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I forgot to mention in previous post, but I also have COPD, degenerative disc disease, severe scoliosis along with congestive heart failure and a pacemaker implanted after cardiac arrest. Every day is a struggle and I am not sure if it needs to be. I think I have very good doctors, but maybe there is something I am missing! Thanks for listening. Am I just expecting too much from my medicine?
Heart failure Scoliosis Degenerative disc disease Pacemaker Congestive heart failure
Hello, My husband sufferred a cardiac arrest and subsequent triple bypass in February, recently had a single chamber AICD placed, and is now starting to experience symptoms of CHF(labored breathing, fatigue). His doctors are going to try titrating his medications first, and upgrading his device to a dual chamber PM/AICD. We just came from a heart failure specialist today and from what he said, there is always something that they can try to decrease the symptoms. Have you discussed how you're feeling with your doctors? Maybe there are some changes that can be made in your medications.
I wish the best for you and hope you start to feel better soon!
Thanks for replying. I appreciate it so much. I am about at my wit's end!! I think my doctors have about adjusted my medicine so many times, I have been on everything known to man. I was diagnosed with CHF in 2001. By early 2002, I underwent treatments at the CHF center at the hospital twice a week for 3 years. It was an IV that lasted about half a day. The medication was Primocor. Specialists monitored me extensivly and I had a nurse to call 24 hours a day. So much has happened, I truly feel lucky to be alive and am very thankful. I just wish I could feel better. I have been able to decrease my oxygen which is a plus. At the time I was having the Primocor IV, doctors thought the way my heart was, I would only live a couple of years. Ta Da!! I sure fooled them, but I so wish I felt decent. I feel like such a burden, because I can't do much. Sometimes it is a mojor accomplishment just to put my clothes on! I really don't mean to complain, but my personality has changed so much and I can't remember anything! Thanks for listening.
Polly:
Sounds like you finally got what I have had for years: CRS syndrome!
But you "just" got your CRS diagnosis where I have been fighting it for at least 3 or 4 years. And I'm only 51! I don't think there is any real cure and I am pretty sure millions suffer not knowing they even have CRS. No research dollars go to it. No medication or therapy helps CRS.
But the good news is that no one has actually died of "Can't Remember Shit" syndrome.
:)
Deb
Thanks, Deb. Boy, did I ever need that!!!
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