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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
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There is hope, there is help.
- By Aaron-Pennsylvania · Posted November 5, 2009
- Journal · 1 reply
- At times I felt alone and no one understood what I was going through. Well, that was true regarding the people around me. Other than Samantha's family and myself, the people in our circle could not understand ...
The stages of grief/acceptance
- By Jamesrochelle · Posted November 5, 2009
- Discussion in Surviving SCA · 4 replies
- Until this week I had been going along in what I refer now to as denial. My SCA happened in July and within a week I had an ICD. It all happened so fast and without warning. I had a dream last night and ...
ICD, LQT, low potassium
- By edmar · Posted November 3, 2009
- Journal · 0 replies
- I'm a SCA survivor, and i'm lucky to be alive again. I fainted, April 23, 2009, the reason i was rushed to the hospital. I was admitted for 12 days, and after a series of tests and investigation, my doctor ...
6 months for Steve
- By wdiane · Posted November 2, 2009
- Journal · 6 replies
- 6 months ago today was the worse day of my life! On that day I felt that life would never be the same and was wondering if Steve was going to live or die. Well, Life is not the same but it is good. We ...
HAS ANYONE OUT THERE HAD MORE THAT ONE PHANTOM SHOCK
- By bingo · Posted October 31, 2009
- Discussion in Living with an ICD · 12 replies
- Has anyone out there had more than one phantom shock? I have had (2) two. I was told that I dreamed it. If I did then it wasn't funny. I'd just like to know if I'm losing it or have already lost it. bingo ...
Heart Fluttering And Pain
- By bluedeuce4 · Posted October 31, 2009
- Discussion in Living with an ICD · 0 replies
- I have been getting a lot of heart fluttering in the past two days,and i`m getting the same feeling that i had when my ICD fired before, but it has not fired. I also am getting sharp shooting pain from ...
How long does Billy have with an ef of 29??
- By sophianbilly · Posted October 31, 2009
- Journal · 10 replies
- his defib/pacemaker was implanted in June 2009 when he was still at UCH after a chronic heart happened on April 2009......He had anoxia to his brain and heart which is why they waited soooo long....He ...
Mikei red reishi mushroom?
- By antonella · Posted October 30, 2009
- Journal · 2 replies
- A friend of mine told me about this mushroom. was wondering does anyone know anything about it and is anyone using it? I know it's been used in Japan and China for many years. Any feedback apreciated ...
Getting ICD for Heart failure - how worried should I be?
- By sonia_66 · Posted October 30, 2009
- Discussion in Living with an ICD · 8 replies
- Does anyone else have heart failure? I have been diagnosed and have fears of reaching end-stage heart failure. My medical history includes TIA 1999. History of palpitations since then also. Hypertension ...
Surgery and the ICD
- By Lydjahh · Posted October 28, 2009
- Discussion in Living with an ICD · 2 replies
- I facing a major surgery to remove about 12 inches of my colon. Do they deactivate the ICD during the procedure? I have Long QT and scared of the anesthesia and the medications. I was thinking about asking ...
Inspire members featured
- By Brian · Posted October 28, 2009
- Journal · 29 replies
- Today Massachusetts General Hospital's Proto Magazine published a wonderful profile of nine Inspire members. Each of these stories underscores what we all know to be true -- that Inspire is a special ...
Support for Survivors
- By Aaron-Pennsylvania · Posted October 27, 2009
- Discussion in Surviving SCA · 5 replies
- This site is such a great resource for survivors of SCA/SCD (along with ABI) and their family members. In reality, the family members are survivors too. Sometimes the family needs help and insight from ...
After ICD shocks you, then what...
- By CarolG · Posted October 27, 2009
- Discussion in Living with an ICD · 6 replies
- Several members/SO's have posted that their ICD has activated one or several times. Then what? Do you have to go to the hospital? Do you just go on with your task? Do you see a white light? Just kidding ...
Happy Ending (or is it "Happy Beginning"?
- By CarolG · Posted October 26, 2009
- Journal · 3 replies
- I had my "incident" May 2, 2009. I believe that we who are the survivors of the SCA and have no memory of it are the fortunate ones: the family and friends who wait for us to get better are really the ...
2009 SCAA CONFERENCE !
- By mis2002 · Posted October 25, 2009
- Journal · 1 reply
- The SCAA Conference this year was another amazing and inspiring event. My husband, Jack ( SCA Survivor ) and I are part of the San Francisco Bay Area Chapter and are proud to be Members of SCAA since ...
ICD and leading a normal life
- By sonia_66 · Posted October 25, 2009
- Discussion in Living with an ICD · 1 reply
- I am terrified at the thought of having an ICD inserted. I am on the waiting list, which is about a month away. I don't know how to prepare myself for this. I currently take heart failure medications ...
Never thought I'd get this news...
- By Brianne · Posted October 24, 2009
- Journal · 16 replies
- I got AMAZING news today!!!! I had another echocardiogram this week. It's been over 2 years since my cardiac arrest and diagnosis with: long qt, idiopathic nonischemic dilated cardiomyopathy with an ejection ...
Cost of ICD's
- By Twndd · Posted October 23, 2009
- Journal · 35 replies
- Hi all, I am curious as to how much your ICD has cost you. If your insurance picked up some of the cost and if you had a large balance. I just read that it could cost $45,000. WOW!! I know my life is ...
today is my re-birth day!
- By Tammy1 · Posted October 23, 2009
- Journal · 10 replies
- Two years ago today I had a Sudden Cadiac Arrest and died for several minutes. I am so thankful to be alive and charish every day with my family. The thought of it all is sometimes overwhelming but it ...
Has anyone ever tried a rehabilation for severe brain injuries?
- By cheriffic · Posted October 22, 2009
- Journal · 7 replies
- If so, can you let me if insurance covers it? And most importantly, did it help ...
