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New discussions
The stages of grief/acceptance
- By Jamesrochelle · Posted November 5, 2009
- In Surviving SCA · 4 replies
- Until this week I had been going along in what I refer now to as denial. My SCA happened in July and within a week I had an ICD. It all happened so fast and without warning. I had a dream last night and ...
HAS ANYONE OUT THERE HAD MORE THAT ONE PHANTOM SHOCK
- By bingo · Posted October 31, 2009
- In Living with an ICD · 12 replies
- Has anyone out there had more than one phantom shock? I have had (2) two. I was told that I dreamed it. If I did then it wasn't funny. I'd just like to know if I'm losing it or have already lost it. bingo ...
Heart Fluttering And Pain
- By bluedeuce4 · Posted October 31, 2009
- In Living with an ICD · 0 replies
- I have been getting a lot of heart fluttering in the past two days,and i`m getting the same feeling that i had when my ICD fired before, but it has not fired. I also am getting sharp shooting pain from ...
Getting ICD for Heart failure - how worried should I be?
- By sonia_66 · Posted October 30, 2009
- In Living with an ICD · 8 replies
- Does anyone else have heart failure? I have been diagnosed and have fears of reaching end-stage heart failure. My medical history includes TIA 1999. History of palpitations since then also. Hypertension ...
Surgery and the ICD
- By Lydjahh · Posted October 28, 2009
- In Living with an ICD · 2 replies
- I facing a major surgery to remove about 12 inches of my colon. Do they deactivate the ICD during the procedure? I have Long QT and scared of the anesthesia and the medications. I was thinking about asking ...
Support for Survivors
- By Aaron-Pennsylvania · Posted October 27, 2009
- In Surviving SCA · 5 replies
- This site is such a great resource for survivors of SCA/SCD (along with ABI) and their family members. In reality, the family members are survivors too. Sometimes the family needs help and insight from ...
After ICD shocks you, then what...
- By CarolG · Posted October 27, 2009
- In Living with an ICD · 6 replies
- Several members/SO's have posted that their ICD has activated one or several times. Then what? Do you have to go to the hospital? Do you just go on with your task? Do you see a white light? Just kidding ...
ICD and leading a normal life
- By sonia_66 · Posted October 25, 2009
- In Living with an ICD · 1 reply
- I am terrified at the thought of having an ICD inserted. I am on the waiting list, which is about a month away. I don't know how to prepare myself for this. I currently take heart failure medications ...
Terrible Pain 1 year post op from ICD implant
- By Imcre8ive · Posted October 21, 2009
- In Living with an ICD · 5 replies
- I added to my old post but I needed to hear from others about living with the constant pain. I have to wear a strap less bra on the left hand side. My seat-belt is worn under my armpit, water from the ...
Names for our ICD's or Diagnoses
- By MartyR · Posted October 21, 2009
- In Surviving SCA · 1 reply
- I happened to notice today two posts on this, our site, referring to names. One named her ICD "Trigger" and another named her elusive arrhythmia "Eleanor". I had my SCA with no earlier heart issues on ...
Famous people
- By Jamesrochelle · Posted October 7, 2009
- In Living with an ICD · 3 replies
- Does anyone know of any famous people with ICD's? I know Dick Cheney but is there anyone else ...
Microvolt T-Wave Alternans (MTWA)
- By Tom-28 · Posted October 4, 2009
- In Medical and scientific research · 0 replies
- New studies question the value/accuracy of MTWA. http://content.onlinejacc.org/cgi/conten t/full/53/14/1245 ...
Auto Racing
- By Tom-28 · Posted October 2, 2009
- In Medical and scientific research · 2 replies
- Here is a new twist to the driving debate. Are there any fellow amature auto racers out here? Some organizations allow me to race. One does not. The one that does not rejects me because the root cause ...
SCA Survivor Celebration in Chicago
- By jtalley · Posted October 1, 2009
- In Surviving SCA · 4 replies
- Hi everybody, October is National Sudden Cardiac Arrest Awareness Month, and the Sudden Cardiac Arrest Association is hosting an SCA Survivor Celebration on Friday, October 9, 2009, from 7:00 – 10:00 ...
Swine Flu
- By Tch4fn · Posted September 28, 2009
- In Surviving SCA · 6 replies
- Yep, I got it! I have been so sick since Friday night. I have not been out of the bed except to the restroom and soak in the tub. Should have known, I was around several students last week that were confirmed ...
Just had an ICD fitted
- By andybelfast · Posted September 24, 2009
- In Living with an ICD · 12 replies
- Had an SCA on 12th May 2009, survived. Had an Electrophysiology test on 21st Sept which induced an SCA. I now have an ICD fitted. Glad to still be here, any words of wisdom to help me with the 'head ...
Support Group
- By redhead4u777 · Posted September 22, 2009
- In Surviving SCA · 0 replies
- There will be a support group for women with heart disease starting in Lower Westchester County, Ny at the end of October. It is sponsored by the National Coalition for Women with Heart Disease. Please ...
Vibrating
- By ml3046 · Posted September 15, 2009
- In Living with an ICD · 0 replies
- Has anyone experienced there body vibrating with a medtronic icd? I really don't think I was imaging it but this is all new to me ...
So glad to meet you all
- By MartyR · Posted September 15, 2009
- In Surviving SCA · 11 replies
- I am a new survivor of SCA. My event was 9/5; I was lucky that I had some atrial fibrillation that took me to the ER. Right after I got there, I had the SCA. I had no heart condition, no prior events ...
will get an ICD at start of October, am a bit scared
- By cindyinohio · Posted September 13, 2009
- In Living with an ICD · 26 replies
- I am mostly concerned about what my life will feel like afterwards, and coming to grips with the idea of the device inside of me, and any possible malfunctions or side effects. I am afraid I will never ...
