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Does anyone feel better after diagnosis/treatment?

Tch4fn
  • By Tch4fn
  • Posted July 19, 2009 at 11:11 pm · 8 replies
  • In Surviving SCA
  • Shared with the public
  • Edited July 25, 2009 at 6:41 am
0 Recommendations

I am just wondering if anyone's physical life improved after sca and diagnosis. especially long qt?

I know that it has been awhile since I could truthfully say that I felt great or even good. Of course my children are college age and older. So I have the empty nest syndrome, but I know I should feel better than this. I thought it might be depression, but have ruled that out. I just have lost my interest and energy to achieve.

Anyway, I am hoping it returns. One of my doctors cheered me up in the first few days ==NOT === He said get used to it, this is life with lqt, at least you are alive!
Boy, I hope he was wrong. There should be so much more!

Vicki

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8 replies

wdiane

Vickie,
I am sorry that you are having such a rough time of it! It may be some depression-I think that that is a common occurance with all of this. My husband is doing really very well but I notice that he is much quieter and does not laugh so much. He used to be a real jokester but not any more. I am hopeful that that will all come back.
I'll be praying that you will be able to "get your groove back".
Diane

Debra71508

"I am just wondering if anyone's physical life improved after sca and diagnosis."

Vicki:

It depends what you mean by "after." You had your SCA in April THIS year, just 3 months ago, if I read your profile correctly. I can tell you my life and my husband's life were no where near "improved" just 3 months after his February 2008 SCA!

Be very patient with yourself. You have survived a wrestling match with the Grim Reaper. It changes you and especially the first months post-trauma are the most difficult.

But remember, too that our lives are always changing and if you are one of those who want to always feel 16, you are going to be disappointed - SCA - or not.

Going through mid-life changes, heart issues, thinning/graying hair, thickening middles, stiff joints, not to mention hot flashes & the "changes" reserved for us women, isn't exactly fun. Aging is not for sissies!

But your physical and mental life can "improve" after SCA if your luck and attitude are right. Don't expect to feel like you were a kid again but do expect - eventually - to genuinely feel that some of the best days of your life actually are NOW. As the months go by time and distance from your SCA will begin to heal you in a manner you can't fathom from where you sit today.

I don't mean to be a jerk here but I'm interested that you say "I ruled out depression." Are you a Psychiatrist? The correct anti-depressant given for even a short period of time can do wonders. Don't assume you need it for life and don't assume that bright and as well educated as you are that you should waiving off a diagnosis of that type. I would urge you to at least talk with a well respected Head Shrinker if you go another month without finding some tangible improvement.

I really hope this helps.

D

Tch4fn

Thanks Debra,
I am actually feeling better than I did when I wrote the post before.
My problem is that none of the close people around me believe this should change my life as much as it seems to have. Inlaws, blow it off and say "Thank God you did not have a heart attack." My husband thinks that I should be back to full force normal. By the way, he listens to his family, they are are emt's and run ambulances, although they were not with me when my episode happened. And they do not understand LQT2 at all, never even heard of it so how serious could it be.
I start back to work in less than 2 weeks, I teach 6th Grade and the majority of my co=workers just don't ask or understand.
And when I try to explain the triggers I face TO People they look like I am crazy.
1. loud noises without warning
2 school bells unexpectedly (OUTSIDE MY ROOM)
time always gets by and i am never ready!
3. surprises
4, noises, loud phones, alarm clocks, etc.
5. increased adrenaline,
6. exercise (very light only)
7. stress stress stress
8. emotions
9. unhealthy eating

Anyway, I am my usual self returns. One of my doctors cheered me up in the first few days NOT NOT NOT === He said get used to it, this is life with lqt, at least you are alive!
Boy, I hope he was wrong. There should be so much more!

And no, I am 45yo, I will feel happy it I can just try to get through at least half a day without collapsing.
Vicki

Tch4fn

Diane,
Yeah, sure some of it is depression. I just meant that I have happy times. I do not want to see another therapist, insurance covered 0 from when I was in ccu and it is out pocket around 300.00 for a few minutes (she was on the phone most of the time. )
Like your husband, my personality has changed, I am quiet and not in the center of conversation laughing. I get the feeling people are not comfortable talking to me, They rarely ask about what happened to me, I don't know if they don't care, are afraid to upset me, or think it was nothing significant.\'
Keep the information coming it really helps@!
Vicki

wdiane

Vicky,
I don't think most people understand what you have gone through. It is easier for them if they don't have to think about it because if they do, it could happen to them. Hnag in there, you have a friend in Indiana! I think about you often and remember you in my prayers. I know that it cannot do anything but affect you when people say or do things that show that they don't understand but just try to get past it. They do not know! I wish you were here so we could sit down with a cup of tea and talk in my cozy room.
Diane

Johnie

Hi Vicky,
Hope this is a good day for you. I sort of had the opposite problem -- people wanted to smother me, talk about it again and again, husband overprotective -- and all I wanted was to get "back to normal." However, going back to school was a very big deal for me (I work with special needs kids) -- and I had a lot longer time off than you (January to September two years ago). I will be thinking about you this Fall, and praying that you find a support system (at least one understanding friend) to lean on. Johnie

Tch4fn

Diane,
Thanks so much! If the first day of school is too bad, I may be sitting in your cozy little room chatting with a glass of iced sweet tea! decaf of course@!
Thanks for the support and understanding.
Vicki

Tch4fn

Hi Johnnie,
Thanks for the support and prayers! Two weeks to go. I actually went school shopping this weekend and felt pretty good. Last week at this time I would have thought it was impossible. God can create wonders!
When do you start back? I am starting to get a little excited! Talk to you soon.
Vicki

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