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Active discussions
Getting ICD for Heart failure - how worried should I be?
- By sonia_66 · New reply 7:09 pm
- In Living with an ICD · 12 replies
- Does anyone else have heart failure? I have been diagnosed and have fears of reaching end-stage heart failure. My medical history includes TIA 1999. History of palpitations since then also. Hypertension ...
Can you wear an exercise heart monitor with an ICD?
- By blake76 · New reply 9:36 am
- In Living with an ICD · 3 replies
- Hi Does anyone use a heart monitor watch & chest strap with an ICD? (i.e. Suunto) I have a St Judes ICD but I am considering getting a heart rate monitor watch for when I play sports. I know the ICD knows ...
Nadolol
- By jencava · New reply yesterday at 11:08 am
- In Living with an ICD · 3 replies
- Is there anyone out there who is currently on the medication Nadolol as a beta-blocker for LQT? I was recently switched off of Inderal to Nadolol and have been on it for about a week or so now and wondering ...
ICD and sex?
- By wibbi · New reply November 9, 2009
- In Living with an ICD · 2 replies
- My boyfriend is concerned i could get shocked by the defibrillator during sex. How can i stop him from beeing scared ...
LQT with an ICD- anyone out there?
- By jencava · New reply November 9, 2009
- In Living with an ICD · 19 replies
- Hi. Is there anyone out there who also has LQT and has a defibrillator? I am a 34 year old. female, mother, and wife, and had a cardiac arrest 3 months ago and a week later received an ICD after finding ...
HAS ANYONE OUT THERE HAD MORE THAT ONE PHANTOM SHOCK
- By bingo · New reply November 9, 2009
- In Living with an ICD · 13 replies
- Has anyone out there had more than one phantom shock? I have had (2) two. I was told that I dreamed it. If I did then it wasn't funny. I'd just like to know if I'm losing it or have already lost it. bingo ...
Heart Fluttering And Pain
- By bluedeuce4 · New reply November 8, 2009
- In Living with an ICD · 1 reply
- I have been getting a lot of heart fluttering in the past two days,and i`m getting the same feeling that i had when my ICD fired before, but it has not fired. I also am getting sharp shooting pain from ...
The stages of grief/acceptance
- By Jamesrochelle · New reply November 6, 2009
- In Surviving SCA · 4 replies
- Until this week I had been going along in what I refer now to as denial. My SCA happened in July and within a week I had an ICD. It all happened so fast and without warning. I had a dream last night and ...
Surgery and the ICD
- By Lydjahh · New reply November 6, 2009
- In Living with an ICD · 2 replies
- I facing a major surgery to remove about 12 inches of my colon. Do they deactivate the ICD during the procedure? I have Long QT and scared of the anesthesia and the medications. I was thinking about asking ...
Support for Survivors
- By Aaron-Pennsylvania · New reply November 5, 2009
- In Surviving SCA · 5 replies
- This site is such a great resource for survivors of SCA/SCD (along with ABI) and their family members. In reality, the family members are survivors too. Sometimes the family needs help and insight from ...
After ICD shocks you, then what...
- By CarolG · New reply October 31, 2009
- In Living with an ICD · 6 replies
- Several members/SO's have posted that their ICD has activated one or several times. Then what? Do you have to go to the hospital? Do you just go on with your task? Do you see a white light? Just kidding ...
Medtronic Home Monitor
- By Maridee · New reply October 29, 2009
- In Surviving SCA · 7 replies
- Hi everyone, I just have a question that we can't seem to get answered. My husband has the Medtronic Home monitor for his defib/pacemaker. It clicks sporadically during the night. Medtronic said they ...
Famous people
- By Jamesrochelle · New reply October 25, 2009
- In Living with an ICD · 3 replies
- Does anyone know of any famous people with ICD's? I know Dick Cheney but is there anyone else ...
ICD and leading a normal life
- By sonia_66 · New reply October 25, 2009
- In Living with an ICD · 1 reply
- I am terrified at the thought of having an ICD inserted. I am on the waiting list, which is about a month away. I don't know how to prepare myself for this. I currently take heart failure medications ...
Terrible Pain 1 year post op from ICD implant
- By Imcre8ive · New reply October 22, 2009
- In Living with an ICD · 5 replies
- I added to my old post but I needed to hear from others about living with the constant pain. I have to wear a strap less bra on the left hand side. My seat-belt is worn under my armpit, water from the ...
Names for our ICD's or Diagnoses
- By MartyR · New reply October 22, 2009
- In Surviving SCA · 1 reply
- I happened to notice today two posts on this, our site, referring to names. One named her ICD "Trigger" and another named her elusive arrhythmia "Eleanor". I had my SCA with no earlier heart issues on ...
12 weeks since surgery ICD terrific pain in left arm
- By Imcre8ive · New reply October 21, 2009
- In Living with an ICD · 24 replies
- Following my 2nd ablation I experienced prolonged QT's . The following day my doctor gave me an hour to decide if I should have an ICD implanted. To back up a bit. 1987 I suffered V-Fib, thank God it ...
Just had an ICD fitted
- By andybelfast · New reply October 21, 2009
- In Living with an ICD · 12 replies
- Had an SCA on 12th May 2009, survived. Had an Electrophysiology test on 21st Sept which induced an SCA. I now have an ICD fitted. Glad to still be here, any words of wisdom to help me with the 'head ...
will get an ICD at start of October, am a bit scared
- By cindyinohio · New reply October 20, 2009
- In Living with an ICD · 26 replies
- I am mostly concerned about what my life will feel like afterwards, and coming to grips with the idea of the device inside of me, and any possible malfunctions or side effects. I am afraid I will never ...
Getting ICD Implanted Looking for Information
- By khissaadove · New reply October 18, 2009
- In Living with an ICD · 34 replies
- Hello everyone, I have been diagnosed with FDC Familial Dilated Cardiomyopathy with an EF of 27%. I am being advised by my cardiologist to get an ICD to prevent sudden death from a cardiac event as I ...
