
Swimming in cold water
- By blake76 · New reply June 2, 2009
- 2 replies
- Hi Can I call on some of your experience on swimming in cold/cool water with your ICD. A few weeks ago I went waist height in the sea (Cornwall UK) it was far too cold (10oC - 50oF) to go in slowly but ...
Travelling around the world with a St Jude ICD
- By blake76 · New reply May 29, 2009
- 3 replies
- Hi I've been advised not to go travelling to places too remote or where hospitals could not support my ICD. I have a St Jude ICD but I'm struggling to find which countries they have follow-up clinics ...
12 weeks since surgery ICD terrific pain in left arm
- By Imcre8ive · New reply April 24, 2009
- 23 replies
- Following my 2nd ablation I experienced prolonged QT's . The following day my doctor gave me an hour to decide if I should have an ICD implanted. To back up a bit. 1987 I suffered V-Fib, thank God it ...
AM I GOING TO DIE
- By bingo · New reply April 1, 2009
- 10 replies
- I have an icd but it doesn't stop me from being scared. I also have congestive heart failure. My cardiologist told me that it depended on my outlook on life as to how long I would live. Does anyone else ...
WHAT SPORTS CAN WE DO WITH AN ICD??
- By blake76 · New reply March 26, 2009
- 10 replies
- Hi, Does anyone know of if a list which has all the do's and don'ts for sports with an ICD? I used to SCUBA dive which I know we cant do but I also used to Kayak and the doctors have been giving me mixed ...
Travel after ablation...
- By fabu · New reply November 16, 2008
- 5 replies
- Pete is back in U penn hosp... big job yesterday he was airlifted here from jersey Shore... he had 4 zaps on the floor at target ... and 2 more in J.S. .. they went in and ablated 35 spots in lower r ...
anxiety at night
- By formydad · New reply September 25, 2008
- 6 replies
- Well my father was to have his ICD tested last Friday, but instead ended up having a hernia operation. While in the hospital he had some sleep, but I think it was because of the pain med for the hernia ...
what happens when the ICD is tested?
- By formydad · New reply September 7, 2008
- 11 replies
- Hello: My father has to have his ICD tested. He had one implanted 4 weeks ago, and after the procedure they were not able to test it. Can anyone tell me what exactly they do? I'm assuming they have to ...
Anxiety and depression
- By Reneemj · New reply September 3, 2008
- 3 replies
- Since my shocks in May I've been dealing with a lot of anxiety and depression.. at first it was because of the actual event now it's because I have a low vibrating feeling in my chest that's making me ...
Should I be worried?
- By Tammy1 · New reply September 3, 2008
- 7 replies
- I am 38, had my SCA Oct. 23, 2007 and ICD placed Oct. 29, 2007. I am 'perfectly' healthy according to the Dr's and no explaination can be made as to what I have. No Long Q-T syndrome, not Brugada or WPW ...
What one feels after the icd....
- By formydad · New reply August 26, 2008
- 5 replies
- As you can see from my member name "formydad", this is exactly what it's about... I'm writing this on behalf of my dad, he just turned 70 and three weeks yesterday he had an ICD implanted. He has been ...
defib going off every week
- By fabu · New reply August 5, 2008
- 5 replies
- i had my defib installed may 28 and has gone off 5 times, afraid to go back to work, not knowing when it might happen. they say go to the hospital, but the food gettin boring. any suggestions ...
