The Sudden Cardiac Arrest Association Support Community connects patients, families, friends and caregivers for support and inspiration... More about this group

Post ICD

Anj151
  • By Anj151 · New reply yesterday at 3:35 pm
  • Journal · 6 replies
  • I received my icd on 4/16 and I am in so much pain. It is unbearable ...

Biventricular pacemaker and beta blockers

lyon
  • By lyon · New reply April 18, 2014
  • Discussion in Living with an ICD · 6 replies
  • Just had a biventricular pacemaker installed and hoping that it will help improve low EF (35) and help LBBB. Curious to see if others have had been able to lower and or eliminate beta blockers with this ...

How do clean the electrodes?

Gastmeyer
  • By Gastmeyer · New reply April 18, 2014
  • Discussion in Living with an ICD · 3 replies
  • What´s the best way to clean the electrodes of your life vest? Do you use alcohol, Detol, or anything special ...

Seeking Hope

odin77
  • By odin77 · New reply April 18, 2014
  • Discussion in Surviving SCA · 10 replies
  • Seeking hope for my 63 year old father. He had a SCA/MI ? (never got a straight answer) on March 10. He fell unconscious and one of his workers began CPR. The ambulance arrived and he was transported ...

LMNA gene mutation and familial inherited dilated cardiomyopathy

Millerkap
  • By Millerkap · New reply April 17, 2014
  • Journal · 4 replies
  • Hi, I'm a 47 yr. old female that has moderate DCM and an EF of 40%. I have been on carvedilol and quinapril (beta blocker and ACE inhibitor respectively) for 6 years. Recently my family discovered we ...

Complete Mental Exhaustion

cpa3485
  • By cpa3485 · New reply April 16, 2014
  • Journal · 9 replies
  • First, I know how lucky I was to survive 2 SCA's. Secondly, I seem to have recovered very well. Physically, my heart is strong. No cardiac events for 3 years now. I also have had no real adverse mental ...

Saturated Fat or Sugar Bad For Heart

Chilla_1980
  • By Chilla_1980 · New reply April 15, 2014
  • Discussion in Surviving SCA · 4 replies
  • I am curious about peoples thoughts on the idea, that it is not saturated fat that is causing heart disease but sugar & carbohydrates. I watched this video on youtube the other day http://www.youtube.com/watch?v=vRe9z32NZ ...

"A wake-up call from a young e-patient: 'I need to be heard'”

John2
  • By John2 · Posted April 15, 2014
  • Journal · 0 replies
  • From: John Novack, Communications Director, Inspire 4/15/14 Dear members, I am writing to share with you a new guest column in "Scope," the Stanford University School of Medicine's medical blog: "A wake-up ...

pacemakers after someone passes

tuttiefruittie
  • By tuttiefruittie · New reply April 15, 2014
  • Discussion in Dealing with loss · 4 replies
  • I know this is a morbid question but I am still trying to find all the answers to my questions. If a person has a pacemaker and they die what happens to it? I read online that the graveyard is literally ...

a new journey

Jackyrodz
  • By Jackyrodz · New reply April 15, 2014
  • Journal · 2 replies
  • Today was my first day @ work and it was great!!! It's been only seven weeks since my surgery (2/26/14) and my body is still adjusting to the changes, but my mind was ready to move on. This time my wellbeing ...

SCAA Meeting in Royal Oak, MI on 4/22!

Leslie98
  • By Leslie98 · Posted April 14, 2014
  • Discussion in Surviving SCA · 0 replies
  • Here is the most recent email from the Michigan Chapter of SCAA regarding the upcoming meeting. We would LOVE to see new faces and meet more survivors and advocates. The meetings are very friendly and ...

Different readings of EF

Skydiv0r
  • By Skydiv0r · New reply April 14, 2014
  • Discussion in Living with an ICD · 16 replies
  • 47 yr old female who had a heart attack last Oct likely caused by a spasm. No blockages. No cholesterol issues, no other health issues. EF 24%. Did the meds for 5 months, no improvement in my EF. I have ...

Heart Failure

Robind78
  • By Robind78 · New reply April 14, 2014
  • Discussion in Living with an ICD · 3 replies
  • My husband is an SCA survivor. His cardiac arrests occurred on January 24, 2014. He had an ICD implanted. Last Tuesday, the ICD went off after my husband fainted in bed. He went to the hospital after ...

hi

jaredellis
  • By jaredellis · New reply April 13, 2014
  • Discussion in Surviving SCA · 6 replies
  • I am desperate to talk to somebody in person that had this happen. I have met great people on inspire .com But i feel lick an alien I have given up with the searches. Do most of you feel the same way.Or ...

Religious faith and SCA

alexp92
  • By alexp92 · New reply April 9, 2014
  • Discussion in Surviving SCA · 41 replies
  • Hello again everybody, this is a question i have been wanting to ask other survivors. Has surviving SCA put you closer to your religion or faith ? Are your views more concrete since surviving or other ...

Guilty feelings...

Hh236510
  • By Hh236510 · New reply April 9, 2014
  • Journal · 10 replies
  • Earlier this week I had a close friend/co-worker of mine experience a death in her family from SCA. This is the first time since my SCA in July 2013 that I have known someone to have to go through this ...

American Heart Association Heart Walk

alisacarlee
  • By alisacarlee · New reply April 8, 2014
  • Discussion in Promoting CPR and AEDs · 2 replies
  • Hi everyone! As some of you already know, I am an SCA survivor. My cardiac arrest was October 14, 2010 and there was no real reason for it. It was just a "fluke" or something but they gave me an ICD anyway ...

A parent's perspective

Heijoma
  • By Heijoma · New reply April 8, 2014
  • Discussion in Surviving SCA · 10 replies
  • My son, 16 at the time, suffered numerous SCA's and heart failure. He miraculously survived without brain damage. He is doing great, has an ICD, has started university, and by all accounts is living a ...

S-ICD Procedure Date April 4th

Anothermike11
  • By Anothermike11 · New reply April 8, 2014
  • Journal · 25 replies
  • To all of the great people who have been so helpful with all of my questions. I go in this Friday for my S-ICD at St.Paul's in Vancouver. I will do my best to keep you all posted on how it goes and hopefully ...

S-ICD vs ICD

Anothermike11
  • By Anothermike11 · New reply April 8, 2014
  • Journal · 58 replies
  • I am 43 and have just been diagnosed with HCM and VT. Being a very active person this came as a huge suprise. I have not had an episode that I am aware of, but have had 2 episodes of syncope that the ...

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About this community

The Sudden Cardiac Arrest Association Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the Sudden Cardiac Arrest Association, an Inspire trusted partner.