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The stages of grief/acceptance
- By Jamesrochelle · New reply yesterday at 7:34 pm
- Discussion in Surviving SCA · 4 replies
- Until this week I had been going along in what I refer now to as denial. My SCA happened in July and within a week I had an ICD. It all happened so fast and without warning. I had a dream last night and ...
Surgery and the ICD
- By Lydjahh · New reply yesterday at 4:58 pm
- Discussion in Living with an ICD · 2 replies
- I facing a major surgery to remove about 12 inches of my colon. Do they deactivate the ICD during the procedure? I have Long QT and scared of the anesthesia and the medications. I was thinking about asking ...
HAS ANYONE OUT THERE HAD MORE THAT ONE PHANTOM SHOCK
- By bingo · New reply yesterday at 12:19 pm
- Discussion in Living with an ICD · 12 replies
- Has anyone out there had more than one phantom shock? I have had (2) two. I was told that I dreamed it. If I did then it wasn't funny. I'd just like to know if I'm losing it or have already lost it. bingo ...
There is hope, there is help.
- By Aaron-Pennsylvania · New reply yesterday at 12:13 pm
- Journal · 1 reply
- At times I felt alone and no one understood what I was going through. Well, that was true regarding the people around me. Other than Samantha's family and myself, the people in our circle could not understand ...
6 months for Steve
- By wdiane · New reply November 5, 2009
- Journal · 6 replies
- 6 months ago today was the worse day of my life! On that day I felt that life would never be the same and was wondering if Steve was going to live or die. Well, Life is not the same but it is good. We ...
Support for Survivors
- By Aaron-Pennsylvania · New reply November 5, 2009
- Discussion in Surviving SCA · 5 replies
- This site is such a great resource for survivors of SCA/SCD (along with ABI) and their family members. In reality, the family members are survivors too. Sometimes the family needs help and insight from ...
Has anyone ever tried a rehabilation for severe brain injuries?
- By cheriffic · New reply November 5, 2009
- Journal · 7 replies
- If so, can you let me if insurance covers it? And most importantly, did it help ...
Inspire members featured
- By Brian · New reply November 4, 2009
- Journal · 29 replies
- Today Massachusetts General Hospital's Proto Magazine published a wonderful profile of nine Inspire members. Each of these stories underscores what we all know to be true -- that Inspire is a special ...
Applying for Disability
- By ConnieB · New reply November 4, 2009
- Journal · 23 replies
- I live in Virginia I will 60 years old in Aug., I had a heart attack 5 years ago, I had a stent placed. Last year I had a difibillator implanted. I was layed off of my job in February, so I am not working ...
ICD, LQT, low potassium
- By edmar · Posted November 3, 2009
- Journal · 0 replies
- I'm a SCA survivor, and i'm lucky to be alive again. I fainted, April 23, 2009, the reason i was rushed to the hospital. I was admitted for 12 days, and after a series of tests and investigation, my doctor ...
How long does Billy have with an ef of 29??
- By sophianbilly · New reply November 3, 2009
- Journal · 10 replies
- his defib/pacemaker was implanted in June 2009 when he was still at UCH after a chronic heart happened on April 2009......He had anoxia to his brain and heart which is why they waited soooo long....He ...
Getting ICD for Heart failure - how worried should I be?
- By sonia_66 · New reply November 1, 2009
- Discussion in Living with an ICD · 8 replies
- Does anyone else have heart failure? I have been diagnosed and have fears of reaching end-stage heart failure. My medical history includes TIA 1999. History of palpitations since then also. Hypertension ...
Mikei red reishi mushroom?
- By antonella · New reply October 31, 2009
- Journal · 2 replies
- A friend of mine told me about this mushroom. was wondering does anyone know anything about it and is anyone using it? I know it's been used in Japan and China for many years. Any feedback apreciated ...
After ICD shocks you, then what...
- By CarolG · New reply October 31, 2009
- Discussion in Living with an ICD · 6 replies
- Several members/SO's have posted that their ICD has activated one or several times. Then what? Do you have to go to the hospital? Do you just go on with your task? Do you see a white light? Just kidding ...
Heart Fluttering And Pain
- By bluedeuce4 · Posted October 31, 2009
- Discussion in Living with an ICD · 0 replies
- I have been getting a lot of heart fluttering in the past two days,and i`m getting the same feeling that i had when my ICD fired before, but it has not fired. I also am getting sharp shooting pain from ...
Cost of ICD's
- By Twndd · New reply October 30, 2009
- Journal · 35 replies
- Hi all, I am curious as to how much your ICD has cost you. If your insurance picked up some of the cost and if you had a large balance. I just read that it could cost $45,000. WOW!! I know my life is ...
Medtronic Home Monitor
- By Maridee · New reply October 29, 2009
- Discussion in Surviving SCA · 7 replies
- Hi everyone, I just have a question that we can't seem to get answered. My husband has the Medtronic Home monitor for his defib/pacemaker. It clicks sporadically during the night. Medtronic said they ...
LQT with an ICD- anyone out there?
- By jencava · New reply October 27, 2009
- Discussion in Living with an ICD · 18 replies
- Hi. Is there anyone out there who also has LQT and has a defibrillator? I am a 34 year old. female, mother, and wife, and had a cardiac arrest 3 months ago and a week later received an ICD after finding ...
Happy Ending (or is it "Happy Beginning"?
- By CarolG · New reply October 26, 2009
- Journal · 3 replies
- I had my "incident" May 2, 2009. I believe that we who are the survivors of the SCA and have no memory of it are the fortunate ones: the family and friends who wait for us to get better are really the ...
Unexplained Cardiac Arrest
- By JOANIE30 · New reply October 26, 2009
- Journal · 10 replies
- 6 months ago my husband was on a plane when he cardiac arrested twice. After all the test and examinations we still don't know why it happened. Is there anybody else in this situation. He is frightened ...
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The Sudden Cardiac Arrest Association Support Community connects patients, families, friends and caregivers for support and inspiration. The Sudden Cardiac Arrest Association Support Community is sponsored by the Sudden Cardiac Arrest Association in partnership with Inspire.