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Thanksgiving Blessings

maureengraz
  • By maureengraz · New reply yesterday at 10:34 pm
  • Journal · 2 replies
  • I hope you all have a blessed Thanksgiving! I know our family will be reflecting back on how this past year changed our lives... Enjoy ...

How did this happen??

Buldozers
  • By Buldozers · New reply November 25, 2009
  • Journal · 4 replies
  • In January will be one year since my husbands SCA. As I have said it has resurfaced symptoms from his head injury. It took me until about a month ago to be able to admit that I had lost yet another piece ...

People are dying from SCA in buildings equipped with AEDs

erfisch
  • By erfisch · Posted November 25, 2009
  • Discussion in State and local advocacy · 0 replies
  • The most public of this type of situation was the death of Tim Russert. In spite of a D.C. law requiring the registration of AEDs, 9-1-1 was clueless that an AED was in the building and when someone remembered ...

Can you wear an exercise heart monitor with an ICD?

blake76
  • By blake76 · New reply November 25, 2009
  • Discussion in Living with an ICD · 9 replies
  • Hi Does anyone use a heart monitor watch & chest strap with an ICD? (i.e. Suunto) I have a St Judes ICD but I am considering getting a heart rate monitor watch for when I play sports. I know the ICD knows ...

Educating our schools

Tch4fn
  • By Tch4fn · New reply November 24, 2009
  • Discussion in State and local advocacy · 9 replies
  • We need more people to come into our schools and educate "us". Although I had sudden cardiac death at home due to lqtll, my co-workers could not distinguish the difference between that and a heart attack ...

Wife/Caregiver

Buldozers
  • By Buldozers · New reply November 24, 2009
  • Journal · 5 replies
  • May the Lord give me wisdom and strength. Some days are harder than others. May the Lord give me patience and grace for those around me, Some days are harder than others Lately I have have felt so frustrated ...

Arrhythmias

redhead4u777
  • By redhead4u777 · New reply November 23, 2009
  • Journal · 12 replies
  • In my mind I was planning out my day, mindlessly performing my pre-work morning rituals. Make my lunch-check. Iron my shirt-check. Wake up on the kitchen floor. What? Did I just faint again? On the way ...

ICD and sex?

wibbi
  • By wibbi · New reply November 22, 2009
  • Discussion in Living with an ICD · 3 replies
  • My boyfriend is concerned i could get shocked by the defibrillator during sex. How can i stop him from beeing scared ...

Getting ICD for Heart failure - how worried should I be?

sonia_66
  • By sonia_66 · New reply November 20, 2009
  • Discussion in Living with an ICD · 12 replies
  • Does anyone else have heart failure? I have been diagnosed and have fears of reaching end-stage heart failure. My medical history includes TIA 1999. History of palpitations since then also. Hypertension ...

Amazing!

maureengraz
  • By maureengraz · New reply November 20, 2009
  • Journal · 17 replies
  • Vince spent three hours raking leaves and mowing the lawn today without any shortness of breath. All that with an EF of 25%!!!!!! Simply amazing ...

Head Injury and SCA our story

Buldozers
  • By Buldozers · New reply November 20, 2009
  • Journal · 3 replies
  • In 1995 my husband went four wheeling with his buddies out at the desert, they rolled 70 feet end over end, the result was 6 concussions and TBI(traumatic brain injury). At the time we were just friends ...

Nadolol

jencava
  • By jencava · New reply November 19, 2009
  • Discussion in Living with an ICD · 3 replies
  • Is there anyone out there who is currently on the medication Nadolol as a beta-blocker for LQT? I was recently switched off of Inderal to Nadolol and have been on it for about a week or so now and wondering ...

There is hope, there is help.

Aaron-Pennsylvania
  • By Aaron-Pennsylvania · New reply November 18, 2009
  • Journal · 3 replies
  • At times I felt alone and no one understood what I was going through. Well, that was true regarding the people around me. Other than Samantha's family and myself, the people in our circle could not understand ...

reply

glenbobbitt
  • By glenbobbitt · Posted November 18, 2009
  • Journal · 0 replies
  • Thanks to everyone for the support. I am not much of a typist and not too good at working the website but it is comforting to see that i am not alone ...

misdiagnosis?

glenbobbitt
  • By glenbobbitt · New reply November 18, 2009
  • Journal · 3 replies
  • The head neurologost at UAMS in little rock told me Vicki would never walk on her own, talk, or see(cortical blindness). Yesterday I had her at home for a 2 hour visit when my talking caller id said,Call ...

Where do I go from here?

Promise
  • By Promise · New reply November 17, 2009
  • Journal · 7 replies
  • Although I have not been very active in this forum, your posts have provided me with much hope and connection to a group of people who share very similar experiences. I really appreciate how you all conditionally ...

Only feelings of despair.

wfreebird23
  • By wfreebird23 · New reply November 16, 2009
  • Journal · 5 replies
  • With all that's gone on in my life and our country in the past year or so, I am sad most of the time. Although I am very good at mockery and covering up my feelings. I think I do this so I don't intrude ...

ICD, LQT, low potassium

edmar
  • By edmar · New reply November 14, 2009
  • Journal · 6 replies
  • I'm a SCA survivor, and i'm lucky to be alive again. I fainted, April 23, 2009, the reason i was rushed to the hospital. I was admitted for 12 days, and after a series of tests and investigation, my doctor ...

Longevity following a SCA??

Buldozers
  • By Buldozers · New reply November 14, 2009
  • Journal · 13 replies
  • My husband is 43 he had a SCA at the Gym in 1/09 Praise the Lord he survived and now has the ICD. Does anyone know how long of life the prognosis is following this? He has a healthy heart the cause was ...

Meet the medic: a real shocker!

rturri
  • By rturri · New reply November 12, 2009
  • Journal · 4 replies
  • When I woke up this morning, Nov. 11, I remembered two things.Today is my birthday and I still hadn't met the last one of the paramedics who came to my rescue when I had my sca on April 6, 2008. So, I ...

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The Sudden Cardiac Arrest Association Support Community connects patients, families, friends and caregivers for support and inspiration. The Sudden Cardiac Arrest Association Support Community is sponsored by the Sudden Cardiac Arrest Association in partnership with Inspire.