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Living with an ICD
Share your story with other community members and offer advice and support.
Surgery and the ICD
- By Lydjahh · New reply yesterday at 4:58 pm
- 2 replies
- I facing a major surgery to remove about 12 inches of my colon. Do they deactivate the ICD during the procedure? I have Long QT and scared of the anesthesia and the medications. I was thinking about asking ...
HAS ANYONE OUT THERE HAD MORE THAT ONE PHANTOM SHOCK
- By bingo · New reply yesterday at 12:19 pm
- 12 replies
- Has anyone out there had more than one phantom shock? I have had (2) two. I was told that I dreamed it. If I did then it wasn't funny. I'd just like to know if I'm losing it or have already lost it. bingo ...
Getting ICD for Heart failure - how worried should I be?
- By sonia_66 · New reply November 1, 2009
- 8 replies
- Does anyone else have heart failure? I have been diagnosed and have fears of reaching end-stage heart failure. My medical history includes TIA 1999. History of palpitations since then also. Hypertension ...
After ICD shocks you, then what...
- By CarolG · New reply October 31, 2009
- 6 replies
- Several members/SO's have posted that their ICD has activated one or several times. Then what? Do you have to go to the hospital? Do you just go on with your task? Do you see a white light? Just kidding ...
Heart Fluttering And Pain
- By bluedeuce4 · Posted October 31, 2009
- 0 replies
- I have been getting a lot of heart fluttering in the past two days,and i`m getting the same feeling that i had when my ICD fired before, but it has not fired. I also am getting sharp shooting pain from ...
LQT with an ICD- anyone out there?
- By jencava · New reply October 27, 2009
- 18 replies
- Hi. Is there anyone out there who also has LQT and has a defibrillator? I am a 34 year old. female, mother, and wife, and had a cardiac arrest 3 months ago and a week later received an ICD after finding ...
Famous people
- By Jamesrochelle · New reply October 25, 2009
- 3 replies
- Does anyone know of any famous people with ICD's? I know Dick Cheney but is there anyone else ...
ICD and leading a normal life
- By sonia_66 · New reply October 25, 2009
- 1 reply
- I am terrified at the thought of having an ICD inserted. I am on the waiting list, which is about a month away. I don't know how to prepare myself for this. I currently take heart failure medications ...
Terrible Pain 1 year post op from ICD implant
- By Imcre8ive · New reply October 22, 2009
- 5 replies
- I added to my old post but I needed to hear from others about living with the constant pain. I have to wear a strap less bra on the left hand side. My seat-belt is worn under my armpit, water from the ...
12 weeks since surgery ICD terrific pain in left arm
- By Imcre8ive · New reply October 21, 2009
- 24 replies
- Following my 2nd ablation I experienced prolonged QT's . The following day my doctor gave me an hour to decide if I should have an ICD implanted. To back up a bit. 1987 I suffered V-Fib, thank God it ...
Just had an ICD fitted
- By andybelfast · New reply October 21, 2009
- 12 replies
- Had an SCA on 12th May 2009, survived. Had an Electrophysiology test on 21st Sept which induced an SCA. I now have an ICD fitted. Glad to still be here, any words of wisdom to help me with the 'head ...
will get an ICD at start of October, am a bit scared
- By cindyinohio · New reply October 20, 2009
- 26 replies
- I am mostly concerned about what my life will feel like afterwards, and coming to grips with the idea of the device inside of me, and any possible malfunctions or side effects. I am afraid I will never ...
Getting ICD Implanted Looking for Information
- By khissaadove · New reply October 18, 2009
- 34 replies
- Hello everyone, I have been diagnosed with FDC Familial Dilated Cardiomyopathy with an EF of 27%. I am being advised by my cardiologist to get an ICD to prevent sudden death from a cardiac event as I ...
WHAT SPORTS CAN WE DO WITH AN ICD??
- By blake76 · New reply October 2, 2009
- 11 replies
- Hi, Does anyone know of if a list which has all the do's and don'ts for sports with an ICD? I used to SCUBA dive which I know we cant do but I also used to Kayak and the doctors have been giving me mixed ...
Vibrating
- By ml3046 · Posted September 15, 2009
- 0 replies
- Has anyone experienced there body vibrating with a medtronic icd? I really don't think I was imaging it but this is all new to me ...
LQT and Exercise
- By jencava · New reply September 10, 2009
- 7 replies
- Hi. Is there anyone out there diagnosed with LQT who is willing to share what advice they have been given from their cardiologist regarding exercise? I was diagnosed a few months ago after a SCA and I ...
Just got my ICD, confused and scared
- By flowerdove · New reply September 7, 2009
- 18 replies
- I got my ICD on August 20th, and still recovering. Can anyone tell me how long the recovering process is? I feel like its healing over..i was getting that pulling feeling at first, then the heaviness ...
Constant Head ache after ICD shock
- By alswife · New reply September 4, 2009
- 1 reply
- My husband was shocked 13 times a couple of weeks ago. He spent several days in ICU and the hospital. We have been home over a week but he complains of headaches. He says he feels like he has a hat on ...
5 Months after ICD, site very painful
- By Imcre8ive · New reply September 1, 2009
- 10 replies
- Hi! I have written before about my pain at the site. Not only does it feel like acid burning when even my clothing like a sweater touches it, I accidently tapped it with my hairbrush and I saw stars for ...
My experience with ICD implant
- By Tch4fn · New reply August 31, 2009
- 4 replies
- Hey everyone, I am home! I actually came home yesterday, but was having alot of pain with my right side and breathing. It was excruciating. Everything was fine untinl midnight after surgery and I started ...
