We need more people to come into our schools and educate "us". Although I had sudden cardiac death at home due to lqtll, my co-workers could not distinguish the difference between that and a heart attack. Some of the most hurtful things said to me was, thank God it wasn't a heart attack! I want to scream "Excuse me, I DIED for 5 minutes". To add insult to injury, there is no defibrillator on campus. Our school are competively involved in many sports, What about our children!! But our administration believes that having a nurse somewhere on campus is sufficient!
Bottom line is education for everyone! People need to know that it is not only old men who drop dead because of their heart. If anyone knows someone who can educate my school in an assembly, please help me get in contact with them.
Sorry this is long, but it is becoming my passion.
Vicki /Tch4fn
Already a member? Sign in
Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Educating our schools
- By Tch4fn
- Posted July 7, 2009 at 6:58 pm · 9 replies
- In State and local advocacy
- Shared with the public
- Edited July 8, 2009 at 2:41 am
Explore topics in this discussion:
9 replies
- Oldest first
- Newest first
- By danmontana
- Posted July 8, 2009 at 10:14 am
- Report post
I totally agree with you. We need to start educating the public. Please let me know how I can help. I can be reached by email dturell@cpr-tc.com or 406-545-3219 ext 2002
- By Tammy1
- Posted July 8, 2009 at 9:45 pm
- Report post
I am with you on that! After my SCA I tried to get my kids schools to listen to me, for educating the teachers. I only got, talk with the PTA and if they want to go forward then they can! No one, not the superintendent, nurses, teachers, no one would listen!! I did manage to get some material into the teachers boxes but only once; I was stopped after that! I am working on the PTA for 09/10 school year we will see how that goes; last year no one would listen either.
Yes, we need a bigger voice and I am seeing what I can do about that where I live and hopefully on a bigger note!
My 3 bio-children have since been diagnosed with LQT type 3 (e/p lab diagnosis)as well and we are in the process of genetic testing we will see how that goes!
Please don't be sorry for being long! This becomes a passion quickly!
- By Tch4fn
- Posted July 8, 2009 at 11:56 pm
- Report post
Tammy, That is a great idea to get the PTA involved. Maybe you can brainstorm at the first meeting. Maybe some of your parents have connections to doctors that would be willing to come speak to an assembly. Just let people know what to look for, where to find a defibrillator, etc. I mean how many times have we seen on the news where an athlete or student in phys ed just collapses. Come on, somebody has to listen! Hopefully before it happens to their school, and their family. Wish I knew what else to do.
I noticed that your children did test positive. I am sorry, but think how blessed that you know. Knowledge is power. Your children definitely need a safe place and to be surrounded with people in the know. My children are older, my baby girl is 19, middle daughter is 22, and my son is 24. Only one has not been tested. She has been in Ireland student teaching, so she says this week. I just have to keep after her! My other two were negative on the ecg. Hopefully that will hold true for her also. We are all praying about it.
If you have any other ideas for educating schools, let me know, I am still searching for answers too.
- By Tammy1
- Posted July 9, 2009 at 8:57 am
- Report post
Yes, getting the PTA involved is good. I am putting together information packets for them and preparing a poster board that can be set up at an information table by the refreshments. Maybe I can get things changed!
My kids are older as well. Son 20, daughters 18 & 17. All of our ECG's are all normal and only test positive during EP studies and symptoms. My ECG only changes when I am having an episode. Type 3 is different from the other LQT forms as it happens at rest and during sleep.
Hope all is well with you and your kids.
- By sgriggs89
- Posted July 10, 2009 at 10:27 am
- Report post
Our governor signed a bill recently requriring AEDs in all Alabama public schools and providing training for faculty and staff. These are already in place in my school system and should be coming soon to yours! Thank the Lord you didn't collapse at school!!!
http://www.timesdaily.com/article/20090522/news/905229989?Title=Riley-signs -disclosure-school-defibrillator-bills
- By abioty
- Posted November 22, 2009 at 11:41 am
- Report post
My daughter has long qt and had a icd put in this past September. Thank goodness she was at home when she had her sca, I was able to perform cpr on her until the ems arrived. Went to parent/teacher conferences last week..asked her 7 teachers about them knowing cpr..only 1 teacher knew it, another teacher said he felt comfortable knowing that the teacher acrossed the hall knew it. Why oh why are all of the teachers not trained in cpr.
- By Tammy1
- Posted November 23, 2009 at 10:32 am
- Report post
abioty,
My children have long QT as well and their teachers are the same way! It is so upsetting that this is voluntary and they act as though it is no 'big deal' as one of them put it!
It needs to change from the school board and they are not listening either since they know all their kids are 'healthy' and if not the parents will let them know.
We need to work at getting these educated idiots educated!! (not all teachers are idiots, but it is the trend!)
Tammy
- By wdiane
- Posted November 24, 2009 at 10:53 am
- Report post
Hey Vickie,
I know I haven't chatted with you in a long time-please forgive. Sometimes my job becomes so all consuming I lose touch with everything else. You are so right!! The schools here in Kokomo have AED's because a hosptial donated them. One of my goals is to have an AED everywhere the public gathers. People don't realize that SCA is no respecter of age. We had a teen age boy who had one in school and thank goodness they had an AED. Education is so needed!
I'll talk to you later!
Diane
- By abioty
- Posted November 24, 2009 at 4:09 pm
- Report post
And another thing that gets to me about the teachers not knowing cpr, in our state (michigan), in order to run a licensed daycare you have to be cpr trained, so why shouldn't it be the same way for the teachers.
I actually had one teacher look at me and say "well, we've never had to use cpr before". I was like well I never expected to use it either but I had too. And when you try to explain about the long qt and the icd, they get the deer in the headlight look.
Add to the discussion