Join now

Already a member? Sign in

Welcome to Inspire!

What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.

Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.

How - Joining Inspire is completely free and usually takes less than a minute. Join now!

corner corner corner

Journals

reply

glenbobbitt
  • By glenbobbitt · Posted November 18, 2009
  • 0 replies
  • Thanks to everyone for the support. I am not much of a typist and not too good at working the website but it is comforting to see that i am not alone ...

misdiagnosis?

glenbobbitt
  • By glenbobbitt · Posted November 17, 2009
  • 3 replies
  • The head neurologost at UAMS in little rock told me Vicki would never walk on her own, talk, or see(cortical blindness). Yesterday I had her at home for a 2 hour visit when my talking caller id said,Call ...

Head Injury and SCA our story

Buldozers
  • By Buldozers · Posted November 15, 2009
  • 3 replies
  • In 1995 my husband went four wheeling with his buddies out at the desert, they rolled 70 feet end over end, the result was 6 concussions and TBI(traumatic brain injury). At the time we were just friends ...

Only feelings of despair.

wfreebird23
  • By wfreebird23 · Posted November 13, 2009
  • 5 replies
  • With all that's gone on in my life and our country in the past year or so, I am sad most of the time. Although I am very good at mockery and covering up my feelings. I think I do this so I don't intrude ...

Meet the medic: a real shocker!

rturri
  • By rturri · Posted November 11, 2009
  • 4 replies
  • When I woke up this morning, Nov. 11, I remembered two things.Today is my birthday and I still hadn't met the last one of the paramedics who came to my rescue when I had my sca on April 6, 2008. So, I ...

Longevity following a SCA??

Buldozers
  • By Buldozers · Posted November 11, 2009
  • 13 replies
  • My husband is 43 he had a SCA at the Gym in 1/09 Praise the Lord he survived and now has the ICD. Does anyone know how long of life the prognosis is following this? He has a healthy heart the cause was ...

Amazing!

maureengraz
  • By maureengraz · Posted November 7, 2009
  • 17 replies
  • Vince spent three hours raking leaves and mowing the lawn today without any shortness of breath. All that with an EF of 25%!!!!!! Simply amazing ...

There is hope, there is help.

Aaron-Pennsylvania
  • By Aaron-Pennsylvania · Posted November 5, 2009
  • 3 replies
  • At times I felt alone and no one understood what I was going through. Well, that was true regarding the people around me. Other than Samantha's family and myself, the people in our circle could not understand ...

ICD, LQT, low potassium

edmar
  • By edmar · Posted November 3, 2009
  • 6 replies
  • I'm a SCA survivor, and i'm lucky to be alive again. I fainted, April 23, 2009, the reason i was rushed to the hospital. I was admitted for 12 days, and after a series of tests and investigation, my doctor ...

6 months for Steve

wdiane
  • By wdiane · Posted November 2, 2009
  • 6 replies
  • 6 months ago today was the worse day of my life! On that day I felt that life would never be the same and was wondering if Steve was going to live or die. Well, Life is not the same but it is good. We ...

How long does Billy have with an ef of 29??

sophianbilly
  • By sophianbilly · Posted October 31, 2009
  • 10 replies
  • his defib/pacemaker was implanted in June 2009 when he was still at UCH after a chronic heart happened on April 2009......He had anoxia to his brain and heart which is why they waited soooo long....He ...

Mikei red reishi mushroom?

antonella
  • By antonella · Posted October 30, 2009
  • 2 replies
  • A friend of mine told me about this mushroom. was wondering does anyone know anything about it and is anyone using it? I know it's been used in Japan and China for many years. Any feedback apreciated ...

Inspire members featured

Brian
  • By Brian · Posted October 28, 2009
  • 29 replies
  • Today Massachusetts General Hospital's Proto Magazine published a wonderful profile of nine Inspire members. Each of these stories underscores what we all know to be true -- that Inspire is a special ...

Happy Ending (or is it "Happy Beginning"?

CarolG
  • By CarolG · Posted October 26, 2009
  • 3 replies
  • I had my "incident" May 2, 2009. I believe that we who are the survivors of the SCA and have no memory of it are the fortunate ones: the family and friends who wait for us to get better are really the ...

2009 SCAA CONFERENCE !

mis2002
  • By mis2002 · Posted October 25, 2009
  • 1 reply
  • The SCAA Conference this year was another amazing and inspiring event. My husband, Jack ( SCA Survivor ) and I are part of the San Francisco Bay Area Chapter and are proud to be Members of SCAA since ...

Never thought I'd get this news...

Brianne
  • By Brianne · Posted October 24, 2009
  • 16 replies
  • I got AMAZING news today!!!! I had another echocardiogram this week. It's been over 2 years since my cardiac arrest and diagnosis with: long qt, idiopathic nonischemic dilated cardiomyopathy with an ejection ...

Cost of ICD's

Twndd
  • By Twndd · Posted October 23, 2009
  • 35 replies
  • Hi all, I am curious as to how much your ICD has cost you. If your insurance picked up some of the cost and if you had a large balance. I just read that it could cost $45,000. WOW!! I know my life is ...

today is my re-birth day!

Tammy1
  • By Tammy1 · Posted October 23, 2009
  • 10 replies
  • Two years ago today I had a Sudden Cadiac Arrest and died for several minutes. I am so thankful to be alive and charish every day with my family. The thought of it all is sometimes overwhelming but it ...

Has anyone ever tried a rehabilation for severe brain injuries?

cheriffic
  • By cheriffic · Posted October 22, 2009
  • 7 replies
  • If so, can you let me if insurance covers it? And most importantly, did it help ...

May your days be long and many

edb4pax
  • By edb4pax · Posted October 22, 2009
  • 0 replies
  • I read with much empathy several journal entries from others who have experienced SCA and more in their lives. I count my blessings that I have only had to deal with my singular SCA event. Yes, it took ...

Group leaders

You